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Kanser Hastalarının Manevi Gereksinimlerini Değerlendirmeye İlişkin Ölçek Çalışmalarının İncelemesi

Year 2020, Volume: 10 Issue: 1, 138 - 145, 31.03.2020
https://doi.org/10.16899/jcm.591105

Abstract

Amaç: Kanser gibi yaşamı tehdit eden, yönetilmesi ya da baş edilmesi zor olan kriz anlarında bireylerin fiziksel, duygusal, ruhsal ve sosyal gereksinimlerinin yanı sıra manevi destek gereksinimleri de artar. Her coğrafyada her kültürde ve her dinde manevi değerler farklılık gösterir. Bu derlemenin amacı farklı kültür ve coğrafyalarda kanser hastalarının manevi bakım gereksinimlerini değerlendirmesi için yayınlanmış ölçeklerin incelenmesidir.
Yöntem: “Spirituality, cancer, spiritual care needs scale” anahtar kelimeleriyle veri tabanlarında yapılan arama sonucunda 2000-2017 yılları arasında yayımlanmış olan Pubmed veri tabanında 49, Sciencedirect veri tabanında 184, EBSCOhost veri tabanında 36 olmak üzere toplam 269 makaleye ulaşılmıştır. Makalenin başlığında veya anahtar kelimelerinde arama kelimelerinin varlığına ve makalenin özetinde kanser hastalarında manevi bakım gereksinimi değerlendirmeye yönelik yeni bir ölçek geliştirilme durumuna bakılmıştır. Değerlendirme kriterlere uygun makalelerin araştırma yöntemleri ayrıntılı bir şekilde incelenmiştir.
Bulgular: İncelemeler sonucunda kanser hastalarında manevi bakım gereksinimini değerlendirmeye yönelik yeni geliştirilen altı ölçek çalışması bulunmuştur. Hastalık ilişkili manevi ihtiyaçlar ölçeği (spiritual interests related to illness tool), manevi ihtiyaçlar ölçeği (spiritual needs scale), manevi ihtiyaçlar anketi (spiritual needs questionnaire), hastaların manevi ihtiyaçlarını değerlendirme ölçeği (spiritual needs assessment for patients) ve palyatif hastalarının manevi ihtiyaçlarını değerlendirme (spiritual needs questionnaire for palliative care), hastaların manevi ihtiyaçlarını değerlendirme ölçek (Patients spiritual needs assessment scale) çalışmalarının araştırma yöntemlerinin sınırlı olduğu görülmüştür.
Sonuç: Kanser hastalarının manevi gereksinimleri bulunan coğrafyaya ve kültürel faktörlere göre değişiklik göstermektedir. Kanser hastalarının manevi gereksinimlerinin değerlendirilmesine yönelik yapılan ölçek çalışma sayısının ve araştırma yöntemlerinin sınırlı olduğu görülmüştür. 

