Kronik Hastalığı Olan Adölesanların Pediatri Servisinden Yetişkin Servise Geçişi: Sağlık Bakım Geçişi ve Hemşirenin Rolü

Year 2022, Volume: 2 Issue: 3, 661 - 669, 26.12.2022

Fatma Dinç , Dilek Yıldız

https://doi.org/10.56061/fbujohs.1119746

Cited By: 1

Abstract

Adölesan dönem, bağımsızlıkların kazanıldığı, kimlik gelişiminin olduğu, aile, akran ilişkilerinde, okul ve mesleki başarıda dinamik değişikliklerin yaşandığı bir dönemdir. Sağlık hizmetindeki ilerlemeler, teknolojik gelişmeler, yenilikçi tedaviler ile çocukluk döneminde teşhis edilen hastalığa sahip çocukların yüzde doksanının olgunluk yaşına ulaşması beklenmektedir. Kronik hastalığı olan adölesanların ayrıca günlük tedavilerini bağımsız bir şekilde yönetmeleri istenmektedir. Fakat pediatrik ve yetişkin servisi arasındaki farklılıklar ile bakımın planlanması ile ilgili eksiklikler henüz yetişkin bakım sistemi için hazır olmayan adölesanların geçiş konusundaki direncini yükseltmektedir. Geçiş sonrasında hayal kırıklığı yaratabilmekte, erişkin doktorunu değiştirmesine neden olmakta, kontrollere düzenli gelmemelerine, ilaçlarına devam etmemelerine, acil servise sık başvurmalarına neden olabilmektedir. Bu nedenle kronik hastalığı olan adölesanların, pediatrik bakımdan yetişkin bakıma devri önemlidir. Sağlık ekibinin ayrılmaz bir parçası olarak hemşirelerin kronik hastalığı olan adölesanların sorunsuz bir geçiş sağlamada, kanıta dayalı geçiş planlamasına katılmada, başlatmada ve liderlik etmede önemli konumdadır. Ayrıca hemşirelerin sağlık bakım geçişinde adölesan ve genç yetişkinlerin geçişe hazır oluşunu değerlendirme, öz yönetim ve öz bakım becerileri konusunda eğitim verme, geçiş boyunca aileyi destekleme, ilaçların kullanımı konusunda eğitim verme, geçiş program bilgisini paylaşma, evde bakım ihtiyaçlarını değerlendirme rolleri vardır. Bu derlemenin amacı kronik hastalığı olan adölesanlarda sağlık bakım geçişinin önemi ve hemşirenin rolleri hakkında bilgi vermektir.

Keywords

Adölesan, Hemşirelik, Kronik hastalık, Yetişkin bakımına geçiş

Transition of Adolescents with Chronic Diseases from Pediatrics to Adult Services: Healthcare Transition and the Role of the Nurse

Abstract

Adolescence is a period when independence is acquired, identity is developed and dynamic changes occur in family and peer relationships as well as academic and professional success. With the improvements in healthcare, technological developments and innovative treatments, ninety percent of children with diseases diagnosed during childhood are expected to reach the age of maturity. Additionally, it is aimed for adolescents with chronic diseases to manage their daily treatment independently. However, the differences between pediatric and adult services and deficiencies related to planning care increase the resistance of adolescents who are not yet ready for the adult care system in terms of the transition. Disappointment may occur following the transition, the process may cause the individual to change doctors, neglect regular check-up, stop using their medicine and frequently apply to emergency service. Therefore, the transfer of adolescents to adult care is important in pediatric terms. As an indispensable part of healthcare professionals, nurses play a significant part in ensuring a smooth transition from pediatric healthcare to adult healthcare for adolescents with chronic diseases as well as participating in, initiating and leading evidence-based transition planning. Additionally, nurses also play a role in evaluating the readiness of adolescents and young adults for the transition, providing training on self-management and self-care skills, supporting the family during the transition period, providing training on the use of medicine, sharing transition program information and evaluating home care needs. The present review aims to provide information regarding the importance of healthcare transition in adolescents with chronic diseases and the role of the nurse.

