COVID-19 Pandemi Sürecinde Demanslı Bireyler: Sağlık Profesyonelleri ve Bakım Verenler İçin Öneriler
Yıl 2021,
Cilt: 14 Sayı: 3, 277 - 282, 15.07.2021
Merve Aliye Akyol
,
Özlem Küçükgüçlü
,
Burcu Akpınar Söylemez
Öz
COVID-19 pandemisi tüm dünyada milyonlarca insanı özellikle de demanslı bireylerin bakımını hiç kuşkusuz ki olumsuz şekilde etkilemektedir. Demans, yaşlanan toplumların pandemisi olarak adlandırılmaktadır. Demans ve COVID-19 pandemisinin birlikteliği, sağlık profesyonelleri ve aile üyeleri için demanslı bireylerin bakımını daha da zor ve karmaşık hale getirmektedir. COVID-19 pandemi sürecinde demanslı bireylerin var olan sağlık durumlarını koruma, güvenliklerini sağlama, ihtiyaç duyulan desteğin sağlanması konuları daha fazla önem kazanmıştır. Alzheimer’s Disease International ve demans uzmanları, tüm dünyada demanslı bireylere ve bakım verenlerine acilen destek olunması gerektiğini belirtmektedir. Bu derlemeyle COVID-19 pandemi sürecinde demanslı bireyin bakımından sorumlu sağlık profesyonellerinin ve aile üyelerinin bakım süreçlerinde kullanabileceği pratik öneriler sunarak onların yollarına ışık tutmak amaçlanmaktadır.
Kaynakça
- 1. World Health Organization (WHO). Coronovirus disease (COVID-19) pandemic (2020) [online]. URL: https://www.who.int/emergencies/diseases/novel-coronavirus-2019. 24 Mayıs 2021
- 2. Banerjee D. The COVID-19 outbreak: Crucial role the psychiatrists can play. Asian J Psychiatr 2020;50:102014.
- 3. Guan WJ, Ni ZY, Hu Y, Liang WH, Ou CQ, He JX, et al. Clinical characteristics of coronavirus disease 2019 in China. N Engl J Med 2020;382(18):1708-1720.
- 4. Etard JF, Vanhems P, Atlani-Duault L, Ecochard R. Potential lethal outbreak of coronavirus disease (COVID-19) among the elderly in retirement homes and long-term facilities, France, March 2020. Eurosurveillance 2020;25(15):1-3.
- 5. Kaiser Family Foundation (KFF). 8 in 10 People who have died of COVID-19 were age 65 or older – but the share varies by state (2020) [online]. URL: https://www.kff.org/coronavirus-covid-19/press-release/8-in-10-people-who-have-died-of-covid-19-were-age-65-or-older-but-the-share-varies-by-state/. 24 Mayıs 2021
- 6. Fox NC, Petersen RC. The G8 dementia research summit--a starter for eight? The Lancet 2013;382:1968-1969.
- 7. Alzheimer’s Disease International. World Alzheimer Report 2019 Attitudes to dementia [online]. URL: https://www.alzint.org/u/WorldAlzheimerReport2019.pdf. 24 Mayıs 2021
- 8. Wang H, Li T, Barbarino P, Gauthier S, Brodaty H, Molinuevo JL, et al. Dementia care during COVID-19. The Lancet 2020;395(10231):1190-1191.
- 9. Alzheimer Europe. Alzheimer Europe recommendations on promoting the wellbeing of people with dementia and carers during the COVID-19 pandemic. Luxemburg: Alzheimer Europe [online]. URL: https://www.alzheimer-europe.org/Policy/Our-opinion-on/Wellbeing-of-people-with-dementia-during-COVID-19-pandemic 24 Mayıs 2021
- 10. Williamson HJ, McCarthy MJ, Garcia YE, Bacon R, Dunn DJ, Baldwin JA. Addressing the needs of rural caregivers of ındividuals with alzheimer’s disease and related dementias during and beyond coronavirus disease 2019 (COVID-19). Public Policy Aging Rep 2020;30(4):178-180.
- 11. Tousi B. Dementia care in the time of COVID-19 pandemic. J Alzheimer's Dis 2020;(Preprint):1-5.
- 12. Alzheimer’s Association. Coronavirus (COVID-19): Tips for Dementia Caregivers (2020) [online]. URL: https://www.alz.org/help-support/caregiving/coronavirus-(covid-19)-tips-for-dementia-care. 24 Mayıs 2021
- 13. Cagnin A, Di Lorenzo R, Marra C, Bonanni L, Cupidi C, Laganà V, et al. Behavioral and psychological effects of coronavirus disease-19 quarantine in patients with dementia. Front Psychiatry 2020;11:1-15.