References

  • 1. Abuzar C. Dinin Toplumsal Yaşam Üzerindeki Etkisi. Harran Üniversitesi İlahiyat Fakültesi Dergisi. 26, 2011: 145
  • 2. Anandarajah G, Hıght E. Spirituality and medical practice: using the hope questions as a practical tool for spiritual assessment. Am Fam Physician. 2001; 63(1):81-89.
  • 3. Balboni MJ, Sullivan A, Enzinger AC, Epstein-Peterson ZD ve ark. Nurse and physician barriers to spiritual care provision at the end of life. Journal of Pain Symptom Manage. 2014; 48(3): 400–410.
  • 4. Balboni T, Balboni M, Paulk ME, Phelps A, Wright A., Peteet J, Block S, Lathan C, Vanderweele T & Prigerson H. Support of cancer patients’ spiritual needs and associations with medical care costs at the end of life. Cancer. 2011; 117, 5383– 5391.
  • 5. Balboni TA, Paulk ME, Balboni MJ, Phelps AC, Loggers ET, Wright AA, Block SD, Lewis EF, Peteet JR & Prigerson HG. Provision of spiritual care to patients with advanced cancer: associations with medical care and quality of life near death. Journal of Clinical Oncology. 2010; 28, 445–452.
  • 6. Balboni TA, Vanderwerker LC, Block SD, Paulk ME, Lathan CS, Peteet JR & Prigerson, HG. Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life. Journal of Clinical Oncology,2007; 25, 555–560.
  • 7. Berggren-Thomas P, Griggs MJ. Spirituality in aging: spiritual need or spiritual journey. Journal of Gerontologicial Nursing.1995;21(3),5-10.
  • 8. Bulut, M. 1. Din hizmetleri sempozyumu. Ankara:Diyanet İşleri Başkanlığı Yayınları; 2008
  • 9. Büssing A, Balzat HJ, Heusser P. Spiritual needs of patients with chronic pain diseases and cancer - validation of the spiritual needs questionnaire. Eur J Med Res. 2010;15(6):266–73.
  • 10. Callister LC, Bond AE, Matsumura G, Mangum S. (2004). Threading spirituality throughout nursing education. Holistic Nursing Prectice.2004; 18(3):160–166. 11. Carmines EG, Zeller RA. Reliability and validity assessment. 5th printing. Beverly Hills: Sage Publications Inc; 1982:9
  • 12. Çömlekçi N. Temel istatistik ilke ve teknikleri. Eskişehir: Bilim Teknik Yayınevi; 1989:12
  • 13. Daştan NB, Buzlu S. Meme kanseri hastalarında maneviyatın etkileri ve manevi bakım. Maltepe Üniversitesi Hemşirelik Bilim ve Sanatı Dergisi. 2010;(3):1: 73-78.
  • 14. Dedeli Ö, Yıldız E, Yüksel Ş. Assessing the spiritual needs and practices of oncology patients in Turkey. Holistic Nursing Practice. 2015;29(2):103–113.
  • 15. Engebretson J, Headley J. Cultural diversity and care. Dossey L. Keegan CE. Guzzetta, Editörler. Holistic nursing: A handbook for practice. Sudbury; 2005:305-34
  • 16. Ercan İ, Kan İ. Ölçeklerde güvenirlik ve geçerlik. Uludağ Üniversitesi Tıp Fakültesi Dergisi. 2004; 30 (3) 211-216.
  • 17. Flannelly KJ, Galek K, Bucchino J, Vane A. The relative prevalence of various spiritual needs. Scot J Healthcare Chaplaincy. 2006;9(2):25–30.
  • 18. Flannelly KJ, Galek K, Flannelly LT. A test of the factor structure of the patient spiritual needs assessment scale. Holist Nurs Pract. 2006;20(4):187–90.
  • 19. Fukuyama MA. Integrating spirituality in multicultural counseling: "A worldview" . Harper FD, McFadden J, Editörler. Culture And Counseling: New Approaches. Needham Heights; 2003,186-195.
  • 20. Galek K, Flannelly KJ, Jacobs MR, Barone JD. Spiritual needs: gender differences among professional spiritual care providers. J Pastoral Care Counsel. 2008; 62(1-2):29-35.
  • 21. Galek K, Flannelly KJ, Vane A, Galek RM. Assessing a patient’s spiritual needs. Holistic Nursing Practice. 2005;19(2):62-69.
  • 22. HealthCare Chaplaincy. Handbook of patients’ spiritual and cultural values for health care professionals [Internet]. 2013. [Erişim Tarihi: 06.12.2018]. Erişim adresi: http://www.healthcarechaplaincy.org/userimages/Cultural%20Sensitivity%20handbook%20from%20HealthCare%20Chaplaincy%20%20(3-12%202013).pdf
  • 23. Hitchcock JE, Schubert PE, Thomas SA. Community health nursing: Carin. New York;1999.
  • 24. Hodge DR. Spiritual assessment: a handbook for helping professionals, Botsford, CT: North American Association of Christians In Social Work; 2003.
  • 25. Koeing H. Spirituality and mental health. International Journal of Applied Psychoanalytic Studies. 2010;7(2),116-120.
  • 26. McSherry W, Ross L. Dilemmas of spiritual assessment: considerations for nursing practice. Journal of Advanced Nursing. 2002; 38(5),479-488. 27. Miner-Williams D. Putting a puzzle together: making spirituality meaningful for nursing using an evolving theoretical framework. Journal of Clinical Nursing. 2006; 15, 811–821.
  • 28. Moadel A, Morgan C, Fatone A. Seeking meaning and hope: self-reported spiritual and existential needs among an ethnically-diverse cancer patient population. Pschooncology. 1999; 8(5):378-385.
  • 29. Moberg, D.O. (2010). Spirituality Research: Measuring the Immeasurable?. Perspectives on Science and Chiristian Faith, 62 (2), 99-114.
  • 30. Monareng LV. Spiritual nursing care: A concept analysis. Curationis. 2012;35(1): 28-37
  • 31. Muncy JF. Compherensive spiritual asssesment. American Journal of Hospice&Palliative Care. 1996;13(5), 44-45
  • 32. Öz F. İnsan, spiritual gereksinimler ve hemşirelik. Klinik Bilimler & Doktor. 2004; 10(3):266-273.
  • 33. Özdamar K. Paket programlar ile istatistiksel veri analizi. Eskişehir: Kaan Kitabevi; 2004.
  • 34. Sharma RK, Astrow AB, Texeira K, Sulmasy DP. The spiritual needs assessment for patients (SNAP): development and validation of a comprehensive instrument to assess unmet spiritual needs. Journal of Pain Symptom Manage. 2012; 44:44-51.
  • 35. Tavşancıl E. Tutumların ölçülmesi ve spss ile veri analizi, Ankara: Nobel Yayıncılık; 2002.
  • 36. Taylor EJ. Prevalence and associated factors of spiritual needs among patients with cancer and family caregivers. Oncology Nursing Forum. 2006;33(4):729–35. 37. Taylor EJ. Spiritual Needs of Patients With Cancer and Family Caregivers. Cancer Nursing. 2003; 26, 4,
  • 38. Tezbaşaran A. Likert tipi ölçek hazırlama Kılavuzu. [Elektronik Sürüm]. [Internet]. 2008 [Erişim Tarihi: 26.12.2018]. Erişim adresi: http://www.academia.edu/1288035/Likert_Tipi_Ölçek_Hazırlama_Kılavuz
  • 39. Türk Dil Kurumu. [Internet]. 2006 [Erişim Tarihi: 16.03.2019]. Erişim adresi: http://www.tdk.gov.tr/index.php?option=com_gts&view=gts
  • 40. Ünsal A. Hemşireliğin Dört Temel Kavramı: İnsan, Çevre, Sağlık&Hastalık, Hemşirelik. Ahi Evran Üniversitesi Sağlık Bilimleri Dergisi. 2017, 1(1): 11-25.
  • 41. Vilalta A, Valls J, Porta J, Vinas J. Evaluation of spiritual needs of patients with advanced cancer in a palliative care unit. Journal of Palliative Medicine. 2014;17(5):592–600.
  • 42. Wright MC. The essence of spiritual care. a phenomenological enquiry. Palliative Medicine. 2002;16(2), 125-132.
  • 43. Yong J, Kim J, Han SS, Puchalsk CM. Development and validation of a scale assessing spiritual needs for korean patients with cancer. Journal of Palliative Care, 2008; 24(4):240–6.