Keywords

Adolescent, Nursing, Chronic disease, Transition to adult care

References

• Abel, R. A., Cho, E., Chadwick-Mansker, K. R., D’Souza, N., Housten, A. J, & King, A. A. (2015). Transition needs of adolescents with sickle cell disease. American Journal of Occupational Therapy, 69(2), 6902350030p1-5. doi: 10.5014/ajot.2015.013730.
• Aldiss, S., Cass, H. ,Ellis, J., & Gibson, F. W. (2016). We sometimes holdontoours-professionals’ views on factors that both delay and facilitate Transition to Adult Care. Frontiers in Pediatrics, 4, 125. https://doi.org/10.3389/fped.2016.00125.
• American Academy of Pediatrics, American Academy of Family Physicians, and Americna College Physicians. (2011). Clinical report: Supporting the health care transition from adolescence to adulhood in the medical home. Pediatrics, 128(1), 182-200. doi: 10.1542/peds.2011-0969.
• Asp, A., Bratt, E. L., & Bramhagen, A. C. (2015). Transfer to adult care–experiences of young adults with congenital heart disease. Journal of Pediatric Nursing, 30(5), e3–10. https://doi.org/10.1016/j.pedn.2015.05.025.
• Betz, C. L., O’Kane, L. S., Nehring, W. M., & Lobo, M. L. (2016). Systematic review: Health care transition practice service models. Nursing Outlook, 64(3), 229–243. doi:10.1016/j.outlook.2015.12.011.
• Betz, C. L. (2017). SPN Position Statement: Transition of pediatric patients into adult care. Journal of Pediatric Nursing, 35, 160–164. http://dx.doi.org/10.1016/j.pedn.2017.05.003
• Betz, C. L. (2021). Nursing’s ınfluence on the evolution of the field of health care transition and future implications. Journal Pediatric Health Care, 35, 4, 408-413. https://doi.org/10.1016/j.pedhc.2021.01.001.
• Bert, F., Camussi, E., Gili, R., Corsi, D., Rossella, P., Scarmozzino, A., & Siliquini, R. (2020). Transitional care: A new model of care from young age to adulthood. Health Policy, 124(10), 1121–1128. doi: 10.1016/j.healthpol.2020.08.002.
• Blum, R. W., Garell, D., Hodgman, C. H., Jorissen, T. W., Okinow, N. A., Orr, D. P., & Slap, G. B. (1993). Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. Journal of Adolescent Health, 14(7), 570–576. https://doi.org/10.1016/1054-139x(93)90143-d.
• Bratt, E. L., Burstrom, A., Hanseus, K., Rydberg, A., & Berghammer, M. (2018). Do not forget the parents-Parents’ concerns during transition to adult care for adolescents with congenital heart disease. Child Care Health and Development, 44(2), 278–284. doi: 10.1111/cch.12529.
• Burström, A., Ojmyr-Joelsson, M., Bratt, E. L., Lundell, B., & Nisell, M. (2016). Adolescents with congenital heart disease and their parents: Needs before transfer to adult care. The Journal of Cardiovascular Nursing, 31(5), 399–404. https://doi.org/10.1097/jcn.0000000000000288.
• Buschur, E. O., Glick, B., & Kamboj, M.K. (2017). Transition of care for patients with type 1 diabetes mellitus from pediatric to adult health care systems. Translational Pediatrics 6(4), 373–82. https://doi.org/10.21037/tp.2017.09.06
• Campbell, F., Biggs, K., Aldiss, S. K., O’Neill, P. M., Clowes, M., McDonagh, J., . . . Gibson, F. (2016). Transition of care for adolescents from paediatric services to adult health services. Cochrane Database of Systematic Reviews, 29, 4, CD009794. https://doi.org/10.1002/14651858.cd009794.pub2.
• Chouteau, W. A., & Allen, S. R. (2019). Implementation of a portable medical summary for adolescents and young adults with medical complexity in transition to adult health care. Journal of Pediatric Nursing, 48, 35–41. https://doi.org/10.1016/j.pedn.2019.05.012.
