Otizmli Çocuğu Olan Ailelerin Desteklenmesine Yönelik Yapılan Bilişsel Davranışçı Terapi Temelli Çalışmaların İncelenmesi

Yıl 2023, Cilt: 7 Sayı: 2, 433 - 452, 30.04.2023

Hüseyin Mutlu , Vesile Yıldız Demirtaş

https://doi.org/10.34056/aujef.1219861

Öz

Otizmli bireylerin anne ve babaları, ebeveynlik rollerini yerine getirirken birçok zorluk yaşarlar ve genellikle diğer ebeveynlerden daha fazla olumsuz duygu durumuna sahiptirler. Bu ebeveynleri psikolojik açıdan destelemek için kanıta dayalı müdahalelerin yapılması alanyazında birçok araştırmada önemli bir konu olarak vurgulanmıştır. Bu çalışmada, otizmli bireylerin anne babalarına yönelik gerçekleştirilen Bilişsel Davranışçı Terapi temelli araştırmaların sistematik bir incelemesi yapılmıştır. Araştırmada, dahil etme kriterlerine uyan 20 çalışma yer almıştır. Bu çalışmalar, katılımcı özellikleri, bağımlı değişkenler ve ölçme araçları, izleme çalışmaları ve sonuçlar kategorilerine göre derlenmiş ve gelecek araştırmalar için çeşitli önerilerde bulunulmuştur.

Anahtar Kelimeler

otizm, bilişsel davranşçı terapi, ebeveyn eğitimi

Investigation of Cognitive Behavioral Therapy Based Studies on Supporting Families with Children with Autism

Öz

Parents of individuals with autism experience many difficulties in fulfilling their parenting roles and generally have more negative moods than other parents. Evidence-based interventions to support these parents psychologically have been highlighted as an important issue in many studies in the literature. In this study, a systematic review of Cognitive Behavioral Therapy-based research on parents of individuals with autism was conducted. The research included 20 studies that met the inclusion criteria. These studies were compiled according to the categories of participant characteristics, dependent variables and measurement tools, follow-up studies and results, and various suggestions were made for future research.

