Orak hücre hastalarında görülen ağız, diş ve çene bölgesi ile ilgili komplikasyonlar hakkında ebeveyn bilgi düzeyinin değerlendirilmesi

Year 2023, Volume: 16 Issue: 1, 83 - 92, 30.04.2023

Feryal Karahan , Melis Yılmaz

https://doi.org/10.26559/mersinsbd.1188782

Abstract

Amaç: Orak hücre hastalığı (OHH), hastaların yaşam kalitelerini hayatlarının erken dönemlerinden itibaren etkileyen multisistemik bir hastalıktır. Çalışmamızın amacı; OHH hastalarımızın primer bakım veren ebeveyninin (anne) OHH’a bağlı ağız, diş ve çene bölgesinde gelişen komplikasyonlar ile ilgili bilgi düzeyini değerlendirmektir. Yöntem: Çalışmaya çocuk ve genç erişkinlerden oluşan 50 OHH tanılı hasta ile primer bakım veren ebeveynleri dahil edildi. Ebeveynlere anket uygulanarak OHH’da ağız, diş sağlığı konusundaki bilgi düzeyleri ve çocuklarının ağız, diş, çene bölgesinde deneyimlediği klinik belirtiler sorgulandı. Bulgular: Ebeveynin bilgi düzeyi değerlendirildiğinde; 28’i (%56) OHH’nın ağız, diş, çene sağlığına etkisi olduğunu belirtti. Günde bir kez diş fırçalayan hastalarda hiç fırçalamayanlara göre damar tıkayıcı kriz (DTK) sıklığının daha nadir (%5’e karşı %58), günde ≥2 diş fırçalayanların ise hiç fırçalamayanlara göre transfüzyon sıklığının daha az (%6’ya karşı %32) olduğu saptandı. Sonuç: Çalışmamız; ebeveynlerin %44’ünün OHH’nın ağız, diş ve çene bölgesindeki komplikasyonları bilmediğini gösterdi. Ayrıca diş fırçalamanın DTK ve kan transfüzyon sıklığına etkisi olabileceğini saptadık. Ağız, diş hijyeninin önemi ile OHH’nın bu bölgedeki komplikasyonları konusunda hastaların ve ebeveynlerin farkındalığı artırılmalıdır.

Keywords

Orak hücre hastalığı, ağız- diş sağlığı, ebevyn bilgi düzeyi

Supporting Institution

yok

Project Number

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Thanks

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Evaluation of parental knowledge level about complications related to mouth, teeth and jaw area in sickle cell patients

Abstract

Aim: Sickle cell disease (SCD) is a multisystemic disease that affects the quality of life of patients from the early stages of their lives. The aim of our study was to evaluate the knowledge level of the primary caregiver parent (mother) of our SCD patients about the complications that develop in the mouth, teeth and jaw region. Method: Fifty children and young adults diagnosed with SCD and their primary caregiver parents were included in the study. A questionnaire was applied to the parents, and their level of knowledge on oral and dental health in SCD and the clinical symptoms their children experienced in the mouth, teeth and jaw area were questioned. Results: 28 (56%) of mothers stated that SCD had an effect on oral, dental and jaw health. It was determined that the frequency of vaso-occlusive crisis (VOC) was lower in those who brushed their teeth once a day compared to those who did not brush at all (5% vs. 58%), and the frequency of transfusion was lower in those who brushed ≥2 teeth than those who did not brush at all (6% vs. 32%). Conclusion: Our study; showed that 44% of parents were unaware of the complications of SCD in the mouth, teeth, and jaw area. We also determined that tooth brushing may have an effect on the frequency of VOC and blood transfusion. The awareness of patients and parents about the importance of oral and dental hygiene and the complications of SCD in this region should be increased.

Keywords

Sickle cell disease, oral-dental and jaw health, parent knowledge level

Project Number

yok

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