• Coyne, I., Sheehan, A., Heery, E., & While, A. E. (2019). Healthcare transition for adolescents and young adults with long-term conditions: Qualitative study of patients, parents and healthcare professionals’ experiences. Journal of Clinical Nursing, 28(21−22), 4062–4076. https://doi.org/10.1111/jocn.15006.
• De Hosson, M., Goossens, P. J. J., De Backer, J., de Wolf, D., & Van Hecke, A. (2021). Needs and experiences of adolescents with congenital heart disease and parents in the transitional process: A qualitative study. Journal of Pediatric Nursing, 61, 90–95 https://doi.org/10.1016/j.pedn.2021.03.016.
• Disabato, J. A., Cook, P. F., Hutton, L., Dinkel, T., & Levisohn, P. M. (2015). Transition from pediatric to adult specialty care for adolescents and young adults with refractory epilepsy: A quality improvement approach. Journal of Pediatric Nursing, 30(5), e37–e45. https://doi.org/10.1016/j.pedn.2015.06.014.
• Disabato, J. A., Mannino, J. E., & Betz, C. L. (2019). Pediatric Nurses' Role in Health Care Transition Planning: National Survey Findings and Practice Implications. Journal of Pediatric Nursing, 49, 60–66. https://doi.org/10.1016/j.pedn.2019.08.003
• Emilie Mannino, J. (2015). Resilience and transitioning to adulthood among emerging adults with disabilities. Journal of Pediatric Nursing, 30(5), e131–e145. https://doi.org/10.1016/j.pedn.2015.05.017.
• Fegran, L., Hall, O. C. H., Uhrenfeldt, L., Aagaard, H., & Ludvigsen, S. M. (2014). Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: A qualitative metasynthesis. International Journal of Nursing Studies, 51(1), 123–135. https://doi.org/10.1016/j.ijnurstu.2013.02.001
• Goralski, J., Nasr, S., & Uluer, A. (2017). Overcoming barriers to a successful transition from pediatric to adult care. Pediatric Pulmonology, 52(S48), S52–S60. https://doi.org/10.1002/ppul.23778.
• Got Transition. (2021). Health care transition process measurement tool for integrating young adults into adult health care six core elements of health care transition 3.0. Erişim adresi: https://www.gottransition.org/six-core-elements/.
• Grady, K. L., Cristian-Andrei, A., Shankel, T., Chinnock, R., Miyamoto, S. D., Ambardekar, A. V., . . . Pahl, E. (2019). Pediatric heart transplantation: Transitioning to adult care (TRANSIT): Feasibility of a pilot randomized controlled trial. Journal of Cardiac Failure, 25(12), 948–958. doi: 10.1016/j.cardfail.2019.06.011.
• Grady, L., Rehm, R., & Betz, C. L. (2020). Understanding the phenomenon of health care transition: Theoretical underpinnings, exemplars of nursing contributions, and research ımplications. Journal of Pediatric Health Care, 35(3), 310-316, https://doi.org/10.1016/j.pedhc.2020.12.003.
• Habibi, H., Emmanuel, Y., & Chung, N. (2017). Process of transition for congenital heart patients: Preventing loss to follow-up. Clinical Nurse Specialist, 31(6), 329–334. doi: 10.1097/NUR.0000000000000335
• Heery E, Sheehan A. M., While A. E., & Coyne, I. (2015). Experiences and outcomes of transition from pediatric to adult health care services for young people with congenital heart disease: A systematic review. Congenital Heart Disease, 10(5), 413-27. doi: 10.1111/chd.12251.
• Khan, F., Rehman, A., Shamim, M., & Bari, M. (2015). Factors affecting ventriculperitoneal shunt survival in adult patients. Surgical Neurology International, 6, 25. doi: 10.4103/2152-7806.151388.
• Ladores, S. (2015). Concept analysis of health care transition in adolescents with chronic conditions. Journal of Pediatric Nursing, 30(5), e119-e129. https://doi.org/10.1016/j.pedn.2015.06.003.
• Lebrun-Harris, L. A., McManus, M. A., Ilango, S. M., Cyr, M., McLellan, S. B., Mann, M. Y., & White, P. H. (2018). Transition planning among US youth with and without special health care needs. Pediatrics, 142(4), e20180194. doi: 10.1542/peds.2018- 0194.
