INVESTIGATING OF ENROLLMENT OF PARENTS AT EARLY INTERVENTİON SERVICE AND THEIR CONTINUITY
Year 2020,
Volume: 3 Issue: 2, 103 - 113, 31.12.2020
Turgay Altunalan
,
Zubeyir Sari
,
Meltem Çelik
Selin Sağlam
Gülsena Utku
Abstract
Early childhood intervention services are recognized as the fundamental right of children and their parents under “The Declaration of the Rights of the Child”. Although the importance of early intervention services is known, there are some problems in the attendance of parents. The aim of the study is to examine the participation of parents who are directed/invited to early intervention support. The parental attendance of two different early intervention projects in 2018-2019 was examined. Sixty-eight (69.3%) parents of 98 of the low-risk group and 53 (96.3%) parents of 55 of the high-risk group accepted to participate in the study. Parents who rejected to participate EI often cited the problems of transportation and permission to work. Parents who dropped out cited problems of infections and permission to work. The present study examined the barriers to access early intervention services. It is important that most of the detected factors can be changeable.
Supporting Institution
The authors would like to thank Cerebral Palsy Turkey for funding the project
Project Number
TSÇV.200.017.723
Thanks
The authors thank Cerebral Palsy Turkey for funding the project. The authors thank Enis Vardaryildizi for language editing.
References
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2. Carman, K. B., Kayhan, M., Bilge, U., Dinleyici, M., Balcıoğlu, H., Yarar, C., . . . Ünlüoğlu, İ. J. O. T. D. (2017). Aile Hekimlerinin Gelişimsel Tarama Testleri Hakkındaki Bilgi Düzeylerinin ve Uygulama Alışkanlıklarının Değerlendirilmesi. Osmangazi Tıp Dergisi, 39(3), 44-48. https://doi.org/10.20515/otd.320953
3. Clements, K. M., Barfield, W. D., Kotelchuck, M., Wilber, N. J. M., & journal, c. h. (2008). Maternal socio-economic and race/ethnic characteristics associated with early intervention participation. Maternal and child health journal, 12(6), 708-717. https://doi.org/10.1007/s10995-007-0291-3
4. Dunst, C. J. (1997). Conceptual and empirical foundations of family-centered practice. American Psychological Association, 75-91. https://doi.org/10.1037/10236-004
5. Eurlyaid. (2019). Recommended practices in early childhood intervention: A guide book for profesionals. In. Retrieved from https://indd.adobe.com/view/ce456704-8e75-46a4-a7e6-700b024ed409 Last access March 2020
6. Çözger, (2019). Çocuklar için özel gereksinim değerlendirmesi hakkında yönetmelik Retrieved from https://www.resmigazete.gov.tr/eskiler/2019/02/20190220-1.htm Last access March 2020
7. Guralnick, M. J. (2005). An overview of the developmental systems model for early intervention. The developmental systems approach to early intervention, 1(1), 3-28.