Anahtar Kelimeler

Autism, cognitive behavioral therapy, parent education

Kaynakça

• American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Association.
• Anclair, M. ve Hiltunen, A.J. (2014). Cognitive behavioral therapy for stress-related problems: Two single-case studies of parents of children with disabilities. Clinical Case Studies, 13(6), 472-486.
• Barroso, N. E., Mendez, L., Graziano, P. A. ve Bagner, D. M. (2017). Parenting stress through the lens of different clinical groups: A systematic review and meta-analysis. Journal of Abnormal Child Psychology, 46(3), 449-461.
• Bearss, K., Burrell, T. L., Stewart, L. M. ve Scahill, L. (2015). Parent training in autism spectrum disorder: What’s in a name ? Clinical Child and Family Psychology Review, 18(2), 170–182.
• Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4, 217-228.
• Bones, S., Norris, K. ve Quinn, M. (2019). Empirical validation of a model predicting depression, anxiety, and stress in parents of children with autism. Clinical Psychologist, 23(3), 249-260.
• Bonis, S. (2016). Stress and parents of children with autism: A review of literature. Issues in Mental Health Nursing, 37(3), 153–163.
• Butler, A. C., Chapman, J. E., Forman, E. M. ve Beck, A. T. (2006). The empirical status of cognitive-behavioral therapy: A review of meta-analyses. Clinical Psychology Review, 26, 17-31.
• Cappe, E., Downes, N., Albert-Benaroya, S., Ech-Chouikh, J.A., De Gaulmyn, A. ve diğerleri (2021). Preliminary results of the effects of a psychoeducational program on stress and quality of life among french parents of an autistic child. Focus on Autism and Other Developmental Disabilities, 36(3), 1-11.
• Cappe, E., Wolff, M., Bobet, R. ve Adrien, J. L. (2011). Quality of life: A key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes. Quality of Life Research, 20(8), 1279-1294.
• Carter, A., Martinez-Pedraza, F. ve Gray, S. (2009) Stability and individual change in depressive symptoms among mothers raising young children with ASD: maternal and child correlates. Journal of Clinical Psychology, 65(12), 1270-1280.
• Cohrs, A.C. ve Leslie, D.L. (2017). Depression in parents of children diagnosed with autism spectrum disorder: A claims-based analysis. Journal of Autism and Developmental Disorders, 47, 1416-1422.
• Corti, C., Pergolizzi, F., Vanzin, L., Cargasacchi1, G., Villa, L. ve diğerleri (2018). Acceptance and commitment therapy-oriented parent-training for parents of children with autism. Journal of Child and Family Studies, 27, 2887-2900.
• Çokamay-Yılmaz, G. (2018). Bilişsel Davranışçı Terapiye dayalı ana baba eğitimleri: Kuramsal bir gözden geçirme. Bilişsel Davranışçı Psikoterapi ve Araştırmalar Dergisi, 7(3), 133-143.
• Dale, E., Jahoda, A. ve Knott, F. (2006). Mothers’ attributions following their child’s diagnosis of autistic spectrum disorder. Autism, 10, 463-479.
• Da Paz, N. S., ve Wallander, J. L. (2017). Interventions that target improvements in mental health for parents of children with autism spectrum disorders: A narrative review. Clinical Psychology Review, 51, 1-14.
• Derguy, C., Michel, G., M’Bailara, K., Roux, S. ve Bouvard, M. (2015). Assessing needs in parents of children with autism spectrum disorder: A crucial preliminary step to target relevant issues for support programs. Journal of Intellectual & Developmental Disability, 40(2), 156-166.
• Eapen, V. ve Guan, J. (2016). Parental quality of life in autism spectrum disorder: Current status and future directions. Acta Psychopathologica, 2(5), 1-14.
• Ertekin, E., Ergun, B.M. ve Sungur, M.Z. (2014). Psikiyatristler ve psikiyatri asistanlarında bilişsel-davranışçı terapi hakkında mitler ve yanlış bilinenler. Anadolu Psikiyatri Dergisi, 16(1), 60-64.
• Falk, N.H., Norris, K. ve Quinn, M. (2014). The factors predicting stress, anxiety and depression in the parents of children with autism. Journal of Autism and Developmental Disorders, 44(12), 3185-203.
• Frantz, R., Hansen, S.G. ve Machalicek, W. (2018). Interventions to promote well-being in parents of children with autism: A systematic review. Review Journal of Autism and Developmental Disorders, 5(4), 58-77.
• Fung, K., Lake, J., Steel, L., Bryce, K. ve Lunsky, Y. (2018). ACT processes in group intervention for mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 2740-2747.