Investigation of the Scales Studies on the Evaluation of the Spiritual Needs of Cancer Patients

Year 2020, Volume: 10 Issue: 1, 138 - 145, 31.03.2020
https://doi.org/10.16899/jcm.591105

Abstract


Aim: In times of crisis, such as cancer, that is life threatening, difficult to manage or difficult to cope with, the physical, emotional, spiritual and social needs of the individual as well as the need for spiritual support increase. In every geography, culture, and religion spiritual values are different. The aim of this review is to examine the published scales to evaluate the spiritual care needs of cancer patients in different cultures and geographies.
Method: All publications about with the keywords “Spirituality, cancer, spiritual care needs scale” in the Pubmed, Sciencedirect, EBSCOhost databases published between 2000-2017 were examined. As a result of the examination, a total of 269 articles, 49 in Pubmed database, 184 in Sciencedirect database and 36 in EBSCOhost database, were reached. It was examined in the article title or keywords the presence of search words and in the summary of the article the situation developing a new scale to evaluate the need for spiritual care in cancer patients. According to the evaluation criteria suitable articles' research methods were examined in detail.
Results: As a result of the investigations, 6 scale studies were conducted to evaluate the need for spiritual care in cancer patients. Spiritual interests related to illness tool, spiritual needs scale, spiritual needs questionnaire, spiritual needs assessment for patients and spiritual needs questionnaire for palliative care, patients spiritual needs assessment scale' research methods were found limited.

Conclusion: Cancer patients' spiritual needs vary according to the geography and cultural factors. It was found that the number of scale studies and research methods to evaluate the spiritual needs of cancer patients were limited.

