Behavioral, Social And Emotional Characterictics Of Typically Developing Siblings Of Children With Autism Spectrum Disorders
Year 2020,
, 1776 - 1788, 20.07.2020
Hatice Şengül Erdem
,
Yeşim Fazlıoğlu
Abstract
This research aimed to analyse behavioral, social and emotional characteristics of typically developing siblings of children with Autism Spectrum Disorders (ASD) and the relation between these characterictics, autism severity and maternal depression. It is designed as correlational and casual comparative research and participants are divided into two groups as research group and comparision group. Research group included 90 siblings of children with ASD, between the ages of 6-16, along with mother of each child. Comparision group is comprised of 90 typically developing siblings of typically developing children at same age interval as well as their mothers. Mothers are used as informants. The data were collected from mothers by using stardardized measurement tools and statistical analysis was conducted. Results indicated that siblings of children with ASD have more difficulty in behavioral, social and emotional areas and show more internalizing and externalizing behavioral problems than comparision group. Results revealed positive relation between autism severity and internalizing, externalizing behavior problems, total problem of siblings. Statistically significant relationship between autism severity and maternal depression level is not revealed but maternal depression is a powerfull predictor of all characterictics of siblings. Results from this study provide strong evidence about developmental risk and for the need of support for siblings as well as mothers. There is a need for systematic support and adaptation programs including all family members.
References
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https://doi.org/10.1023/A:1026048320785
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83. doi: 10.1080/01609510903437383
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https://doi.org/10.5172/jfs.16.2.155
- Beck, A.T. (1974). Assessment of depression: The depression inventory. Pharmacopsychiatry, 7, 151-169.
- Benderix, Y. ve Sivberg, B. (2007). Siblings’ experiences of having a brother or sister with autism and mental retardation: a case study of 14 siblings from five families.
Journal of Pediatric Nursing, 22(5), 410-418. DOI: 10.1016/j.pedn.2007.08.013
- Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4, 217–228.
doi:10.1016/j.rasd.2009.09.008
- Benson, P. R. ve Karlof, K. (2008). Child, parents, and family predictors of latter adjustment in siblings of children with autism. Research in Autism Spectrum Disorders, 2,
583-600. DOI: 10.1016/j.rasd.2007.12.002
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with autism spectrum disorders. Journal of Autism and Developmental Disorder, 42, 1393-1402. https://doi.org/10.1007/s10803-011-1368-9
- Diener, M. L., Anderson, L., Wright, C. A. ve Dunn, M. L. (2015). Sibling relationships of children with autism spectrum disorder in the context of everyday life and a
strength-based program. Journal of Family Study, 24, 1060–1072. DOI: 10.1007/s10826-014-9915-6
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Education and Science, 37(166), 318-328.
- Edwards, R., Hadfield, L., Lucey H. ve Mauthner, M. (2006). Sibling identity and relationships. Sisters and brothers. London: Routlerge.
- Erol, N. ve Şimşek, Z. (2010). Okul çağı çocuk ve ergenler için davranış değerlendirme ölçekleri el kitabı. Ankara: Metis.
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https://stjohnsuniversitylibraries.on.worldcat.org/oclc/696783814
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369–375. https://doi.org/10.1177/070674370004500406
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217. https://doi.org/10.1016/S0193-953X(18)30333-2
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- Hasting, R.P. (2003a). Behavioral adjustment of siblings of children with autism engaged in applied behavior analysis early ıntervention programs: the moderating role of social support. Journal of Autism and Developmental Disorders, 33(2), 141-149. DOI: 10.1023/a:1022983209004
- Hasting, R.P. (2003b). Brief report: behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 33(1), 99-104. DOI:
10.1023/a:1022290723442
- Hasting, R.P. (2007). Longitudinal relationships between sibling behavioral adjustment and behavior problems of children with developmental disabilities. Journal of
DevelopmentalDisorders, 37, 1485-1492. DOI: 10.1007/s10803-006-0230-y
- Hastings, R.P. ve Petalas, M.A. (2014). Self-reported behavior problems and sibling relationship quality by siblings of children with autism spectrum disorder. Child: Care,
Health and Development, 40(6), 833-839. DOI: 10.1111/cch.12131
- Hisli, N. (1989). Beck Depresyon Envanteri’nin üniversite öğrencileri için geçerliği, güvenirliği. Psikoloji Dergisi, 7(23), 3-13.