• Lestishock, L., Moriarty Daley, A., & White, P. (2018). Pediatric nurse practitioner’s perspectives on health care transition from pediatric to adult care. Journal of Pediatric Health Care. 32(3), 263-272. doi: 10.1016/j.pedhc.2017.11.005.
• Mahan, D. J., Betz, C.L, Okumura, M. J, & Ferris, M. E. (2017). Self-management and transition to adult health care in adolescents and young adults: A team approach. Pediatrics in Review, 38(7), 305-319. https://doi.org/10.1542/pir.2016-0074.
• Nehring, W. N., Betz, C. L., & Lobo, M. L. (2015). Uncharted Territory: Systematic Review of Providers’ Roles, Understanding and Views Pertaining to Health Care Transition. Journal of Pediatric Nursing, 30(5), 732–747. http://dx.doi.org/10.1016/j.pedn.2015.05.030.
• Perrin, J. M., Anderson, L. E, & Van Cleave, J. (2014). The rise in chronic conditions among infants, children, and youth can be met with continued health system innovations. Health Affairs, 33(12), 2099–2105. https://doi.org/10.1377/hlthaff.2014.0832.
• Raunsbaek Knudsen, L., De Thurah, A., & Bjerrum, M. (2018). Transition from child to adult care in an outpatient clinic for adolescents with juvenile idiopathic arthritis: An inductive qualitative study. Nursing Open, 5(4), 546–554. https://doi.org/10.1002/nop2.164
• Speller-Brown, B., Patterson, K. K., VanGraafeiland, B., Feetham, S., Sill, A., Darbari, D., & Meier, E. R. (2015). Measuring transition readiness: A correlational study of perceptions of parent and adolescents and young adults with sickle cell disease. Journal of Pediatric Nursing, 30(5), 788–796. http://dx.doi.org/10.1016/j.pedn.2015.06. 008.
• Strini, V., Daicampi, C., Trevisan, N., Prendin, A., Marinelli, E., Marinetto, A., & de Barbieri, I (2020). Transition of care in pediatric oncohematology: a systematic literature review. Acta Biomed for Health Professions, 91(6), 48-64. https://doi.org/10.23750/abm.v91i6-s.9876.
• Varty, M., Speller-Brown, B., Phillips, L., & Patterson Kelly, K. (2020). Youths' experiences of transition from pediatric to adult care: An updated qualitative metasynthesis. Journal of Pediatric Nursing, 55, 201–210. https://doi.org/10.1016/j.pedn.2020.08.021.
• White, P. H., & Cooley, W. C. (2018). Transitions clinical report authoring group; American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians. Supportingthe health care transition from adolescence to adulthood in the medical home. Pediatrics, 142(5), e20182587. https://doi.org/10.1542/peds.2018-3610.
• Withers, A. L., & Green, R. (2019). Transition for adolescents and young adults with asthma. Frontiers in Pediatrics. 7, 301. doi: 10.3389/fped.2019.00301.
• Wood, D. L., Sawicki, G. S., Miller, M. D., Smotherman, C., Lukens-Bull, K., Livingood, W., Ferris, M., & Kraemer, D.F. (2014). The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity. Academic Pediatrics, 14(4), 415-422. doi: 10.1016/j.acap.2014.03.008
• Wright, J., Elwell, L., McDonagh, J. E, Kelly, D. A, & Wray, J. (2016). “Are these adult doctors gonna know me?” Experiences of transition for young people with a liver transplant. Pediatric Transplantation, 20(7), 912–920. doi:10.1111/petr.12777.
• Zoni, S., Verga, M. E., Hauschild, M., Aquarone-Vaucher, M. P, Gyuriga, T., Ramelet, A. S, & Dwyer, A. A. (2018). Patient perspectives on nurse-led consultations within a pilot structured transition program for young adults moving from an academic tertiary setting to community-based type 1 diabetes care. Journal of Pediatric Nursing, 38, 99–105. doi: 10.1016/j.pedn.2017.11.015.