Kanser Hastalarına Bakım Verenleri Güçlendirme: Bakım Veren Eğitimi ve Danışmanlığı

Year 2024, Volume: 13 Issue: 3, 1429 - 1435, 26.09.2024

Baise Bicav , Sevinç Kutlutürkan

https://doi.org/10.37989/gumussagbil.1320095

Abstract

Kanser, hastalık ve tedavi sürecinde hastaları ve hasta bireyin bakım sorumluluğunu yürüten bakım verenleri pek çok yönden etkilemektedir. Bakım verenleri psikolojik, fiziksel, sosyal, ekonomik boyutlarıyla etkilemektedir. Bakım verenlerin yaşadıkları güçlüklerle baş etmede eğitim ve danışmanlığa gereksinimleri ortaya çıkmaktadır. Bakım verenler için planlanan eğitimler, bakım verenin fiziksel, sosyal ve psikolojik açıdan rahatlamasını, öz yeterliliğini arttırmasını ve yaşam kalitesini iyileştirici yönde olmalıdır. Bu derlemenin amacı, kanser hastalarına bakım verenlerin ve hastaların desteklenmesi için kullanımı giderek artan video destekli eğitim, web tabanlı eğitim, telefon danışmanlığı gibi yöntemlere ilişkin güncel bilgilerin sunulması ile eğitim programlarına farkındalığın oluşması ve kullanımının yaygınlaştırılmasıdır.

Keywords

Bakım Veren, Eğitim, Hemşirelik, Kanser

Empowering Caregivers of Cancer Patients: Cargiver Education and Counseling

Abstract

Cancer affects patients and caregivers who are responsible for the care of the sick individual in many ways during the disease and treatment process. It affects caregivers with psychological, physical, social and economic dimensions. Caregivers need training and counseling in coping with the difficulties they experience. The trainings planned for caregivers should improve the physical, social and psychological relaxation of the caregiver, increase self-efficacy and improve the quality of life. The purpose of this review is to raise awareness and spread the use of education programs by presenting updated information on methods such as video-assisted education, web-based education, telephone counseling, which are increasingly used to support cancer patients and caregivers.