• Gelo, O., Braakmann, D. ve Benetka, G. (2008). Quantitative and qualitative research: Beyond the debate. Integrative Psychological and Behavioral Science, 42(3), 266-290.
• Giallo, R., Wood, C.E., Jellett, R. ve Porter, R. (2011). Fatigue, wellbeing and parental self-efficacy in mothers of children with an autism spectrum disorder. Autism, 17(4), 465-480.
• Gould, E.R., Tarbox, J. ve Coyne, L. (2017). Evaluating the effects of acceptance and commitment training on the overt behavior of parents of children with autism. Journal of Contextual Behavioral Science, 7, 81-88.
• Hahs, A.D., Dixon, M.R. ve Paliliunas, D. (2019). Randomized controlled trial of a brief acceptance and commitment training for parents of individuals diagnosed with autism spectrum disorders. Journal of Contextual Behavioral Science, 12, 154-159.
• Hamidi, F., Shirazizadeh, Z. ve Damavandi, E. (2020). The effect of cognitive behavioral counseling on parent-child relationship in mothers of children with autism spectrum disorder. Health Education and Health Promotion, 8(2), 51-56.
• Hartley, S.L., Barker, E.T., Seltzer, M.M., Greenberg, J.S. ve Floyd, F.J. (2011). Marital satisfaction and parenting experiences of mothers and fathers of adolescents and adults with autism. American Journal of Intellectual and Developmental Disabilities, 116(1), 81-95.
• Hastings, R. P., Daley, D., Burns, C. ve Beck, A. (2006). Maternal distress and expressed emotion: Cross-sectional and longitudinal relationships with behavior problems of children with intellectual disabilities. American Journal on Mental Retardation, 111(1), 48-61.
• Hayes, S. A.ve Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629-642.
• Higgins, D. J., Bailey, S. R. ve Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorders. Autism, 9, 125-137.
• Hofmann, S. G., Asnaani, A., Vonk, I. J., Sawyer, A. T. ve Fang, A. (2012). The efficacy of cognitive behavioral therapy : a review of meta-analyses. Cognitive Therapy and Research, 36, 427-440.
• Iadarola, S., Oakes, L.A., Shih, W., Dean, M., Smith, T. ve Orlich, F. (2018). Relationship among anxiety, depression, and family impact in adolescents with autism spectrum disorder and average-range IQ. Focus on Autism and Other Developmental Disabilities, 33(3) 171-181.
• Izadi- Mazidi, M., Riahi, F. ve Khajeddin, N. (2015). Effect of cognitive behavior group therapy on parenting stress in mothers of children with autism. Iranian Journal of Psychiatry and Behavioral Sciences, 9(3), 1-5.
• Joekar, S., Farid, A.A.A., Birashk, B., Gharraee, B. ve Mohammadian, M. (2016). Effectiveness of acceptance and commitment therapy in the support of parents of children with high-functioning autism. International Journal of Humanities and Cultural Studies, 2(4), 2763-2772.
• Jones, L., Gold, E., Totsika, V., Hastings, R.P., Jones, M. ve diğerleri (2018). A mindfulness parent well-being course : evaluation of outcomes for parents of children with autism and related disabilities recruited through special schools. European Journal of Special Needs Education, 33(1), 16-30.
• Karst, J.S. ve Van Hecke, A.V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15(3), 247-277.
• Keen, D., Couzens, D., Muspratt, S. ve Rodger, S. (2010). The effects of a parent-focused intervention for children with a recent diagnosis of autism spectrum disorder on parenting stress and competence. Research in Autism Spectrum Disorders, 4, 229-241.
• Ketcheson, L.R., Wengrovius, C.M., Staples, K.L. ve Miodrag, N. (2022). MYTime: A mindfulness and yoga program to promote health outcomes in parents of children with autism spectrum disorder. Global Advances in Health and Medicine, 11, 1-11.
• Klinger, L. G., Ence, W. ve Meyer, A. (2013). Caregiver-mediated approaches to managing challenging behaviors in children with autism spectrum disorder. Dialogues in Clinical Neuroscience, 15(2), 225-233.
• Koukouiki, E. ve Soulis, S.G. (2020). Self‑reported health‑related quality of life (HRQOL) and anxiety among Greek school‑age siblings of individuals with autism spectrum disorders (ASD) in relation to parental mental health and social support. Journal of Autism and Developmental Disorders, 50(8), 2913-2930
