IDENTIFYING THE PHYSIOTHERAPY REQUIREMENTS OF PATIENTS IN PALLIATIVE CARE

Year 2024, Volume: 35 Issue: 1, 83 - 89, 20.04.2024

Işılay Uğur , Ayşegül Atlı , Zeynep Güven , Vesile Yıldız Kabak , Ulaş Özcan , Songul Atasavun Uysal , Doğan Akdoğan , Kadriye Kahveci , Tülin Düger

https://doi.org/10.21653/tjpr.1159528

Abstract

Purpose: Palliative care has an important role in the late stages of diseases. Patients deal with many symptoms. Physiotherapy approaches are an essential part of palliative care in symptom control. This study was planned to investigate the level of independence of the patients, their performance status, symptoms, rehabilitation needs, and caregivers’ expectations.
Methods: The study was designed as cross-sectional and descriptive. Ninety individuals aged between 18 and 65 years were included. Care needs during palliative care were assessed with the Palliative Performance Scale. Independence level was assessed by the Barthel Index. The severity of the symptoms that the patients frequently experienced was investigated. Caregivers reported their primary expectations from physiotherapy.
Results: The most common diagnosis was found to be cerebrovascular accidents. The mean age of the patients was 64±20 years. The mean age of the caregivers was 49±13 years. The mean the Palliative Performance Scale score was 31±17. Most of the patients were totally dependent according to the Barthel Index. Most of the patients faced symptoms, such as reduced muscle strength (94.44%), atrophy (93.33%) and swallowing problems (82.22%). Improved physical functions was the most reported expectation among caregivers.
Conclusion: Over 90% of the patients were totally dependent and they had to deal with many symptoms. This result highlights the importance of physiotherapy. Caregivers expected the patient to be able to meet their own needs independently. This is very important for the caregiver, and the patient and caregiver should be in cooperation with the physiotherapist.

Keywords

caregivers, expectations, physiotherapists, Palliative care

PALYATİF BAKIMDA HASTALARIN FİZYOTERAPİ GEREKSİNİMLERİNİN BELİRLENMESİ

Abstract

Amaç: Palyatif bakımın hastalıkların geç evrelerinde önemli bir rolü vardır. Hastalar birçok semptomla baş etmektedir. Fizyoterapi yaklaşımları semptom kontrolünde palyatif bakımın önemli bir parçasıdır. Bu çalışma, hastaların bağımsızlık düzeylerini, performans durumlarını, semptomlarını, rehabilitasyon ihtiyaçlarını ve bakım verenlerin beklentilerini araştırmak amacıyla planlanmıştır.
Yöntem: Çalışma kesitsel ve tanımlayıcı olarak tasarlanmıştır. 18-65 yaş grubu 90 birey dahil edildi. Palyatif bakımdaki hastaların bakım ihtiyaçları Palyatif Performans Ölçeği ile değerlendirildi. Bağımsızlık düzeyi Barthel Endeksi ile değerlendirildi. Hastaların sıklıkla yaşadığı semptomların şiddeti araştırıldı. Bakım verenler, fizyoterapiden birincil beklentilerini bildirdiler.
Sonuçlar: En çok raporlanan tanı serebrovasküler olay oldu. Hastaların yaş ortalaması 64±20 idi. Bakım verenlerin yaş ortalaması 49±13 idi. Ortalama Palyatif Performans Ölçeği skoru 31±17 idi. Hastaların çoğu Barthel İndeksine göre tamamen bağımlıydı. Hastaların çoğu azalmış kas gücü (% 94,44), atrofi (% 93,33) ve yutma problemleri (% 82,22) gibi semptomlarla karşı karşıya kaldığını belirtti. Bakım verenlerin beklentisi, hastanın fiziksel fonksiyonlarının iyileşmesi yönündeydi.
Tartışma: Hastaların %90'ından fazlası tamamen bağımlıydı ve semptomlarla uğraşmak zorunda kaldıklarını belirttiler. Bu sonuç fizyoterapinin önemini vurgulamaktadır. Bakım verenler hastanın ihtiyaçlarını bağımsız olarak karşılamasını istediğini belirttiler. Bu durum bakım veren için oldukça önemlidir ve hasta ve bakımverenler fizyoterapistlerle işbirliği içinde olmalıdır.

Keywords

bakımverenler, beklentiler, fizyoterapistler, Palyatif bakım

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