References

  • 1. Abuzar C. Dinin Toplumsal Yaşam Üzerindeki Etkisi. Harran Üniversitesi İlahiyat Fakültesi Dergisi. 26, 2011: 145
  • 2. Anandarajah G, Hıght E. Spirituality and medical practice: using the hope questions as a practical tool for spiritual assessment. Am Fam Physician. 2001; 63(1):81-89.
  • 3. Balboni MJ, Sullivan A, Enzinger AC, Epstein-Peterson ZD ve ark. Nurse and physician barriers to spiritual care provision at the end of life. Journal of Pain Symptom Manage. 2014; 48(3): 400–410.
  • 4. Balboni T, Balboni M, Paulk ME, Phelps A, Wright A., Peteet J, Block S, Lathan C, Vanderweele T & Prigerson H. Support of cancer patients’ spiritual needs and associations with medical care costs at the end of life. Cancer. 2011; 117, 5383– 5391.
  • 5. Balboni TA, Paulk ME, Balboni MJ, Phelps AC, Loggers ET, Wright AA, Block SD, Lewis EF, Peteet JR & Prigerson HG. Provision of spiritual care to patients with advanced cancer: associations with medical care and quality of life near death. Journal of Clinical Oncology. 2010; 28, 445–452.
  • 6. Balboni TA, Vanderwerker LC, Block SD, Paulk ME, Lathan CS, Peteet JR & Prigerson, HG. Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life. Journal of Clinical Oncology,2007; 25, 555–560.
  • 7. Berggren-Thomas P, Griggs MJ. Spirituality in aging: spiritual need or spiritual journey. Journal of Gerontologicial Nursing.1995;21(3),5-10.
  • 8. Bulut, M. 1. Din hizmetleri sempozyumu. Ankara:Diyanet İşleri Başkanlığı Yayınları; 2008
  • 9. Büssing A, Balzat HJ, Heusser P. Spiritual needs of patients with chronic pain diseases and cancer - validation of the spiritual needs questionnaire. Eur J Med Res. 2010;15(6):266–73.
  • 10. Callister LC, Bond AE, Matsumura G, Mangum S. (2004). Threading spirituality throughout nursing education. Holistic Nursing Prectice.2004; 18(3):160–166. 11. Carmines EG, Zeller RA. Reliability and validity assessment. 5th printing. Beverly Hills: Sage Publications Inc; 1982:9
  • 12. Çömlekçi N. Temel istatistik ilke ve teknikleri. Eskişehir: Bilim Teknik Yayınevi; 1989:12
  • 13. Daştan NB, Buzlu S. Meme kanseri hastalarında maneviyatın etkileri ve manevi bakım. Maltepe Üniversitesi Hemşirelik Bilim ve Sanatı Dergisi. 2010;(3):1: 73-78.
  • 14. Dedeli Ö, Yıldız E, Yüksel Ş. Assessing the spiritual needs and practices of oncology patients in Turkey. Holistic Nursing Practice. 2015;29(2):103–113.
  • 15. Engebretson J, Headley J. Cultural diversity and care. Dossey L. Keegan CE. Guzzetta, Editörler. Holistic nursing: A handbook for practice. Sudbury; 2005:305-34
  • 16. Ercan İ, Kan İ. Ölçeklerde güvenirlik ve geçerlik. Uludağ Üniversitesi Tıp Fakültesi Dergisi. 2004; 30 (3) 211-216.
  • 17. Flannelly KJ, Galek K, Bucchino J, Vane A. The relative prevalence of various spiritual needs. Scot J Healthcare Chaplaincy. 2006;9(2):25–30.
  • 18. Flannelly KJ, Galek K, Flannelly LT. A test of the factor structure of the patient spiritual needs assessment scale. Holist Nurs Pract. 2006;20(4):187–90.
  • 19. Fukuyama MA. Integrating spirituality in multicultural counseling: "A worldview" . Harper FD, McFadden J, Editörler. Culture And Counseling: New Approaches. Needham Heights; 2003,186-195.
  • 20. Galek K, Flannelly KJ, Jacobs MR, Barone JD. Spiritual needs: gender differences among professional spiritual care providers. J Pastoral Care Counsel. 2008; 62(1-2):29-35.
  • 21. Galek K, Flannelly KJ, Vane A, Galek RM. Assessing a patient’s spiritual needs. Holistic Nursing Practice. 2005;19(2):62-69.
  • 22. HealthCare Chaplaincy. Handbook of patients’ spiritual and cultural values for health care professionals [Internet]. 2013. [Erişim Tarihi: 06.12.2018]. Erişim adresi: http://www.healthcarechaplaincy.org/userimages/Cultural%20Sensitivity%20handbook%20from%20HealthCare%20Chaplaincy%20%20(3-12%202013).pdf