8. Heinrichs, N., Bertram, H., Kuschel, A., & Hahlweg, K. J. P. S. (2005). Parent recruitment and retention in a universal prevention program for child behavior and emotional problems: Barriers to research and program participation. Prevention Science, 6(4), 275-286. https://doi.org/10.1007/s11121-005-0006-1
9. IDEA. (2004). Individul With Disabilities Education Improvement Act. Retrieved from https://sites.ed.gov/idea/ Last access March 2020
10. Jimenez, M. E., DuRivage, N. E., Bezpalko, O., Suh, A., Wade, R., Blum, N. J., & Fiks, A. G. J. C. p. (2017). A pilot randomized trial of a video patient decision aid to facilitate early intervention referrals from primary care. Clinical pediatrics, 56(3), 268-277. https://doi.org/10.1177/0009922816677038
11. Jimenez, M. E., Fiks, A. G., Shah, L. R., Gerdes, M., Ni, A. Y., Pati, S., & Guevara, J. P. (2014). Factors associated with early intervention referral and evaluation: a mixed methods analysis. Academic pediatrics, 14(3), 315-323. https://doi.org/10.1016/j.acap.2014.01.007
12. Karadavut, K. İ., Biri, A., Şenbil, N., Gülümser, Ö., Aydın, R., Sezgin, M., . . . Atay, G. (2018). Consensus report for workshop on⇜ early diagnosis and intervention in cerebral Palsy” Turkey’s approach to babies at risk and suggestions 1. National congress on babies at risk (1-4 March 2018, the Ankara Hotel). http://hdl.handle.net/11727/3733
13. Krägeloh-Mann, I., Lidzba, K., Pavlova, M. A., Wilke, M., & Staudt, M. (2017). Plasticity during early brain development is determined by ontogenetic potential. Neuropediatrics, 48(02), 066-071. http://doi.org/10.1055/s-0037-1599234
14. Lamb-Parker, F., Piotrkowski, C. S., Baker, A. J., Kessler-Sklar, S., Clark, B., & Peay, L. J. E. C. R. Q. (2001). Understanding barriers to parent involvement in Head Start: A research-community partnership. Early Childhood Research Quarterly, 16(1), 35-51. https://doi.org/10.1016/S0885-2006(01)00084-9
15. McManus, B., McCormick, M. C., Acevedo-Garcia, D., Ganz, M., & Hauser-Cram, P. (2009). The effect of state early intervention eligibility policy on participation among a cohort of young CSHCN. Pediatrics, 124(Supplement 4), S368-S374. https://doi.org/10.1542/peds.2009-1255G
16. McWilliam, R. (2010). Routines-based early intervention. Supporting Young Children and Their Families. Baltimore: Brookes. http://naturalenvironments.blogspot.com/
17. Peterson, C. A., Wall, S., Raikes, H. A., Kisker, E. E., Swanson, M. E., Jerald, J., . . . Qiao, W. J. T. i. E. C. S. E. (2004). Early Head Start: Identifying and serving children with disabilities. Topics in Early Childhood Special Education, 24(2), 76-88. https://doi.org/10.1177/02711214040240020301
18. Rosenberg, S. A., Zhang, D., & Robinson, C. C. (2008). Prevalence of developmental delays and participation in early intervention services for young children. Pediatrics, 121(6), e1503-e1509. https://doi.org/10.1542/peds.2007-1680
19. Spoth, R. L., Redmond, C., Trudeau, L., & Shin, C. J. P. o. A. B. (2002). Longitudinal substance initiation outcomes for a universal preventive intervention combining family and school programs. Psychology of Addictive Behaviors, 16(2), 129. https://doi.org/10.1037/0893-164X.16.2.129
20. Twardzik, E., MacDonald, M., & Dixon-Ibarra, A. (2017). The relationship between state lead agency and enrollment into early intervention services. Journal of Early Intervention, 39(3), 253-263. https://doi.org/10.1037/0893-164X.16.2.129
