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Effects of the COVID-19 Pandemic on Participation in Physical Activity of Individuals with Autism Spectrum Disorder: The True-Life Experiences of Parents

Year 2023, Volume: 24 Issue: 2, 235 - 251, 01.06.2023
https://doi.org/10.21565/ozelegitimdergisi.989516

Abstract

Introduction: The COVID-19 pandemic rapidly spread throughout the whole world and negatively affected individuals’ participation in physical activity. In this context, the purpose of the research is to investigate the effects of the COVID-19 pandemic on the participation in physical activity of individuals with Autism Spectrum Disorder (ASD) from the perspective of their parents.
Method: Ten parents (6 mothers and 4 fathers) with children diagnosed with ASD constituted the sample group for the research designed by the phenomenological qualitative research method. A semi-structured interview form and a personal information form were used as data collection tools. The data analysis was performed using the content analysis method.
Findings: In the direction of the findings obtained from the research, four inclusive themes were determined. These are a) the effects of the pandemic on life; b) the difficulties encountered during the period of the pandemic; c) the necessity of physical activity; and d) the changing events. Under these themes, there are 12 sub-themes in total.
Discussion: The parents expressed that the practices performed for the sake of decreasing the propagation rate of the virus had negatively affected especially the education, parent relationships, and active lifestyles of children with ASD. According to the parents, the physical activity habits of children with ASD significantly changed, and usually, home-based events were performed during the restrictions. The parents specified that they had understood how extremely important the participation in physical activity of children with ASD was during the period of the pandemic.

References

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  • Garcia, J. M., Lawrence, S., Brazendale, K., Leahy, N., & Fukuda, D. (2020). Brief report: The impact of the COVID-19 pandemic on health behaviors in adolescents with Autism Spectrum Disorder. Disability and Health Journal, 14(2), Article 101021. https://doi.org/10.1016/j.dhjo.2020.101021
  • Gehricke, J. G., Chan, J., Farmer, J. G., Fenning, R. M., Steinberg-Epstein, R., Misra, M., Parker, R., & Neumeyer, A. M. (2020). Physical activity rates in children and adolescents with autism spectrum disorder compared to the general population. Research in Autism Spectrum Disorders, 70, Article 101490. https://doi.org/10.1016/j.rasd.2019.101490
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  • Guller, B., Yaylaci, F., & Eyuboglu, D. (2021). Those in the shadow of the pandemic: Impacts of the COVID-19 outbreak on the mental health of children with neurodevelopmental disorders and their parents. International Journal of Developmental Disabilities, 1-13. https://doi.org/10.1080/20473869.2021.1930827
  • Gürkan R. K., & Koçak F. (2020). Perceived constraints and facilitators of participation in physical activity by individuals with autism spectrum disorders. Physical Activity Review, 8(1), 51-63. https://doi.org/10.16926/par.2020.08.07
  • Gürkan, R.K., Koçak, F., & Başar A. (2021) Engelli sporcularda psikolojik iyi oluş ve serbest zaman doyumu arasındaki ilişkinin incelenmesi. International Journal of Sport, Exercise & Training Sciences - IJSETS, 7(2), 73–83. https://doi.org/10.18826/useeabd.890800
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Covid-19 Pandemisinin Otizm Spektrum Bozukluğu Olan Bireylerin Fiziksel Aktiviteye Katılımı Üzerindeki Etkileri: Yaşanmış Ebeveyn Deneyimleri

Year 2023, Volume: 24 Issue: 2, 235 - 251, 01.06.2023
https://doi.org/10.21565/ozelegitimdergisi.989516

Abstract

Giriş: Covid-19 pandemisi Dünya genelinde hızla yayılmış ve bireylerin fiziksel aktiviteye katılımını olumsuz yönde etkilemiştir. Bu kapsamda araştırmanın amacı, Covid-19 pandemisinin otizm spektrum bozukluğu (OSB) olan bireylerin fiziksel aktiviteye katılımı üzerindeki etkilerini ebeveynlerin perspektifinden incelemektir.
Yöntem: Fenomenolojik nitel araştırma yöntemi ile dizayn edilen araştırmanın örneklem grubunu OSB tanısı alan çocuğa sahip 10 ebeveyn (6 anne-4 baba) oluşturmaktadır. Veri toplama aracı olarak yarı yapılandırılmış görüşme formu ve kişisel bilgi formu kullanılmıştır. Verilerin analizi, içerik analizi yöntemi kullanılarak gerçekleştirilmiştir.
Bulgular: Araştırmadan elde edilen bulgular doğrultusunda 4 kapsayıcı tema bulunmuştur. Bunlar; a) pandeminin hayata etkileri, b) pandemi sürecinde karşılaşılan zorluklar, c) fiziksel aktivite gerekliliği ve d) değişen etkinlikler şeklindedir. Bu temaların içerisinde ise toplamda 12 adet alt tema yer almaktadır.
Tartışma: Ebeveynler, virüsün yayılım hızını azaltmak adına yapılan uygulamaların OSB olan çocuklarının özellikle eğitim, ebeveyn ilişkileri ve aktif yaşam tarzlarını olumsuz yönde etkilediğini ifade ettiler. Ebeveynlere göre kısıtlamalar sırasında OSB olan çocukların fiziksel aktivite alışkanlıkları önemli ölçüde değişti ve çoğunlukla ev temelli etkinlikler gerçekleştirildi. Ebeveynler, pandemi sürecinde OSB olan çocukları için fiziksel aktiviteye katılımın son derece önemli olduğunu anladıklarını belirttiler.

