Serebral Palsili Bir Bireyde İnterdisipliner Habilitasyon Yaklaşımı: Olgu Sunumu-Çuha Modeli

Yıl 2021, , 15 - 26, 30.04.2021

Ayşen Köse , Ayşın Noyan Erbaş , Kübra Seyhan Bıyık , Esra Acar Şengül , Önal İncebay , Zeynep Çelik , Semra Şahin , Filiz Aslan , Esra Yücel , Esra Akı , Mintaze Kerem Günel

https://doi.org/10.21020/husbfd.784012

Öz

Amaç: Bu çalışmada, Hacettepe Üniversitesi Çocuklarda Habilitasyon Uygulama ve Araştırma Merkezi (ÇUHA) deseni çerçevesinde Serebral Palsi (SP) tanısı olan, çok engelli bir olgunun multidisipliner bir ekip olan ÇUHA uzmanları tarafından değerlendirilmesi ve re/habilitasyon sürecinin planlanması amaçlanmıştır. Gereç ve Yöntem: Hastanın standardize ve standardize olmayan yöntemler ile beş farklı (fizyoterapi ve rehabilitasyon, odyoloji, ergoterapi, çocuk gelişimi ve dil - konuşma terapisi) alanda değerlendirmesi tamamlanmıştır. Vakanın değerlendirme sonuçları neticesinde kanıta dayalı tedavi planı sunulmuştur. Bulgular: SP tanılı olgunun birçok alanda müdahaleye ihtiyaç duyduğu ve bulgulara dayanarak sürecin multidisipliner bir ekip tarafından yürütülmesi gerektiği gözlenmiştir. Sonuç: Bu çalışma, SP’li bireylerin tanı ve tedavi süreçlerinde yer alması gereken sağlık profesyonellerinin ve interdisipliner çalışmanın önemini vurgulaması açısından oldukça önemlidir.

Anahtar Kelimeler

Serebral Palsi, Re/habilitasyon, Müdahale, Multidisipliner/İnterdisipliner Çalışma

Cuha Model Approach To An Individual With Cerebral Palsy: A Case Report-Cuha Model

Öz

Objectives: In this study, a child with a diagnosis of quadriparetic cerebral palsy (CP) was assessed by an interdisciplinary team, within the framework of Hacettepe University Child Habilitation Application and Research Center (ÇUHA). A detailed treatment plan was developed for the re/habilitation process. Materials and Methods: The evaluation of the child was completed via standardized and non-standardized methods in five different areas (physiotherapy and rehabilitation, audiology, ergotherapy, child development and speech therapy). Based on the results, an evidence based treatment plan was designed. Results: The results show that a child with a diagnosis of quadriparetic CP needs intervention in many areas and not only the assesment but also the intervention procedure should be carried out by an interdisciplinary team. Conclusion: This study is very important that it emphasizes the importance of interdisciplinary work of healthcare professionals in cases of cerebral palsy.

Anahtar Kelimeler

Cerebral Palsy,, Re/habilitation, Intervention, Multidisciplinary/Interdisciplinary study