Keywords

Caregiver, Cancer, Education, Nursing

References

• 1. Global Cancer Observatory (2022). ‘‘New Global Cancer Data’’. Erişim Adresi: https://gco.iarc.fr/tomorrow/en/dataviz/isotype (Erişim tarihi: 22.09.2024)
• 2. Gürkan, A, Dikmen Aydın, Y, Kırtıl, İ. ve Oğuz, S. (2021). ‘‘Erişkin Kanser Hastalarının Aile Bakım Vericilerinin Bakım Verme Yükü ve Etkileyen Faktörlerin İncelenmesi’’. Türkiye Klinikleri Journal of Nursing Sciences, 13 (3), 457-67.
• 3. Lafcı, D, Yıldız, E, Toru, F. ve Karakaya, D. (2020). ‘‘Kanser Hastalarında Bakım Yükü ve Bakım Verenlere Etkisi’’. Sağlık Akademisyenleri Dergisi, 7 (2), 105-113.
• 4. Özdemir, G. ve Özkaraman, A. (2022). ‘‘Kanser Hastasına Bakım Verenlerin Bakım Yükü ve Duygusal Zekâ Düzeylerinin Değerlendirilmesi’’. Gevher Nesıbe Journal of Medıcal and Health Scıences, 7 (18), 49-63.
• 5. Saraçoğlu, E, Altay, B. ve Dönmez, M.D. (2022). ‘‘Kanserli Hastalara Bakım Veren Aile Üyelerinin Bakım Verme Yükü ve Tükenmişlik Düzeyleri’’. Akademik Sosyal Araştırmalar Dergisi,10 (124),370-382.http://dx.doi.org/10.29228/ASOS.54970
• 6. Bilgin, A, Özdemir, L. and Öksüzoğlu, O. B. (2022). ‘‘Examination of Family Caregivers of Advanced Cancer Patients Within the Scope of the Cancer Family Caregiving Experience Model: An Embedded Mixed-Methods Design’’. European Journal of Cancer Care, 31 (6), e13659. https://doi.org/10.1111/ecc.13659
• 7. Yıldız, E, Karakaş, S. A, Güngörmüş, Z. and Cengiz, M. (2017). ‘‘Levels of Care Burden and Self-efficacy for Informal Caregiver of Patients With Cancer’’. Holistic Nursing Practice, 31 (1), 7–15. https://doi.org/10.1097/HNP.0000000000000185
• 8. Gunn, K.M, Ross, X.S. and Olver, I. (2022). ‘‘Optimizing Rural People's Access to Relevant Cancer Education and Support Using Peer-Led YouTube Films’’. Journal of Cancer Education, 37 (4), 973–982. https://doi.org/10.1007/s13187-020-01908-w
• 9. Li, Y, Li, J, Zhang, Y, Ding, Y. and Hu, X. (2022). ‘‘The Effectiveness of E-Health İnterventions on Caregiver Burden, Depression, and Quality of Life in İnformal Caregivers of Patients with Cancer: A Systematic Review And Meta-Analysis of Randomized Controlled Trials’’. International Journal of Nursing Studies, 127,104179.https://doi.org/10.1016/j.ijnurstu.2022.104179
• 10. Gohari, F, Hasanvand, S, Gholami, M, Heydari, H, Baharvand, P. and Almasian, M. (2022). ‘‘Comparison of the Effectiveness of Home Visits and Telephone Follow-Up on the Self-Efficacy of Patients Having Un-Dergone Coronary Artery Bypass Graft Surgery (CABG) and the Burden of Their Family Caregivers: A Randomized Con-Trolled Trial’’. Investigacion Y Educacion En Enfermeria, 40 (1), e14. https://doi.org/10.17533/udea.iee.v40n1e1
• 11. Berry-Carter, K, Barnett, B, Canavera, K, Baker, J.N. and Mandrell, B.N. (2021). ‘‘Development of a Structured Peer Mentoring Program for Support of Parents and Caregivers of Children with Cancer’’. Journal of Pediatric Nursing, 59, 131–136. https://doi.org/10.1016/j.pedn.2021.03.031
• 12. Kim, H, Goldsmith, J.V, Sengupta, S, Mahmood, A, Powell, M.P, Bhatt, J, Chang, C. F. and Bhuyan, S.S. (2019). ‘‘Mobile Health Application and e-Health Literacy: Opportunities and Concerns for Cancer Patients and Caregivers’’. Journal of Cancer Education, 34 (1), 3–8. https://doi.org/10.1007/s13187-017-1293-5
• 13. Mourão, C.M.L, Fernandes, A.F.C, Moreira, D.P. and Martins, M.C. (2017). ‘‘Motivational İnterviewing in the Social Support of Caregivers of Patients with Breast Cancer in Chemotherapy’’. Entrevista Motivacional No Suporte Social De Cuidadores De Pacientes Com Câncer De Mama Em Quimioterapia. Revista da Escola de Enfermagem da USP, 51, e03268. https://doi.org/10.1590/S1980-220X2017001803268