• Krakovich, T. M., McGrew, J. H., Yu, Y. ve Ruble, L. A. (2016). Stress in parents of children with autism spectrum disorder :an of demands and resources. Journal of Autism and Developmental Disorders, 46(6), 2042-2053.
• Limbers, C.A., Gutierrez, A. ve Cohen, L.A. (2020). The patient-centered medical home: Mental health and parenting stress in mothers of children with autism. Journal of Primary Care & Community Health, 11, 1-11.
• Lodder, A., Papadopulos, C, Randhawa, G. (2020). Using a blended format (videoconference and face to face) to deliver a group psychosocial intervention to parents of autistic children. Internet Interventions, 21, 1-9.
• Lunsky, Y., Fung, K., Lake, J., Steel, L. ve Bryce, K. (2018). Evaluation of acceptance and commitment therapy (ACT) for mothers of children and youth with autism spectrum disorder. Mindfulness, 9, 1110-1116.
• Lunsky, Y., Albaum, C., Baskin, A., Hastings, R.P., Hutton, S. ve diğerleri (2021). Group virtual mindfulness‑based intervention for parents of autistic adolescents and adults. Journal of Autism and Developmental Disorders, 51, 3959-3969.
• Magana, S., Hughes, M.T., Salkas, K., Gonzales, W., Nunez, G. ve diğerleri (2021). Implementing a parent education intervention in Colombia : assessing parent outcomes and perceptions across delivery modes. Focus on Autism and Other Developmental Disabilities, 36(3), 1-11.
• Marino, F., Failla, C., Chila, P., Minutoli, R., Puglisi, A. ve diğerleri (2021). The effect of acceptance and commitment therapy for improving psychological well-being in parents of individuals with autism spectrum disorders : a randomized controlled trial. Brain Sciences, 11(7), 880-895.
• Matson, J. L. ve Nebel-Schwalm, M. S. (2007). Comorbid psychopathology with autism spectrum disorder in children : an overview. Research Developmental Disabilities: A Multidisciplinary Journal, 28(4), 341-352. Mazurek, M. O. (2014). Loneliness, friendship, and well-being in adults with autism spectrum disorders. Autism, 18(3), 223-232.
• Mazzucchelli, T. G., Jenkins, M. ve Sofronoff, K. (2018). Building bridges triple P: Pilot study of a behavioral family intervention for adolescents with autism spectrum disorder. Research in Developmental Disabilities, 76, 46-55.
• Mccreary, L. L. (2014). Dimensions of family functioning : perspectives African American families of low-income single-parent. Journal of Marriage and Family, 66(3), 690-701.
• Meltzer, L.J. ve Mindell, J.A. (2008). Behavioral sleep disorders in children and adolescents. Sleep Medicine Clinics, 3(2), 269-279.
• Mruzek, D. W., McAleavey, S., Loring, W. A., Butter, E., Smith, T. ve diğerleri (2019). A pilot investigation of an iOS-based app for toilet training children with autism spectrum disorder. Autism, 23(2), 359-370.
• Nguyen, C.T., Fairclough, D.L. ve Noll, R.B. (2016). Problem-solving skills training for mothers of children recently diagnosed with autism spectrum disorder: A pilot feasibility study. Autism, 20(1) 55-64.
• O’Donovon, K.L., Armitage, S., Featherstone, J., McQuillin, L., Longley, S. ve Pollard, N. (2019). Group-based parent training interventions for parents of children withautism spectrum disorders: A literature review. Review Journal of Autism and Developmental Disorders, 6, 85-95.
• Özdemir, O. (2013). Ailelere sunulan hizmetler ve destekler. A. Cavkaytar (Ed.) Özel eğitimde aile rehberliği içinde (51-77). Ankara: Maya Akademi.
• Papanikolaou, K. ve Chrousos, G.P. (2012). Use of a relaxation technique by mothers of children with autism : a case-series study. Psychological Reports: Human Resources & Marketing, 111(3), 797-804.
• Parsons, D., Cordier, R., Vaz, S. ve Lee, H. C. (2017). Parent-mediated intervention training delivered remotely for children with autism spectrum disorder living outside of urban areas: Systematic review. Journal of Medical Internet Research, 19(8), 1-30.
• Pennefather, J., Hieneman, M., Raultson, T.J. ve Caraway, N. (2018). Evaluation of an onlinetraining program to improve family routines, parental well-being, and the behavior of children with autism. Research in Autism Spectrum Disorders, 54, 21-26.
• Petticrew, M. ve Roberts, H. (2006). Systematic reviews in the social sciences: A practical guide. DOI :10.1002/9780470754887.