References

  • Amatriain-Fernández, S., Murillo-Rodríguez, E. S., Gronwald, T., Machado, S., & Budde, H. (2020). Benefits of physical activity and physical exercise in the time of pandemic. Psychological Trauma: Theory, Research, Practice, and Policy, 12(S1), S264. https://doi.org/10.1037/tra0000643
  • American Psychiatric Association (2013). American Psychiatric Association: Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, Arlington, VA
  • Aniszewski, E., Almeida, H., & Alvernaz, A. (2020). Benefits of physical activity for the development of autistic children. International Physical Medicine & Rehabilitation Journal, 5(2), 79-80. https://doi.org/10.15406/ipmrj.2020.05.00233
  • Asbury, K., Fox, L., Deniz, E., Code, A., & Toseeb, U. (2020). How is Covid-19 affecting the mental health of children with special educational needs and disabilities and their families? Journal of Autism and Developmental Disorders, 51(5), 1772–1780. https://doi.org/10.1007/s10803-020-04577-2
  • Bogoch, I. I., Watts, A., Thomas-Bachli, A., Huber, C., Kraemer, M. U., & Khan, K. (2020). Potential for global spread of a novel coronavirus from China. Journal of Travel Medicine, 27(2), 1-3. https://doi.org/10.1093/jtm/taaa011
  • Bradley, E. H., Curry, L. A., & Devers, K. J. (2007). Qualitative data analysis for health services research: Developing taxonomy, themes, and theory. Health Services Research, 42(4), 1758-1772. https://doi.org/10.1111/j.1475-6773.2006.00684.x
  • Caputo, E. L., & Reichert, F. F. (2020). Studies of physical activity and covid-19 during the pandemic: A scoping review. Journal of Physical Activity and Health, 1, 1-10. https://doi.org/10.1123/jpah.2020-0406
  • Cascella, M., Rajnik, M., Cuomo, A., Dulebohn, S. C., & Di Napoli, R. (2020). Features, evaluation and treatment coronavirus (COVID-19). https://www.statpearls.com/ArticleLibrary/viewarticle/52171
  • Chen, P., Mao, L., Nassis, G. P., Harmer, P., Ainsworth, B. E., & Li, F. (2020). Coronavirus disease (COVID-19): The need to maintain regular physical activity while taking precautions. Journal of Sport and Health Science, 9(2), 103-04. https://doi.org/10.1016/j.jshs.2020.02.001
  • Choi, M. S., Chon, I., Lee, K., Kang, K., Kim, J., & Bae, E. (2021). Autism spectrum disorder behavioral implications of the covid-19 process, and individuals’ awareness and reactions to pandemic conditions based on California, USA. Engineering International, 9(1), 29-40. https://doi.org/10.18034/ei.v9i1.527
  • Chouchou, F., Augustini, M., Caderby, T., Caron, N., Turpin, N. A., & Dalleau, G. (2020). The importance of sleep and physical activity on well-being during COVID-19 lockdown: Reunion island as a case study. Sleep Medicine, 77, 295-296. https://doi.org/10.1016/j.sleep.2020.09.014
  • Creswell, J. W., Hanson, W. E., ClarkPlano, V. L., & Morales, A. (2007). Qualitative research designs: Selection and implementation. The Counseling Psychologist, 35(2), 236-264. https://doi.org/10.1177/0011000006287390
  • Daulay, N. (2021). Home education for children with autism spectrum disorder during the COVID-19 pandemic: Indonesian mothers experience. Research in Developmental Disabilities, 114, Article 103954. https://doi.org/10.1016/j.ridd.2021.103954
  • Degli Espinosa, F., Metko, A., Raimondi, M., Impenna, M., & Scognamiglio, E. (2020). A model of support for families of children with autism living in the COVID-19 lockdown: Lessons from Italy. Behavior Analysis in Practice, 13, 550-558. https://doi.org/10.1007/s40617-020-00438-7
  • Di Renzo, M., Di Castelbianco, F. B., Vanadia, E., Petrillo, M., D’Errico, S., Racinaro, L., & Rea, M. (2020). Parent-reported behavioural changes in children with autism spectrum disorder during the COVID-19 Lockdown in Italy. Continuity in Education, 1(1), 117–125. https://doi.org/10.5334/cie.20