• 14. Toptaş Kılıç, S. ve Öz, F. (2019). ‘‘Kanser Hastalarına Bakım Veren Aile Üyelerinin Sorunları, Yaşam Kalitesi ve Müdahaleler’’. Hacettepe Üniversitesi Hemşirelik Fakültesi Dergisi, 6 (3), 197-204.
• 15. Uğur, Ö. ve Fadıloğlu, Z. (2012). ‘‘Kanser Hastasına Bakım Verenlere Uygulanan Planlı Eğitimin Bakım Veren Yükü Üzerine Etkisi’’. Cumhuriyet Hemşirelik Dergisi, 1 (2),53-58.
• 16. Aladağ, M. ve Tezer, E. (2016). ‘‘Akran Danışmanlığı Nedir? Ne Değildir?’’. Türk Psikolojik Danışma ve Rehberlik Dergisi, 3 (27), 139-152.
• 17. Haynes-Maslow, L., Allicock, M. and Johnson, L.S. (2017). ‘‘Peer Support Preferences Among African-American Breast Cancer Survivors And Caregivers’’. Supportive Care in Cancer, 25 (5), 1511–1517. https://doi.org/10.1007/s00520-016-3550-2
• 18. Mosher, C.E, Secinti, E, Johns, S.A, O'Neil, B.H, Helft, P.R, Shahda, S, Jalal, S.I. and Champion, V.L. (2018). ‘‘Examining The Effect of Peer Helping in a Coping Skills İntervention: A Randomized Controlled Trial for Advanced Gastrointestinal Cancer Patients and Their Family Caregivers’’. Quality of Life Research: An İnternational Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 27 (2), 515–528. https://doi.org/10.1007/s11136-017-1620-7
• 19. Badger, T.A, Segrin, C, Sikorskii, A, Pasvogel, A, Weihs, K, Lopez, A.M. and Chalasani, P. (2020). ‘‘Randomized Controlled Trial of Supportive Care İnterventions to Manage Psychological Distress and Symptoms in Latinas with Breast Cancer and Their İnformal Caregivers’’. Psychology & Health, 35 (1), 87–106. https://doi.org/10.1080/08870446.2019.1626395
• 20. Heckel, L, Fennell, K.M, Reynolds, J, Boltong, A, Botti, M, Osborne, R.H, Mihalopoulos, C, Chirgwin, J, Williams, M, Gaskin, C. J, Ashley, D.M. and Livingston, P. M. (2018). ‘‘Efficacy of A Telephone Outcall Program to Reduce Caregiver Burden Among Caregivers of Cancer Patients [PROTECT]: A Randomised Controlled Trial’’. BMC Cancer, 18 (1), 59. https://doi.org/10.1186/s12885-017-3961-6
• 21. Lewis, F.M, Griffith, K.A, Wu, K.C, Shands, M.E. and Zahlis, E.H. (2022). ‘‘Helping Us Heal: Telephone Versus in-Person Marital Communication and Support Counseling for Spouse Caregivers of Wives with Breast Cancer’’. Supportive Care in Cancer, 30 (1), 793–803. https://doi.org/10.1007/s00520-021-06439-8
• 22. Su, Z, Li, X, McDonnell, D, Fernandez, A.A, Flores, B.E. and Wang, J. (2021). ‘‘Technology-Based Interventions for Cancer Caregivers: Concept Analysis’’. JMIR Cancer, 7 (4), e22140. https://doi.org/10.2196/22140
• 23. Washington, K.T, Oliver, D.P, Benson, J.J, Rolbiecki, A.J, Jorgensen, L.A, Cruz-Oliver, D.M. and Demiris, G. (2020). ‘‘Factors İnfluencing Engagement in an Online Support Group for Family Caregivers of İndividuals with Advanced Cancer’’. Journal of Psychosocial Oncology, 38 (3), 235–250. https://doi.org/10.1080/07347332.2019.1680592
• 24. Heynsbergh, N, Heckel, L, Botti, M. and Livingston, P.M. (2018). ‘‘Feasibility, Useability and Acceptability of Technology-Based İnterventions for İnformal Cancer Carers: A Systematic Review’’. BMC Cancer, 18 (1), 244. https://doi.org/10.1186/s12885-018-4160-9
• 25. Merz, A, Mohamed, A, Corbett, C, Herring, K, Hildenbrand, J, Locke, S.C, Patierno, S, Troy, J, Wolf, S, Zafar, S.Y, Chilcott, J, Higgins, A, Manassei, H, McCoy, C, Buckingham, T.L. and LeBlanc, T.W. (2022). ‘‘A Single-Site Pilot Feasibility Randomized Trial of A Supportive Care Mobile Application İntervention for Patients with Advanced Cancer and Caregivers’’. Supportive Care in Cancer, 30 (10), 7853–7861. https://doi.org/10.1007/s00520-022-07224-x