• Pisula, E. ve Kossakowska, Z. (2010). Sense of coherence and coping with stress among mothers and fathers of children with autism. Journal of Autism and Developmental Disorders, 40(12), 1485-1494.
• Poddar, S., Sinha, V.K. ve Urbi, M. (2018). Acceptance and commitment therapy on parents of children and adolescents with autism spectrum disorders. International Journal of Educational and Psychological Researches, 1(3), 221-225.
• Preece, D. ve Almond, J. (2008). Supporting families with children with autism spectrum disorders to use structured teaching approaches in the home and community. Good Autism Practice, 9(2), 44-53.
• Preece, D. ve Trajkovski, V. E. (2017). Parent education in autism spectrum disorder: A review of the literature. Croatian Review of Rehabilitation Research, 53(1), 118-128.
• Rarity, J. C. (2007). Nonfinite grief in families with children on the autism spectrum a dissertation. (Unpublished doctorate thesis). St. Mary’s University, San Antonio, Texas.
• Rayan, A. ve Ahmad, M. (2017). Effectiveness of mindfulness-based intervention on perceived stress, anxiety, and depression among parents of children with autism spectrum disorder. Mindfulness, 8, 677-690.
• Ridderinkhof, A., De Bruin, E.I., Blom, R. ve Bögels, S.M. (2018). Mindfulness-based program for children with autism spectrum disorder and their parents : Direct and long-term improvements. Mindfulness, 9, 773-791.
• Robertson, S. M. (2010). Neurodiversity, quality of life, and autistic adults: Shifting research and professional focuses onto real-life challenges. Disability Studies Quarterly, 30(1),1–21.
• Rojas-Torres, L.P., Alonso-Esteban, Y., Lopez-Ramon, M.F. ve Alcantud-Marin, F. (2021). Mindfulness-based stress reduction (MBSR) and self compassion (SC) training for parents of children with autism spectrum disorders : A pilot trial in community services in Spain. Children, 8(5), 1-18.
• Ruiz-Robledillo, N. ve Moya-Albiol, L. (2015). Effects of a cognitive-behavioral intervention program on the health of caregivers of people with autism spectrum disorder. Psychosocial Intervention, 24, 33-39.
• Salimi, M., Mahdavi, A., Yeghaneh, S.S., Abedin, M. ve Hajhosseini, M. (2019). The effectiveness of group based acceptance and commitment therapy (ACT) on emotion cognitive regulation strategies in mothers of children with autism spectrum. MAEDICA-A Journal of Clinical Medicine, 14(3), 240-246.
• Santrock, J. W. (2018). A topical approach to life-span development (9. Basım). McGraw-Hill.
• Sharp, W.G., Jaquess, D. L. ve Lukens, C. T. (2013) Multi-method assessment of feeding problems among children with autism spectrum disorders. Research in Autism Spectrum Disorders, 7(1), 56-65.
• Sim, A., Cordier, R., Vaz, S. ve Falkmer, T. (2019). “We are in this together”: Experiences of relationship satisfaction in couples raising a child with autism spectrum disorder. Research in Autism Spectrum Disorders, 58, 39-51.
• Singh, N.N., Lancioni, G.E., Medvedev, O.N., Hwang, Y.S. ve Myers, R.E. (2021). A component analysis of the mindfulness-based positive behavior support (MBPBS) program for mindful parenting by mothers of children with autism spectrum disorder. Mindfulness, 12, 463-475.
• Tomeny, T.S. (2017). Parenting stress as an indirect pathway to mental health concerns among mothers of children with autism spectrum disorder. Autism, 21(7), 907-911.
• Töret, G., Özdemir, S. ve Özkubat, U. (2015). Ciddi düzeyde otizm spektrum bozukluğu olan çocuklar ile annelerinin ebeveyn-çocuk etkileşimlerinin ebeveyn ve çocuk davranışları açısından incelenmesi. Ankara Üniversitesi Eğitim Bilimleri Fakültesi Özel Eğitim Dergisi, 16(1), 1-22.
• Vasilopoulou, E. ve Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder : A systematic review. Research in Autism Spectrum Disorders, 23, 36-49.
• Weitlauf, A.S., Vehorn, A.C., Taylor, J.L. ve Warren, Z.E. (2014). Relationship satisfaction, parenting stress, and depression in mothers of children with autism. Autism, 18(2), 194-198.
• Zaidman-Zait, A., Mirenda, P., Duku, E., Szatmari, P., Georgiades, S. ve diğerleri (2014). Examination of bidirectional relationships between parent stress and twotypes ofproblem behavior in children with autism spectrum disorder. Journal of Autism Developmental Disorder, 44, 1908-1917.