- Howlin P. (1988). Living with impairment: The effects on children of having an autistic sibling. Child: Care, Health and Development, 14, 395–408.
https://doi.org/10.1111/j.1365-2214.1988.tb00591.x
- Kaminsky, L. ve Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. Journal of Child Psychology and Psychiatry, 43 (2), 225-232.
https://doi.org/10.1111/1469-7610.00015
- Kaplan, L. M. (2013). Sibling relationships with an autistic sibling. Retrieved from http://sophia.stkate.edu/msw_papers/206.
- Kılınç, S. ve Torun, F. (2011). Türkiye'de klinikte kullanılan depresyon değerlendirme ölçekleri. Dirim Tıp Dergisi, 86(1), 39-47.
- Lefkowitz, E. G., Crawford, S. G. ve Dewey, D. (2007). Living with impairment: Behavioral, emotional and social adjustment of siblings of children with autism. International
Journal of Disability, Community&Rehabilitation, 6(1). http://www.ijdcr.ca/VOL06_01_CAN/articles/dewey.shtml
- Lovell, B. ve Wetherell, M. A. (2016). The psychophysiological impact of childhood autism spectrum disorder on siblings. Research in Developmental Disabilities, 49, 226-
234. https://doi.org/10.1016/j.ridd.2015.11.023
- Macks, R.J. ve Reeve, R. E. (2007). The adjustment of non-disabled siblings of children with autism. Journal of Autism and Developmental Disorder, 37, 1060-1067. DOI:
10.1007/s10803-006-0249-0
- Mascha, K. ve Boucher, J. (2006). Preliminary investigation of aqualitative method of examining siblings’ experiences of living with a child with ASD. British Journal of
Developmental Disabilities, 52, 19–28. DOI: 10.1179/096979506799103659
- McVicker, M. L. (2013). The sisters' experience of having a sibling with an autism spectrum disorder. (Doctoral dissertation) Retrieved from http://aura.antioch.edu/etds/49
- Meadan, H., Stoner, J. B., Angell, M. E. (2010). Review of literature related to the social, emotional and behavioral adjusment of siblings of individuals with autism spectrum
disorder. Journal of Developmental Disabilities, 22, 83-100. https://doi.org/10.1007/s10882-009-9171-7
- Meyer, K. A., Ingersoll, B. ve Hambrick, D.Z. (2011). Factors influencing adjustment in siblings of children with autism spectrum disorders. Research in Autism Spectrum
Disorders ,5, 1413–1420. DOI: 10.1016/j.rasd.2011.01.027
- Mohammadi, M. ve Zarafshan, H. (2014). Family function, parenting style and broader autismphenotype as predicting factors of psychologicaladjustment in typically
developing siblings of childrenwith autism spectrum disorders. Iranian J Psychiatry, 9(2), 55-63.
- Moyson, T. ve Roeyers, H. (2011). The quality of life of siblings of children with autism spectrum disorder. Exceptional Children, 78(1), 41-55.
https://doi.org/10.1177/001440291107800103
- O'Laughlin, K. C. (2009). The quality of the sibling relationship of children diagnosed with autism. PCOM Psychology Dissertations. Paper 152.
- Orsmond G. I. ve Seltzer M. M. (2007). Siblings of ındividuals with autism spectrum disorders across the life course. Mental Retardation and Developmental Disabilites, 13,
313-320. DOI: 10.1002/mrdd.20171
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brother with autism spectrum disorder. International Journal of Disability, Development and Education, 56(4), 381-399. https://doi.org/10.1080/10349120903306715
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Spectrum Disorders: Environmental stressors and the Broad Autism Phenotype. Research in Autism Spectrum Disorders, 6, 546–555.