21. Unicef. (1989). Convention on the Rights of the Child.
22. Walker, S. P., Wachs, T. D., Gardner, J. M., Lozoff, B., Wasserman, G. A., Pollitt, E., . . . Group, I. C. D. S. (2007). Child development: risk factors for adverse outcomes in developing countries. The lancet, 369(9556), 145-157. https://doi.org/10.1016/S0140-6736(07)60076-2
23. Zigler, E., & Valentine, J. (1979). Project Head Start: A legacy of the war on poverty. American Journal of Diseases of Children. https://doi.org/10.1001/archpedi.1980.02130220081043
Year 2020,
Volume: 3 Issue: 2, 103 - 113, 31.12.2020
Turgay Altunalan
,
Zubeyir Sari
,
Meltem Çelik
Selin Sağlam
Gülsena Utku
Abstract
Erken çocukluk müdahale hizmetleri, “Cenevre Çocuk Hakları Bildirgesi” ile çocukların ve ebeveynlerinin temel hakkı olarak kabul edilmektedir. Erken müdahale hizmetlerinin önemi bilinmesine rağmen, ebeveynlerin katılımında bazı sorunlar bulunmaktadır. Çalışmanın amacı, erken müdahale desteğine yönlendirilen / davet edilen ebeveynlerin katılımlarını incelemektir. Çalışma kapsamında 2018-2019 yıllarında iki farklı erken müdahale projesine ebeveynlerin katılımları incelenmiştir. Düşük risk grubunda yer alan 98 ebeveynin altmış sekizi (% 69,3) ve yüksek risk grubunda yer alan 55 ebeveynin 53'ü (% 96,3) çalışmaya katılmayı kabul etmiştir. Erken müdahale programına katılmayı reddeden ebeveynler genellikle ulaşım sorunlarını ve iş yerinden iznin alamadıklarını gerekçe göstermişlerdir. Programı yarıda bırakan ebeveynler sıklıkla enfeksiyon riskini ve iş yerinden izin almada sorun yaşadıklarını belirtmişlerdir. Bu çalışma, erken müdahale hizmetlerine erişimin önündeki engelleri incelemiştir. Tespit edilen faktörlerin çoğunun değiştirilebilir olması önemlidir.
Project Number
TSÇV.200.017.723
References
- 1. Almsbhieen, M. M. J. I. E. S. (2016). Early Intervention Services, Importance and Availability Extent from Workers Point of View, Who Serves in the Intellectual Disability Centers in Ma'an, Jordan. International Education Studies, 9(10), 216-230. http://dx.doi.org/10.5539/ies.v9n10p216
2. Carman, K. B., Kayhan, M., Bilge, U., Dinleyici, M., Balcıoğlu, H., Yarar, C., . . . Ünlüoğlu, İ. J. O. T. D. (2017). Aile Hekimlerinin Gelişimsel Tarama Testleri Hakkındaki Bilgi Düzeylerinin ve Uygulama Alışkanlıklarının Değerlendirilmesi. Osmangazi Tıp Dergisi, 39(3), 44-48. https://doi.org/10.20515/otd.320953
3. Clements, K. M., Barfield, W. D., Kotelchuck, M., Wilber, N. J. M., & journal, c. h. (2008). Maternal socio-economic and race/ethnic characteristics associated with early intervention participation. Maternal and child health journal, 12(6), 708-717. https://doi.org/10.1007/s10995-007-0291-3
4. Dunst, C. J. (1997). Conceptual and empirical foundations of family-centered practice. American Psychological Association, 75-91. https://doi.org/10.1037/10236-004
5. Eurlyaid. (2019). Recommended practices in early childhood intervention: A guide book for profesionals. In. Retrieved from https://indd.adobe.com/view/ce456704-8e75-46a4-a7e6-700b024ed409 Last access March 2020
6. Çözger, (2019). Çocuklar için özel gereksinim değerlendirmesi hakkında yönetmelik Retrieved from https://www.resmigazete.gov.tr/eskiler/2019/02/20190220-1.htm Last access March 2020
7. Guralnick, M. J. (2005). An overview of the developmental systems model for early intervention. The developmental systems approach to early intervention, 1(1), 3-28.
