Yetişkin Bireylerin Alzheimer Hastalığı ile İlgili Bilgi ve Damgalanma Düzeylerinin Belirlenmesi

Yıl 2024, Cilt: 7 Sayı: 2, 94 - 104, 31.08.2024

Serap Bayram , Petek Güzel Kudret Kocabey , Ayşenur Obut Özge Öz Şeyma Durmuşoğlu , Çiğdem Ekin

https://doi.org/10.47141/geriatrik.1469664

Öz

Amaç: Türkiye’de Alzheimer hastalığı (AH) ve buna bağlı demans (AHBD), halk sağlığı açısından öncelikli olarak ele alınması gereken hastalıklar arasındadır. Özellikle Türk yetişkinleri arasında AH farkındalık düzeyi ve AH’ya ilişkin damgalanma konusunda bilinenler yetersizdir. Bu iki önemli faktörün hastalık yüküne katkısı, vaka bulma ve tedavi etkinliğine etkisi bilinmemektedir. Bu bağlamda çalışmanın amacı yetişkinlerin ve yaşlı yetişkinlerin AH’ye ilişkin bilgi ve damgalanma düzeylerini belirlemektir.

Gereç ve Yöntem: Tanımlayıcı ve analitik bir tasarım kullanıldı. Araştırmaya toplam 888 yetişkin ve yaşlı yetişkin birey katıldı. Veriler anket, Alzheimer Hastalığı Bilgi Ölçeği (AHBÖ) ve Alzheimer’a Karşı Algılanan Damgalanma Anketi (STIGMA-AH) ile toplandı.

Bulgular: Katılımcıların yaş ortalaması 49,75 (8,89), %85,7’si 40-59 yaş aralığında, %64,1’i kadın, %60,8’i evli ve %51,5’i temel eğitim düzeyindedir. Araştırmaya katılan yetişkin ve yaşlı yetişkinlerin ortalama AHBÖ toplam puanı 16,97 (2,47)’dir. Araştırmaya katılan yetişkin ve yaşlı yetişkinlerin ortalama STIGMA-AH toplam puanı 21,05 (3,69)’dir.

Sonuç: Türk yetişkinleri ve yaşlı yetişkinler arasında hem genel AH hem de alt boyutları konusunda ciddi bilgi boşlukları dikkat çekmektedir. AH ile ilgili damgalanma düzeyi hem toplamda hem de tüm alt boyutlarda yüksektir. Bu çalışmada AD bilgisi ile damgalanma arasında anlamlı bir ilişki bulunamamıştır.

Anahtar Kelimeler

Alzheimer Hastalığı (AH), Demans, Bilgi, Damgalanma, Yetişkinler

Determination of Alzheimer’s Disease-Related Knowledge and Stigma Levels of Adult Individuals

Öz

Aim: In Türkiye, Alzheimer’s disease (AD) and related dementia (ADRD) are among the diseases that should be addressed as a priority in terms of public health. What is known about the level of AD awareness and stigma related AD, especially among Turkish adults, is insufficient. The contribution of these two important factors to the disease burden and their impact on case finding and treatment effectiveness are unknown. In this regard, the aim of the study is to determine the knowledge and stigma levels of adults and older adults regarding AD.

Materials and Methods: A descriptive and analytical design was used. A total of 888 adult and older adult individuals participated in the study. Data were collected with a questionnaire, Alzheimer’s Disease Knowledge Scale (ADKS) and Perceived Stigma Against AD Survey (STIGMA-AD).

Results: The average age of the participants is 49.75 (8.89), 85.7% are between the ages of 40-59, 64.1% are women, 60.8% are married, and 51.5% are at basic education level. The average ADKS total score of adults and older adults participating in the study is 16.97 (2.47). The average STIGMA-AD total score of adults and older adults participating in the study is 21.05 (3.69).

Conclusion: Serious knowledge gaps have been noted among Turkish adults and older adults in both general AD and its sub-dimensions. The level of AD-related stigma is high both in total and in all sub-dimensions. In this study, no significant relationship was found between AD knowledge and stigma.

Anahtar Kelimeler

Alzheimer’s Disease (AD), Dementia, Knowledge, Stigma, Adults

Kaynakça

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