https://doi.org/10.1016/j.rasd.2011.07.015
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Otizm Spektrum Bozukluğu Olan Çocukların Tipik Gelişen Kardeşlerinin Davranışsal, Sosyal Ve Duygusal Özellikleri
Year 2020,
, 1776 - 1788, 20.07.2020
Hatice Şengül Erdem
,
Yeşim Fazlıoğlu
Abstract
Bu çalışmada Otizm Spektrum Bozukluğu (OSB) olan çocukların tipik gelişen kardeşlerinin davranışsal, sosyal ve duygusal özellikleri ile bu özelliklerin otizm şiddeti ve annelerin depresyon düzeyleri ile ilişkisi incelenmiştir. Araştırma, nicel araştırmalardan korelasyonel araştırma ile nedensel karşılaştırma araştırması olarak desenlenmiş ve çalışma grubu araştırma ve karşılaştırma grubu olarak ikiye ayrılmıştır. Araştırma grubunda OSB’li kardeşi olan 90 çocuk (6-16 yaş) ile anneleri, karşılaştırma grubunda ise hem kendisi hem de kardeşleri tipik gelişen 90 çocuk (6-16 yaş) ile anneleri yer almıştır. Veriler annelerden ölçekler aracılığı ile toplanmış ve istatistiksel analizleri yapılmıştır. Araştırma sonuçlarına göre OSB’li çocukların kardeşleri sosyal, davranışsal ve duygusal alanlarında daha yoğun uyum zorlukları yaşamakta ve karşılaştırma grubundaki çocuklara göre daha çok dışa ve içe yönelimli davranış sorunları sergilemektedirler. OSB’li kardeşlerin otizm şiddeti arttıkça kardeşlerdeki içe yönelimli ve dışa yönelimli davranış sorunları ve toplam problem düzeyleri artmaktadır. Araştırma grubun-daki annelerin depresyon düzeylerinin OSB şiddeti ile anlamlı bir ilişkisi çıkmazken tipik gelişen kardeşlerin tüm özellikleri ile arasında pozitif yönlü bir ilişki ortaya çıkmıştır. Tüm bu sonuçlar OSB’li çocukların tipik gelişen kardeşlerinin duygusal, sosyal ve davranışsal özelliklerin OSB’den olumsuz yönde etkilendiğini, OSB şiddeti ile annelerin ruhsal özelliklerinin de bu özelliklerde anlamlı bir yordayıcı olduğunu göstermektedir. Araştırma sonucuna göre OSB’li çocukların tipik gelişen kardeşlerin gelişim açısından risk altında olduğu ve kardeşlerle birlikte annelerin de desteklenmesi gerektiği görülmüştür. Tüm aile bireylerini kapsayan sistemli destek ve uyum programlarına ihtiyaç olduğu söylenebilir.
References
- Akçakın, M. (1985). Çocukların davranışlarını değerlendirme ölçeğinin tanıtımı ve güvenirlik çalışması. Psikoloji Dergisi, 5(18), 3-6.
- APA (2013). Diagnostic ans statistical manual of mental disorders-DSM-5. Washington: American Psychiatric Publishing.
- Angell, M.E., Meadan, H. ve Stoner, J.B. (2012). Experiences of siblings of individuals with autism spectru disorders. Autism Resarch and Treatment. Article ID 949586. https://doi.org/10.1155/2012/949586
- Bagenholm, A., Gillberg, C. (1991). Psychosocial effects on siblings of children with autism and mental retardation: A population based study. Journal of Mental Deficiency Research,35, 291–307. https://doi.org/10.1111/j.1365-2788.1991.tb00403.x
- Bailey, A., Palferman, S., Heavey, L., LeCouteur, A. (1998). Autism: The phenotype in relatives. Journal of Autism and Developmental Disorders, 28, 369–392.
https://doi.org/10.1023/A:1026048320785
- Banach, M., Iudice, J., Conway, L., Couse, L. (2010). Family support and empowerment: post autism diagnosis support group for parents. Social Work with Groups, 33, 69-
83. doi: 10.1080/01609510903437383
- Barak-Levy, Y., Goldstein, E. ve Weınstock, M. (2010). Adjustment characteristics of healthy siblings of children with autism. Journal of Family Studies, 16(2), 155–164.
https://doi.org/10.5172/jfs.16.2.155
- Beck, A.T. (1974). Assessment of depression: The depression inventory. Pharmacopsychiatry, 7, 151-169.