  • 23. Hitchcock JE, Schubert PE, Thomas SA. Community health nursing: Carin. New York;1999.
  • 24. Hodge DR. Spiritual assessment: a handbook for helping professionals, Botsford, CT: North American Association of Christians In Social Work; 2003.
  • 25. Koeing H. Spirituality and mental health. International Journal of Applied Psychoanalytic Studies. 2010;7(2),116-120.
  • 26. McSherry W, Ross L. Dilemmas of spiritual assessment: considerations for nursing practice. Journal of Advanced Nursing. 2002; 38(5),479-488. 27. Miner-Williams D. Putting a puzzle together: making spirituality meaningful for nursing using an evolving theoretical framework. Journal of Clinical Nursing. 2006; 15, 811–821.
  • 28. Moadel A, Morgan C, Fatone A. Seeking meaning and hope: self-reported spiritual and existential needs among an ethnically-diverse cancer patient population. Pschooncology. 1999; 8(5):378-385.
  • 29. Moberg, D.O. (2010). Spirituality Research: Measuring the Immeasurable?. Perspectives on Science and Chiristian Faith, 62 (2), 99-114.
  • 30. Monareng LV. Spiritual nursing care: A concept analysis. Curationis. 2012;35(1): 28-37
  • 31. Muncy JF. Compherensive spiritual asssesment. American Journal of Hospice&Palliative Care. 1996;13(5), 44-45
  • 32. Öz F. İnsan, spiritual gereksinimler ve hemşirelik. Klinik Bilimler & Doktor. 2004; 10(3):266-273.
  • 33. Özdamar K. Paket programlar ile istatistiksel veri analizi. Eskişehir: Kaan Kitabevi; 2004.
  • 34. Sharma RK, Astrow AB, Texeira K, Sulmasy DP. The spiritual needs assessment for patients (SNAP): development and validation of a comprehensive instrument to assess unmet spiritual needs. Journal of Pain Symptom Manage. 2012; 44:44-51.
  • 35. Tavşancıl E. Tutumların ölçülmesi ve spss ile veri analizi, Ankara: Nobel Yayıncılık; 2002.
  • 36. Taylor EJ. Prevalence and associated factors of spiritual needs among patients with cancer and family caregivers. Oncology Nursing Forum. 2006;33(4):729–35. 37. Taylor EJ. Spiritual Needs of Patients With Cancer and Family Caregivers. Cancer Nursing. 2003; 26, 4,
  • 38. Tezbaşaran A. Likert tipi ölçek hazırlama Kılavuzu. [Elektronik Sürüm]. [Internet]. 2008 [Erişim Tarihi: 26.12.2018]. Erişim adresi: http://www.academia.edu/1288035/Likert_Tipi_Ölçek_Hazırlama_Kılavuz
  • 39. Türk Dil Kurumu. [Internet]. 2006 [Erişim Tarihi: 16.03.2019]. Erişim adresi: http://www.tdk.gov.tr/index.php?option=com_gts&view=gts
  • 40. Ünsal A. Hemşireliğin Dört Temel Kavramı: İnsan, Çevre, Sağlık&Hastalık, Hemşirelik. Ahi Evran Üniversitesi Sağlık Bilimleri Dergisi. 2017, 1(1): 11-25.
  • 41. Vilalta A, Valls J, Porta J, Vinas J. Evaluation of spiritual needs of patients with advanced cancer in a palliative care unit. Journal of Palliative Medicine. 2014;17(5):592–600.
  • 42. Wright MC. The essence of spiritual care. a phenomenological enquiry. Palliative Medicine. 2002;16(2), 125-132.
  • 43. Yong J, Kim J, Han SS, Puchalsk CM. Development and validation of a scale assessing spiritual needs for korean patients with cancer. Journal of Palliative Care, 2008; 24(4):240–6.
There are 40 citations in total.

Details

Primary Language Turkish
Subjects Health Care Administration
Journal Section Review
Authors

Münevver Otuzoğlu 0000-0001-8281-5876

Publication Date March 31, 2020
Acceptance Date December 23, 2019
Published in Issue Year 2020 Volume: 10 Issue: 1

Cite

AMA Otuzoğlu M. Kanser Hastalarının Manevi Gereksinimlerini Değerlendirmeye İlişkin Ölçek Çalışmalarının İncelemesi. J Contemp Med. March 2020;10(1):138-145. doi:10.16899/jcm.591105