Çölyak Hastası Çocukların Hastalıklarına Yönelik Tutumları ve Etkileyen Faktörler

Yıl 2022, Cilt: 11 Sayı: 4, 1466 - 1473, 22.12.2022

Fetih Bişgin , Selen Özakar Akça , Ahu Pınar Turan

https://doi.org/10.37989/gumussagbil.976122

Cited By: 1

Öz

Bu çalışma ile 9-17 yaş aralığında çölyak hastası çocukların hastalıklarına yönelik tutumlarının belirlenmesi amaçlanmıştır. Bu araştırma, tanımlayıcı ve kesitsel olup, İç Anadolu Bölgesinde bir ilde bulunan bir Eğitim ve Araştırma Hastanesi Pediatrik Gastroenteroloji Polikliniğinde yapılmıştır. Araştırma, 01 Mart 2019-01 Mart 2020 tarihleri arasında gastroenteroloji polikliniğine başvuran, en az altı aydır çölyak hastası olan, kendisi ve ebeveyni çalışmaya katılmayı kabul eden 54 çocuk ile gerçekleştirilmiştir. Araştırma verileri “Tanıtıcı Bilgi Formu” ve “Çocuğun Kendi Hastalığına Yönelik Tutumu Ölçeği” (ÇKHYTÖ) kullanılarak toplanmıştır. Araştırma verileri uygun istatistiksel analizlerle değerlendirilmiştir. Araştırmaya katılan çölyak hastası çocukların yaş ortalaması 13,09±2,68’dir. Çocukların ailelerinin %55,6’sının glutensiz gıdalara ulaşmada/hazırlamada zorlandığı belirlenmiş olup, ÇKHYTÖ puan ortalaması 2,88±0,71’dir. Araştırmadaki çocukların tanı alma zamanları, aile desteğini yeterli görme, glutensiz diyete uyma ve glutensiz diyeti uygulamakta zorlanma durumları ile ÇKHYTÖ puan ortalamaları arasındaki fark anlamlıdır (p<0,05). Araştırmada, çölyak hastası olan çocuklar kendi hastalıklarına yönelik olumsuz tutum içindedirler. Çölyak hastası çocukların hastalıklarına ilişkin olumlu tutum edinmeleri ve psikososyal destek alarak farkındalık kazanmaları için pediatri hemşirelerinin eğitilmeleri uygun olacaktır.

Anahtar Kelimeler

Çocuk, Çölyak hastalığı, Hemşire, Tutum

Destekleyen Kurum

Yok

Proje Numarası

Yok

Attitude of Children With Celliac Disease and The Factors Affecting It

Öz

With this study, it is aimed to determine the attitudes of children aged 9-17 towards their condition, celiac disease.This descriptive and cross-sectional study was conducted in a Pediatric Gastroenterology Policlinic of a Training and Research Hospital in a province in the Central Anatolia Region. The study was carried out with 54 children who applied to the gastroenterology clinic between 01 March 2019-01 March 2020, who have had celiac disease for at least six months and whose parents agreed to participate in the study. The research data were collected by using the "Introductory Information Form" and the "Child Attitude Towards Ilness Scale" (CATIS). Research data evaluated with appropriate statistical analyzes.The average age of children with celiac disease who participated in the study was 13.09±2.68. It was determined that 55,6% of the families of the children had difficulties in reaching/preparing gluten-free foods, and the mean score of the CATIS is 2.88±0,71. The difference between the mean scores of the CATIS was found significant that varies based on, the time of diagnosis, adequate family support, compliance with gluten-free diet and difficulty in implementing gluten-free diet (p<0.05).Children diagnosed with Celiac disease have a negative attitude towards their own diseases. It would be appropriate to train pediatric nurses so that children with celiac disease acquire a positive attitude towards their disease and gain awareness by receiving psychosocial support.

Anahtar Kelimeler

Child, Celiac disease, Nurse, Attitude

Proje Numarası

Yok

Kaynakça

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