- Benderix, Y. ve Sivberg, B. (2007). Siblings’ experiences of having a brother or sister with autism and mental retardation: a case study of 14 siblings from five families.
Journal of Pediatric Nursing, 22(5), 410-418. DOI: 10.1016/j.pedn.2007.08.013
- Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4, 217–228.
doi:10.1016/j.rasd.2009.09.008
- Benson, P. R. ve Karlof, K. (2008). Child, parents, and family predictors of latter adjustment in siblings of children with autism. Research in Autism Spectrum Disorders, 2,
583-600. DOI: 10.1016/j.rasd.2007.12.002
- Cicirelli, V. G. (1995). Sibling relationship across the life span. New York: Springer Science+Business Medie
- Dempsey, A. G., Llorens, A., Brewton, C., Mulchandani, S. ve Goin-Kochel, R. P. (2012). Emotional and behavioral adjustment in typically developing siblings of children
with autism spectrum disorders. Journal of Autism and Developmental Disorder, 42, 1393-1402. https://doi.org/10.1007/s10803-011-1368-9
- Diener, M. L., Anderson, L., Wright, C. A. ve Dunn, M. L. (2015). Sibling relationships of children with autism spectrum disorder in the context of everyday life and a
strength-based program. Journal of Family Study, 24, 1060–1072. DOI: 10.1007/s10826-014-9915-6
- Diken, İ.H., Ardıç, A. ve Diken, Ö. (2011). Gilliam Otistik Bozukluk Derecelendirme Ölçeği – 2 Türkçe Versiyonu. Ankara: Maya Akademi.
- Diken, İ.H., Ardıç, A., Diken, Ö. ve Gilliam, J. E. (2012). Exploring thevalidity and reliability of turkish version of Gilliam Autism Rating Scale-2: turkish standardization study.
Education and Science, 37(166), 318-328.
- Edwards, R., Hadfield, L., Lucey H. ve Mauthner, M. (2006). Sibling identity and relationships. Sisters and brothers. London: Routlerge.
- Erol, N. ve Şimşek, Z. (2010). Okul çağı çocuk ve ergenler için davranış değerlendirme ölçekleri el kitabı. Ankara: Metis.
- Farber, S. (2010). The effects on siblings of children with autism (PsyD dissertation, St. John's University). Retrieved from
https://stjohnsuniversitylibraries.on.worldcat.org/oclc/696783814
- Ferraioli, S. J. ve Harris, S. L. (2010). The impact of autism on siblings. Social Work in Mental Health, 8, 41-53. https://doi.org/10.1080/15332980902932409
- Fisman, S., Wolf, L., Ellison, D., Gillis, B. ve Freeman, T. (2000). A longitudinal study of siblings of children with chronic disabilities. Canadian Journal of Psychiatry, 45,
369–375. https://doi.org/10.1177/070674370004500406
- Fisman, S. ve Wolf, L. (1991). The handicapped child: Psychological effects of parental, marital, and sibling relationships. Psychiatric Clinics of North America, 14(1), 199-
217. https://doi.org/10.1016/S0193-953X(18)30333-2
- Gold, N. (1993). Depression and social adjustment in siblings of boys with autism. Journal of Autism and Developmental Disorders, 23, 147–163. doi: 10.1007/BF01066424
- Hasting, R.P. (2003a). Behavioral adjustment of siblings of children with autism engaged in applied behavior analysis early ıntervention programs: the moderating role of social support. Journal of Autism and Developmental Disorders, 33(2), 141-149. DOI: 10.1023/a:1022983209004
- Hasting, R.P. (2003b). Brief report: behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 33(1), 99-104. DOI:
10.1023/a:1022290723442
- Hasting, R.P. (2007). Longitudinal relationships between sibling behavioral adjustment and behavior problems of children with developmental disabilities. Journal of
DevelopmentalDisorders, 37, 1485-1492. DOI: 10.1007/s10803-006-0230-y
- Hastings, R.P. ve Petalas, M.A. (2014). Self-reported behavior problems and sibling relationship quality by siblings of children with autism spectrum disorder. Child: Care,
Health and Development, 40(6), 833-839. DOI: 10.1111/cch.12131
- Hisli, N. (1989). Beck Depresyon Envanteri’nin üniversite öğrencileri için geçerliği, güvenirliği. Psikoloji Dergisi, 7(23), 3-13.