8. Heinrichs, N., Bertram, H., Kuschel, A., & Hahlweg, K. J. P. S. (2005). Parent recruitment and retention in a universal prevention program for child behavior and emotional problems: Barriers to research and program participation. Prevention Science, 6(4), 275-286. https://doi.org/10.1007/s11121-005-0006-1
9. IDEA. (2004). Individul With Disabilities Education Improvement Act. Retrieved from https://sites.ed.gov/idea/ Last access March 2020
10. Jimenez, M. E., DuRivage, N. E., Bezpalko, O., Suh, A., Wade, R., Blum, N. J., & Fiks, A. G. J. C. p. (2017). A pilot randomized trial of a video patient decision aid to facilitate early intervention referrals from primary care. Clinical pediatrics, 56(3), 268-277. https://doi.org/10.1177/0009922816677038
11. Jimenez, M. E., Fiks, A. G., Shah, L. R., Gerdes, M., Ni, A. Y., Pati, S., & Guevara, J. P. (2014). Factors associated with early intervention referral and evaluation: a mixed methods analysis. Academic pediatrics, 14(3), 315-323. https://doi.org/10.1016/j.acap.2014.01.007
12. Karadavut, K. İ., Biri, A., Şenbil, N., Gülümser, Ö., Aydın, R., Sezgin, M., . . . Atay, G. (2018). Consensus report for workshop on⇜ early diagnosis and intervention in cerebral Palsy” Turkey’s approach to babies at risk and suggestions 1. National congress on babies at risk (1-4 March 2018, the Ankara Hotel). http://hdl.handle.net/11727/3733
13. Krägeloh-Mann, I., Lidzba, K., Pavlova, M. A., Wilke, M., & Staudt, M. (2017). Plasticity during early brain development is determined by ontogenetic potential. Neuropediatrics, 48(02), 066-071. http://doi.org/10.1055/s-0037-1599234
14. Lamb-Parker, F., Piotrkowski, C. S., Baker, A. J., Kessler-Sklar, S., Clark, B., & Peay, L. J. E. C. R. Q. (2001). Understanding barriers to parent involvement in Head Start: A research-community partnership. Early Childhood Research Quarterly, 16(1), 35-51. https://doi.org/10.1016/S0885-2006(01)00084-9
15. McManus, B., McCormick, M. C., Acevedo-Garcia, D., Ganz, M., & Hauser-Cram, P. (2009). The effect of state early intervention eligibility policy on participation among a cohort of young CSHCN. Pediatrics, 124(Supplement 4), S368-S374. https://doi.org/10.1542/peds.2009-1255G
16. McWilliam, R. (2010). Routines-based early intervention. Supporting Young Children and Their Families. Baltimore: Brookes. http://naturalenvironments.blogspot.com/
17. Peterson, C. A., Wall, S., Raikes, H. A., Kisker, E. E., Swanson, M. E., Jerald, J., . . . Qiao, W. J. T. i. E. C. S. E. (2004). Early Head Start: Identifying and serving children with disabilities. Topics in Early Childhood Special Education, 24(2), 76-88. https://doi.org/10.1177/02711214040240020301
18. Rosenberg, S. A., Zhang, D., & Robinson, C. C. (2008). Prevalence of developmental delays and participation in early intervention services for young children. Pediatrics, 121(6), e1503-e1509. https://doi.org/10.1542/peds.2007-1680
19. Spoth, R. L., Redmond, C., Trudeau, L., & Shin, C. J. P. o. A. B. (2002). Longitudinal substance initiation outcomes for a universal preventive intervention combining family and school programs. Psychology of Addictive Behaviors, 16(2), 129. https://doi.org/10.1037/0893-164X.16.2.129
20. Twardzik, E., MacDonald, M., & Dixon-Ibarra, A. (2017). The relationship between state lead agency and enrollment into early intervention services. Journal of Early Intervention, 39(3), 253-263. https://doi.org/10.1037/0893-164X.16.2.129
21. Unicef. (1989). Convention on the Rights of the Child.
22. Walker, S. P., Wachs, T. D., Gardner, J. M., Lozoff, B., Wasserman, G. A., Pollitt, E., . . . Group, I. C. D. S. (2007). Child development: risk factors for adverse outcomes in developing countries. The lancet, 369(9556), 145-157. https://doi.org/10.1016/S0140-6736(07)60076-2
23. Zigler, E., & Valentine, J. (1979). Project Head Start: A legacy of the war on poverty. American Journal of Diseases of Children. https://doi.org/10.1001/archpedi.1980.02130220081043