- 14. Brown EE, Kumar S, Rajji TK, Pollock BG, Mulsant BH. Anticipating and mitigating the impact of COVID-19 pandemic on Alzheimer's disease and related dementias. Am J Geriatr Psychiatry 2020;28(7):712-721.
- 15. Mok VC, Pendlebury S, Wong A, Alladi S, Au L, Bath PM, et al. Tackling challenges in care of Alzheimer's disease and other dementias amid the COVID‐19 pandemic, now and in the future. Alzheimer's & Dementia 2020;16(11):1571-1581.
- 16. Song H, Sieurin J, Wirdefeldt K, Pedersen NL, Almqvist C, Larsson H, et al. Association of stress-related disorders with subsequent neurodegenerative diseases. JAMA Neurology 2020;77(6):700-709.
- 17. Vaitheswaran S, Lakshminarayanan M, Ramanujam V, Sargunan S, Venkatesan S. Experiences and needs of caregivers of persons with dementia in India during the COVID-19 pandemic—A qualitative study. Am J Geriatr Psychiatry 2020;28(11):1185-1194.
- 18. Tsapanou A, Papatriantafyllou JD, Yiannopoulou K, Sali D, Kalligerou F, Ntanasi E, et al. The impact of COVID‐19 pandemic on people with mild cognitive impairment/dementia and on their caregivers. Int J Geriatr Psychiatry 2021;36(4):583-587.
- 19. Giebel CM, Challis DJ, Montaldi D. A revised interview for deterioration in daily living activities in dementia reveals the relationship between social activities and well-being. Dementia 2016;15(5):1068-1081.
- 20. Cuffaro L, Di Lorenzo F, Bonavita S, Tedeschi G, Leocani L, Lavorgna L. Dementia care and COVID-19 pandemic: A necessary digital revolution. Neurological Sciences 2020;41(8):1977-1979.
- 21. Godwin KM, Mills WL, Anderson JA, Kunik ME. Technology-driven interventions for caregivers of persons with dementia: A systematic review. Am J Alzheimers Dis Other Demen 2013;28(3):216-222.
- 22. Finkel S, Czaja SJ, Martinovich Z, Harris C, Pezzuto D, Schulz R. E-care: A telecommunications technology intervention for family caregivers of dementia patients. Am J Geriatr Psychiatry 2007;15(5):443-448.
- 23. Kales HC, Lyketsos CG, Miller EM, Ballard C. Management of behavioral and psychological symptoms in people with Alzheimer's disease: An international Delphi consensus. Int Psychogeriatr 2019;31(1):83-90.
People with Dementıa During COVID-19 Pandemic: Recommendations for Health Professionals and Caregivers
Yıl 2021,
Cilt: 14 Sayı: 3, 277 - 282, 15.07.2021
Merve Aliye Akyol
,
Özlem Küçükgüçlü
,
Burcu Akpınar Söylemez
Öz
The COVID-19 pandemic undoubtedly affects millions of people around the world, especially the care of people with dementia. Dementia is called the pandemic of aging societies. The coexistence of dementia and the COVID-19 pandemic makes caring for people with dementia even more difficult and complex for healthcare professionals and family members. During the COVID-19 pandemic, the issues of protecting the existing health status of people with dementia, ensuring their safety, and providing the necessary support became more important. Alzheimer's Disease International and dementia experts state that people with dementia and their caregivers should be supported urgently around the world. The aim of this review is to shed light on the pathways of healthcare professionals and family members responsible for caring of a person with dementia during the COVID-19 pandemic process by providing practical suggestions that they can use their care processes.
Kaynakça
- 1. World Health Organization (WHO). Coronovirus disease (COVID-19) pandemic (2020) [online]. URL: https://www.who.int/emergencies/diseases/novel-coronavirus-2019. 24 Mayıs 2021
- 2. Banerjee D. The COVID-19 outbreak: Crucial role the psychiatrists can play. Asian J Psychiatr 2020;50:102014.
- 3. Guan WJ, Ni ZY, Hu Y, Liang WH, Ou CQ, He JX, et al. Clinical characteristics of coronavirus disease 2019 in China. N Engl J Med 2020;382(18):1708-1720.
- 4. Etard JF, Vanhems P, Atlani-Duault L, Ecochard R. Potential lethal outbreak of coronavirus disease (COVID-19) among the elderly in retirement homes and long-term facilities, France, March 2020. Eurosurveillance 2020;25(15):1-3.