  • El-Zoghby, S. M., Soltan, E. M., & Salama, H. M. (2020). Impact of the COVID-19 pandemic on mental health and social support among adult Egyptians. Journal of Community Health, 45, 689-695. https://doi.org/10.1007/s10900-020-00853-5
  • Garcia, J. M., Lawrence, S., Brazendale, K., Leahy, N., & Fukuda, D. (2020). Brief report: The impact of the COVID-19 pandemic on health behaviors in adolescents with Autism Spectrum Disorder. Disability and Health Journal, 14(2), Article 101021. https://doi.org/10.1016/j.dhjo.2020.101021
  • Gehricke, J. G., Chan, J., Farmer, J. G., Fenning, R. M., Steinberg-Epstein, R., Misra, M., Parker, R., & Neumeyer, A. M. (2020). Physical activity rates in children and adolescents with autism spectrum disorder compared to the general population. Research in Autism Spectrum Disorders, 70, Article 101490. https://doi.org/10.1016/j.rasd.2019.101490
  • Guba, E. G., Lincoln, Y. S. (1982). Epistemological and methodological bases of naturalistic inquiry. Educational Communication and Technology Journal, 30(4), 233–252. https://doi.org/10.1007/978-94-009-6669-7_18
  • Guller, B., Yaylaci, F., & Eyuboglu, D. (2021). Those in the shadow of the pandemic: Impacts of the COVID-19 outbreak on the mental health of children with neurodevelopmental disorders and their parents. International Journal of Developmental Disabilities, 1-13. https://doi.org/10.1080/20473869.2021.1930827
  • Gürkan R. K., & Koçak F. (2020). Perceived constraints and facilitators of participation in physical activity by individuals with autism spectrum disorders. Physical Activity Review, 8(1), 51-63. https://doi.org/10.16926/par.2020.08.07
  • Gürkan, R.K., Koçak, F., & Başar A. (2021) Engelli sporcularda psikolojik iyi oluş ve serbest zaman doyumu arasındaki ilişkinin incelenmesi. International Journal of Sport, Exercise & Training Sciences - IJSETS, 7(2), 73–83. https://doi.org/10.18826/useeabd.890800
  • Karahan, S., Yıldırım Parlak, Ş., Demiröz, K., Kaya, M. ve Kayhan, N. (2021). Annelerin koronavirüs (COVID-19) sürecinde özel gereksinimli çocuklarının problem davranışları ile baş etme deneyimleri. Journal of Qualitative Research in Education, 25, 79-105. https://www.enadonline.com/public/assets/catalogs/0677174001612335751.pdf
  • Kaushal, N., Keith, N., Aguiñaga, S., & Hagger, M. S. (2020). Social cognition and socioecological predictors of home-based physical activity intentions, planning, and habits during the COVID-19 Pandemic. Behavioral Sciences, 10(9), 1-16. https://doi.org/10.3390/bs10090133
  • Kim, M. A., Yi, J., Sung, J., Hwang, S., Howey, W., & Jung, S. M. (2021). Changes in life experiences of adults with intellectual disabilities in the COVID-19 pandemics in South Korea. Disability and Health Journal, 2021, Article 101120. https://doi.org/10.1016/j.dhjo.2021.101120
  • Lake, J. K., Jachyra, P., Volpe, T., Lunsky, Y., Magnacca, C., Marcinkiewicz, A., & Hamdani, Y. (2021). The wellbeing and mental health care experiences of adults with intellectual and developmental disabilities during COVID-19. Journal of Mental Health Research in Intellectual Disabilities, 14(3), 285-300. https://doi.org/10.1080/19315864.2021.1892890
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Details

Primary Language English
Journal Section Articles
Authors

Halil Sarol 0000-0002-1678-3244

Kübra Durmuş This is me 0000-0002-1996-0410

Rıfat Kerem Gürkan 0000-0003-2802-9350

Publication Date June 1, 2023
Published in Issue Year 2023 Volume: 24 Issue: 2

Cite

APA Sarol, H., Durmuş, K., & Gürkan, R. K. (2023). Effects of the COVID-19 Pandemic on Participation in Physical Activity of Individuals with Autism Spectrum Disorder: The True-Life Experiences of Parents. Ankara Üniversitesi Eğitim Bilimleri Fakültesi Özel Eğitim Dergisi, 24(2), 235-251. https://doi.org/10.21565/ozelegitimdergisi.989516

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