Transition to Adult Follow-up Care of Childhood Cancer Survivors: Requirements and Barriers

Year 2023, Volume: 10 Issue: 3, 305 - 312, 28.12.2023

Tuba Arpaci

https://doi.org/10.31125/hunhemsire.1302328

Abstract

Transition to adult-oriented follow-up should be made so survivors can receive appropriate care according to their developmental characteristics. Transition of care is a planned, coordinated, and multidisciplinary process undertaken to ensure the effective transition of survivors from child-centered to adult-centered healthcare systems. Conducting transition of care within the scope of guidelines and programs, evaluating survivors' readiness, educating survivors on follow-ups, and collaborating with the adult team are among the requirements of transitional care. Individual situations related to survivors, situations related to the health care system and health professionals, and situations related to family and social life could be barriers in the conduct of transition of care. The American Academy of Pediatrics recommends starting preparation for transitional care between the ages of 14-18 and planning for transition to adults between 18-21. Although different procedures can be applied for the transition from pediatrics to adult follow-up in pediatric oncology centers in developed countries, in most centers, the transition of adolescents to adult is carried out until the age of 18. In this review, the characteristics of adult follow-up transitional care for survivors, the requirements of transitional care, barriers in transitional care, transitional care programs carried out in developed countries, and the nurse's role in the transition of care will be discussed.

Keywords

Childhood cancer, long-term follow-up, nursing, survivors, transition

Çocukluk Çağı Kanserlerinden Sağ Kalanların Yetişkin İzleme Geçiş Bakımı: Gereklilikler ve Engeller

Abstract

Sağ kalanların yetişkinliğe geçişte uygun gelişimsel bakımı alabilmeleri için yetişkin odaklı izleme geçişleri yapılmalıdır. Geçiş bakımı sağ kalanların çocuk merkezli sağlık bakım sistemlerinden yetişkin odaklı sağlık bakım sistemlerine etkili bir şekilde geçişini sağlamak için gerçekleştirilen planlı, koordineli ve multidisipliner bir süreçtir. Geçiş bakımının standart rehberler ve programlar kapsamında yürütülmesi, sağ kalanların geçiş için hazır oluşluğunun değerlendirilmesi, izlemler konusunda eğitimi ve yetişkin ekip ile iş birliği geçiş bakımının temel gereklilikleri arasında yer almaktadır. Sağ kalanlarla ilgili bireysel durumlar, sağlık sistemi ve sağlık profesyonelleriyle ilişkili durumlar ve aile ve sosyal yaşantıyla ilişkili durumlar geçiş bakımının yürütülmesinde engel oluşturabilmektedir. Amerikan Pediatri Akademisi 14-18 yaş aralığında geçiş bakımı için hazırlığın başlamasını ve 18-21 yaş aralığında yetişkine devrin planlanmasını önermektedir. Gelişmiş ülkelerde çocuk onkoloji merkezlerinde pediatriden yetişkin izleme geçiş için farklı prosedürler uygulanabilmekle birlikte çoğu merkezde adölesanların yetişkine devri 18 yaşına kadar gerçekleştirilmektedir. Bu derlemede sağ kalanlara ilişkin yetişkin izleme geçiş bakımının özellikleri, geçiş bakımının gereklilikleri, geçiş bakımında engeller, gelişmiş ülkelerde yürütülen geçiş bakımı programları ve geçiş bakımında hemşirenin rolü tartışılacaktır.

Keywords

Çocukluk çağı kanseri, geçiş, hemşirelik, sağ kalanlar, uzun dönem izlem

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