- Howlin P. (1988). Living with impairment: The effects on children of having an autistic sibling. Child: Care, Health and Development, 14, 395–408.
https://doi.org/10.1111/j.1365-2214.1988.tb00591.x
- Kaminsky, L. ve Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. Journal of Child Psychology and Psychiatry, 43 (2), 225-232.
https://doi.org/10.1111/1469-7610.00015
- Kaplan, L. M. (2013). Sibling relationships with an autistic sibling. Retrieved from http://sophia.stkate.edu/msw_papers/206.
- Kılınç, S. ve Torun, F. (2011). Türkiye'de klinikte kullanılan depresyon değerlendirme ölçekleri. Dirim Tıp Dergisi, 86(1), 39-47.
- Lefkowitz, E. G., Crawford, S. G. ve Dewey, D. (2007). Living with impairment: Behavioral, emotional and social adjustment of siblings of children with autism. International
Journal of Disability, Community&Rehabilitation, 6(1). http://www.ijdcr.ca/VOL06_01_CAN/articles/dewey.shtml
- Lovell, B. ve Wetherell, M. A. (2016). The psychophysiological impact of childhood autism spectrum disorder on siblings. Research in Developmental Disabilities, 49, 226-
234. https://doi.org/10.1016/j.ridd.2015.11.023
- Macks, R.J. ve Reeve, R. E. (2007). The adjustment of non-disabled siblings of children with autism. Journal of Autism and Developmental Disorder, 37, 1060-1067. DOI:
10.1007/s10803-006-0249-0
- Mascha, K. ve Boucher, J. (2006). Preliminary investigation of aqualitative method of examining siblings’ experiences of living with a child with ASD. British Journal of
Developmental Disabilities, 52, 19–28. DOI: 10.1179/096979506799103659
- McVicker, M. L. (2013). The sisters' experience of having a sibling with an autism spectrum disorder. (Doctoral dissertation) Retrieved from http://aura.antioch.edu/etds/49
- Meadan, H., Stoner, J. B., Angell, M. E. (2010). Review of literature related to the social, emotional and behavioral adjusment of siblings of individuals with autism spectrum
disorder. Journal of Developmental Disabilities, 22, 83-100. https://doi.org/10.1007/s10882-009-9171-7
- Meyer, K. A., Ingersoll, B. ve Hambrick, D.Z. (2011). Factors influencing adjustment in siblings of children with autism spectrum disorders. Research in Autism Spectrum
Disorders ,5, 1413–1420. DOI: 10.1016/j.rasd.2011.01.027
- Mohammadi, M. ve Zarafshan, H. (2014). Family function, parenting style and broader autismphenotype as predicting factors of psychologicaladjustment in typically
developing siblings of childrenwith autism spectrum disorders. Iranian J Psychiatry, 9(2), 55-63.
- Moyson, T. ve Roeyers, H. (2011). The quality of life of siblings of children with autism spectrum disorder. Exceptional Children, 78(1), 41-55.
https://doi.org/10.1177/001440291107800103
- O'Laughlin, K. C. (2009). The quality of the sibling relationship of children diagnosed with autism. PCOM Psychology Dissertations. Paper 152.
- Orsmond G. I. ve Seltzer M. M. (2007). Siblings of ındividuals with autism spectrum disorders across the life course. Mental Retardation and Developmental Disabilites, 13,
313-320. DOI: 10.1002/mrdd.20171
- Öner N. (1997). Türkiye'de kullanılan psikolojik testler bir başvuru kaynağı. İstanbul:Boğaziçi Üniversitesi Yayınları.
- Petalas, M. A., Hastings, R. P., Nash, S., Downey, A. ve Reilly, D. (2009). ‘‘I like that he always shows who he is’’: The perceptions and experiences of siblings with a
brother with autism spectrum disorder. International Journal of Disability, Development and Education, 56(4), 381-399. https://doi.org/10.1080/10349120903306715
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