• 26. Chen, Y, Sun, L, Xiao, H, Zheng, J. and Lin, X. (2022). ‘‘Evaluation of a WeChat-based Dyadic Life Review Program for People with Advanced Cancer and Family Caregivers: A Mixed-Method Feasibility Study’’. Palliative Medicine, 36 (3), 498–509. https://doi.org/10.1177/02692163211066736
• 27. Uysal, N, Bağçivan, G, Özkaraman, A, Karaaslan Eşer, A, Çetin, F, Çalışkan, B.B, Elöz, A, Gündoğdu, E.İ, Olcay, G.K, Kaya, B. and Soylu, Y. (2021). ‘‘Empowering Caregivers in the Radiotherapy Process: The Results of A Randomized Controlled Trial’’. Supportive Care in Cancer, 29 (5), 2395–2404. https://doi.org/10.1007/s00520-020-05743-z
• 28. Luo, X, Gao, L, Li, J, Lin, Y, Zhao, J. and Li, Q. (2020). ‘‘A Critical Literature Review of Dyadic Web-Based İnterventions to Support Cancer Patients and Their Caregivers, and Directions for Future Research’’. Psycho-Oncology, 29 (1), 38–48. https://doi.org/10.1002/pon.5278
• 29. Nightingale, C, Sterba, K.R, Levine, B, Tooze, J.A, Greven, K, Frizzell, B, Hughes, R. T, Snavely, A, Lesser, G.J, Norona, S, Pleasant, K. and Weaver, K.E. (2022). ‘‘Feasibility and Acceptability of a Multi-Modality Self-Management Intervention for Head and Neck Cancer Caregivers: A Pilot Randomized Trial’’. Integrative Cancer Therapies, 21, 15347354221098984.https://doi.org/10.1177/15347354221098984
• 30. Kul Uçtu, A. ve Özerdoğan, N. (2020).‘‘Emzirme Eğitiminde Öğrendiğini Anlat (Teach-Back) Yönteminin Kullanımı’’. Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi, 23 (1): 162-168. DOI: 10.17049/ataunihem.548173
• 31. Cutilli, C.C. (2020). ‘‘Excellence in Patient Education: Evidence-Based Education that Sticks and Improves Patient Outcomes’’. The Nursing Clinics of North America, 55 (2), 267–282. https://doi.org/10.1016/j.cnur.2020.02.007
• 32. Farris, C. (2015). ‘‘The Teach Back Method’’. Home Healthcare Now, 33 (6), 344–345. https://doi.org/10.1097/NHH.0000000000000244
• 33. Choi, S. and Choi, J. (2021). ‘‘Effects of the Teach-Back Method Among Cancer Patients: A Systematic Review of the Literature’’. Supportive Care in Cancer, 29 (12), 7259–7268. https://doi.org/10.1007/s00520-021-06445-w
• 34. Prochnow, J.A, Meiers, S.J. and Scheckel, M.M. (2019). ‘‘Improving Patient and Caregiver New Medication Education Using an Innovative Teach-back Toolkit’’. Journal of Nursing Care Quality, 34 (2), 101–106. https://doi.org/10.1097/NCQ.0000000000000342
• 35. Wu, T.Y, Hsiao, S.H, Huang, S.J, Kuo, K.L, Woung, L.C. and Chen, F.C. (2021). ‘‘The Effect of Home Visits on Healthcare Resource Utilisation’’. Australian Journal of General Practice, 50 (8), 595–602. https://doi.org/10.31128/AJGP-07-20-5512
• 36. Rico-Blázquez, M, García-Sanz, P, Martín-Martín, M, López-Rodríguez, J.A, Morey-Montalvo, M, Sanz-Cuesta, T, Rivera-Álvarez, A, Araujo-Calvo, M, Frías-Redondo, S, Escortell-Mayor, E, Cura-González, I.D. and CuidaCare Group (2021). ‘‘Effectiveness of A Home-Based Nursing Support and Cognitive Restructuring İntervention on the Quality of Life of Family Caregivers in Primary Care: A Pragmatic Cluster-Randomized Controlled Trial’’. International Journal of Nursing Studies, 120, 103955. https://doi.org/10.1016/j.ijnurstu.2021.103955
• 37. Han, C.J, Chi, N.C, Han, S, Demiris, G, Parker-Oliver, D, Washington, K, Clayton, M. F, Reblin, M. and Ellington, L. (2018). ‘‘Communicating Caregivers' Challenges with Cancer Pain Management: An Analysis of Home Hospice Visits’’. Journal of Pain and Symptom Management, 55 (5), 1296–1303. https://doi.org/10.1016/j.jpainsymman.2018.01.004
• 38. Chen, H.L, Annie Kao, T.S, Reuille, K.M. and Northouse, L. (2021). ‘‘FOCUS Program: Treating Patients with Cancer and Family Caregivers as a Unit of Care’’. Clinical Journal of Oncology Nursing, 25 (3),17–25. https://doi.org/10.1188/21.CJON.E17-E25