Participation Restriction Questionnaire: A New Tool to Evaluate Participation in Children

Year 2023, , 96 - 103, 15.03.2023

Ayşe Numanoğlu Akbaş , Özge Çankaya

https://doi.org/10.53424/balikesirsbd.1190538

Abstract

Objective: This study was planned to develop the Participation Restriction Questionnaire for children based on the International Classification of Functioning, Disability and Health: Children and Youth (ICF-CY). Materials and Methods: A total of 242 children; 209 typically developing (mean age:6.82±4.22 years) and 33 with chronic diseases (mean age:74±4.98 years) and their parents were included in the study. The processes followed were literature review, item pooling based on ICF-CY, eliciting and evaluating expert opinion, scoring the scale, collecting data (with google forms), and analyzing the data. Exploratory and confirmatory factor analysis was performed for scale validity, and Cronbach α and Intraclass Correlation Coefficients (ICC) were used for scale reliability. The re-test was applied to 33 volunteer families two weeks after the first test. Results: The final version of the scale was constituted of 23 items (after removing 7 items out of 30 items) and three subscales as body structures and functions, activity and participation, and environmental factors. The model fit was found acceptable (The Root Mean Square Error of Approximation=0.084, Goodness of Fit Index=0.779, Adjusted Goodness of Fit Index=0.732, Chi-Square/degrees of freedom=2.696, p<0.001). For internal consistency Cronbach’s  (α=0.884-0.959) and for test-retest reliability ICC values (ICC=0.625-0.895) were found moderate to high (p<0.05). Conclusion: These findings show that the Participation Restriction Questionnaire, developed as a new tool is a valid and reliable scale for children with typically developing and chronic diseases for evaluating participation. The questionnaire is recommended for use in further studies to identify the factors which restrict participation.

Keywords

Child, Parental Perspective, Participation, ICF-CY

Thanks

We would like to thank the parents to participate the study. We also would like to thank the experts who shared their valuable comments and suggestions and Prof. Dr. Sabri ERDEM for statistical support.

Katılımda Kısıtlılık Anketi: Çocuklarda Katılımı Değerlendirmek için Yeni Bir Araç

Abstract

Amaç: Bu çalışma, Uluslararası İşlevsellik, Engellilik ve Sağlık Sınıflandırması: Çocukluk ve Gençlik (ICF-CY) temelli çocuklar için bir Katılımda Kısıtlılık Anketi geliştirmek için planlandı. Gereç ve Yöntem: İki yüz dokuz tipik gelişen (ortalama yaş:6.82±4.22 yıl) ve 33 kronik hastalığı olan (ortalama yaş:74±4.98 yıl) toplam 242 çocuk ve ebeveynleri çalışmaya dahil edildi. İzlenen süreçler; literatür taraması, ICF-CY'ye dayalı madde havuzu oluşturma, uzman görüşünün alınması ve değerlendirilmesi, ölçeğin puanlanması, veri toplanması (Google formlar ile) ve verilerin analizidir. Ölçek geçerliliği için açıklayıcı ve doğrulayıcı faktör analizi, ölçek güvenirliği için Cronbach α ve Sınıf İçi Korelasyon Katsayısı (ICC) kullanıldı. İlk testten iki hafta sonra 33 gönüllü aileye tekrar test uygulandı. Bulgular: Ölçeğin son halini vücut yapı ve fonksiyonları, aktivite ve katılım ve çevresel faktörler olmak üzere 23 madde (30 maddeden 7 madde çıkarıldıktan sonra) ve üç alt boyuttan oluştu. Model uyumu kabul edilebilir bulundu (Yaklaşık Hataların Ortalama Karekökü=0.084, Uyum İyiliği İndeksi=0.779, Düzeltilmiş Uyum İyiliği İndeksi=0.732, Ki Kare/Serbestlik Derecesi=2.696, p<0.001). İç tutarlılık için Cronbach's α (α=0.884-0.959) ve test-tekrar test güvenirliği için ICC değerleri (ICC=0.625-0.895) orta-yüksek (p<0.05) bulundu. Sonuç: Bu bulgular, yeni bir araç olarak geliştirilen Katılımda Kısıtlılık Anketinin tipik gelişen ve kronik hastalığı olan çocuklarda katılımı değerlendirmek için geçerli ve güvenilir bir ölçek olduğunu göstermektedir. Anketin, katılımı kısıtlayan faktörleri belirlemek için daha sonraki çalışmalarda kullanılması önerilir.

Keywords

Çocuk, Ebeveyn Perspektifi, Katılım, ICF-CY.

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