- 5. Kaiser Family Foundation (KFF). 8 in 10 People who have died of COVID-19 were age 65 or older – but the share varies by state (2020) [online]. URL: https://www.kff.org/coronavirus-covid-19/press-release/8-in-10-people-who-have-died-of-covid-19-were-age-65-or-older-but-the-share-varies-by-state/. 24 Mayıs 2021
- 6. Fox NC, Petersen RC. The G8 dementia research summit--a starter for eight? The Lancet 2013;382:1968-1969.
- 7. Alzheimer’s Disease International. World Alzheimer Report 2019 Attitudes to dementia [online]. URL: https://www.alzint.org/u/WorldAlzheimerReport2019.pdf. 24 Mayıs 2021
- 8. Wang H, Li T, Barbarino P, Gauthier S, Brodaty H, Molinuevo JL, et al. Dementia care during COVID-19. The Lancet 2020;395(10231):1190-1191.
- 9. Alzheimer Europe. Alzheimer Europe recommendations on promoting the wellbeing of people with dementia and carers during the COVID-19 pandemic. Luxemburg: Alzheimer Europe [online]. URL: https://www.alzheimer-europe.org/Policy/Our-opinion-on/Wellbeing-of-people-with-dementia-during-COVID-19-pandemic 24 Mayıs 2021
- 10. Williamson HJ, McCarthy MJ, Garcia YE, Bacon R, Dunn DJ, Baldwin JA. Addressing the needs of rural caregivers of ındividuals with alzheimer’s disease and related dementias during and beyond coronavirus disease 2019 (COVID-19). Public Policy Aging Rep 2020;30(4):178-180.
- 11. Tousi B. Dementia care in the time of COVID-19 pandemic. J Alzheimer's Dis 2020;(Preprint):1-5.
- 12. Alzheimer’s Association. Coronavirus (COVID-19): Tips for Dementia Caregivers (2020) [online]. URL: https://www.alz.org/help-support/caregiving/coronavirus-(covid-19)-tips-for-dementia-care. 24 Mayıs 2021
- 13. Cagnin A, Di Lorenzo R, Marra C, Bonanni L, Cupidi C, Laganà V, et al. Behavioral and psychological effects of coronavirus disease-19 quarantine in patients with dementia. Front Psychiatry 2020;11:1-15.
- 14. Brown EE, Kumar S, Rajji TK, Pollock BG, Mulsant BH. Anticipating and mitigating the impact of COVID-19 pandemic on Alzheimer's disease and related dementias. Am J Geriatr Psychiatry 2020;28(7):712-721.
- 15. Mok VC, Pendlebury S, Wong A, Alladi S, Au L, Bath PM, et al. Tackling challenges in care of Alzheimer's disease and other dementias amid the COVID‐19 pandemic, now and in the future. Alzheimer's & Dementia 2020;16(11):1571-1581.
- 16. Song H, Sieurin J, Wirdefeldt K, Pedersen NL, Almqvist C, Larsson H, et al. Association of stress-related disorders with subsequent neurodegenerative diseases. JAMA Neurology 2020;77(6):700-709.
- 17. Vaitheswaran S, Lakshminarayanan M, Ramanujam V, Sargunan S, Venkatesan S. Experiences and needs of caregivers of persons with dementia in India during the COVID-19 pandemic—A qualitative study. Am J Geriatr Psychiatry 2020;28(11):1185-1194.
- 18. Tsapanou A, Papatriantafyllou JD, Yiannopoulou K, Sali D, Kalligerou F, Ntanasi E, et al. The impact of COVID‐19 pandemic on people with mild cognitive impairment/dementia and on their caregivers. Int J Geriatr Psychiatry 2021;36(4):583-587.
- 19. Giebel CM, Challis DJ, Montaldi D. A revised interview for deterioration in daily living activities in dementia reveals the relationship between social activities and well-being. Dementia 2016;15(5):1068-1081.
- 20. Cuffaro L, Di Lorenzo F, Bonavita S, Tedeschi G, Leocani L, Lavorgna L. Dementia care and COVID-19 pandemic: A necessary digital revolution. Neurological Sciences 2020;41(8):1977-1979.
- 21. Godwin KM, Mills WL, Anderson JA, Kunik ME. Technology-driven interventions for caregivers of persons with dementia: A systematic review. Am J Alzheimers Dis Other Demen 2013;28(3):216-222.
- 22. Finkel S, Czaja SJ, Martinovich Z, Harris C, Pezzuto D, Schulz R. E-care: A telecommunications technology intervention for family caregivers of dementia patients. Am J Geriatr Psychiatry 2007;15(5):443-448.
- 23. Kales HC, Lyketsos CG, Miller EM, Ballard C. Management of behavioral and psychological symptoms in people with Alzheimer's disease: An international Delphi consensus. Int Psychogeriatr 2019;31(1):83-90.