Kaynakça

• Armstrong, R. W. (2005). Definition and classification of cerebral palsy. Developmental Medicine and Child Neurology, 47, 571-576.
• Ashwal, S., Russman, B. S., Blasco, P. A., Miller, G., Sandler, A., Shevell, M., & Stevenson, R. (2004). Practice parameter: diagnostic assessment of the child with cerebral palsy: report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society. Neurology, 62(6), 851-863.
• Bartlett, D. J., & Palisano, R. J. (2000). A multivariate model of determinants of motor change for children with cerebral palsy. Physical Therapy, 80(6), 598-614.
• Bax, M. C. (1964). Terminology and classification of cerebral palsy. Developmental Medicine & Child Neurology, 6(3), 295-297.
• Bax, M., Goldstein, M., Rosenbaum, P., Leviton, A., Paneth, N., Dan, B., Jacobsson and Damiano, D. (2005). Proposed definition and classification of cerebral palsy, April 2005. Developmental medicine and child neurology, 47(8), 571-576.
• Beckung, E. and Hagberg, G. (2002). Neuroimpairments, activity limitations, and participation restrictions in children with cerebral palsy. Developmental medicine and child neurology, 44(5), 309-316.
• Cans, C., De-la-Cruz, J. and MERMET, M., 2008. Epidemiology of cerebral palsy. Paediatrics and Child Health, 18, 393–398.
• Dahl M, Thomessen M, Rasmussen M, Selberg T. Feeding and nutritional characteristics in children with moderate or severe cerebral palsy. Acta Paediatr 1996; 85: 697–701.
• El, Ö., Peker, Ö., Bozan, Ö., Berk, H. & Koşay, C. (2007). Serebral Palsi Hastalarının Genel Özellikleri. Dokuz Eylül Üniversitesi Tıp Fakültesi Dergisi. 21(2), 75-80.
• Fung EB, Samson-Fang L, Stallings VA, Conaway M, Liptak G, Henderson RC, et al. Feeding dysfunction is associated with poor growth and health status in children with cerebral palsy. J Am Diet Assoc 2002; 102: 361–73.
• Hacettepe Üniversitesi Çocuklarda Habilitasyon Uygulama ve Araştırma Merkezi. (2015). Retrieved 24 April 2020, from http://www.cuha.hacettepe.edu.tr/amac.shtml.
• Hacettepe Üniversitesi Çocuklarda Habilitasyon Uygulama ve Araştırma Merkezi. (2015). Retrieved 24 April 2020, from http://www.cuha.hacettepe.edu.tr/yonetmelik.pdf.
• Himmelmann, K. and UVEBRANT, P., 2014. The panorama of cerebral palsy in Sweden. XI. Changing patterns in the birth-year period 2003–2006. Acta Paediatrica, International Journal of Paediatrics, 103, 618–624.
• Howle, J. M. (2002). Neuro-developmental treatment approach: theoretical foundations and principles of clinical practice. Laguna Beach, Calif.: NeuroDevelopmental Treatment Association.
• Kirby, R. S., Wingate, M. S., Van Naarden Braun, K., Doernberg, N. S., Arneson, C. L., Benedict, R. E., Mulvihill, B., Durkin, M. S., Fitzgerald, R. T., Maenner, M. J., Patz, J. A. and Yeargin-Allsop, M., 2011. Prevalence and functioning of children with cerebral palsy in four areas of the United States in 2006: a report from the Autism and Developmental Disabilities Monitoring Network. Research in Developmental Disabilities, 32, 462–469.
• Linsell L, Malouf R, Morris J, et al. Prognostic factors for cerebral palsy and motor impairment in children born very preterm or very low birthweight: a systematic review. Dev Med Child Neurol 2016;58(6):554–69.
• Nordberg, A., Miniscalco, C., Lohmander, A., & Himmelmann, K. (2013). Speech problems affect more than one in two children with cerebral palsy: S wedish population‐based study. Acta paediatrica, 102(2), 161-166.
• Novak, I., Hines, M., Goldsmith, S., & Barclay, R. (2012). Clinical prognostic messages from a systematic review on cerebral palsy. Pediatrics, 130(5), e1285-e1312.
• Novak I, Morgan C, Adde L, et al. Early, accurate diagnosis and early intervention in cerebral palsy: advances in diagnosis and treatment. JAMA Pediatr 2017. https://doi.org/10.1001/jamapediatrics.2017.1689.
• Odding, E., Roebroeck, M. E., & Stam, H. J. (2006). The epidemiology of cerebral palsy: incidence, impairments and risk factors. Disability and rehabilitation, 28(4), 183-191.
• Pellegrino, L. (2007). Cerebral palsy. In M. L. Batshaw, L., Pellegrino, & N. J. Roizen (Eds.), Children with disabilities (6th ed., pp. 387–408). Baltimore, MD: Brookes.
• Pruitt, D. W., & Tsai, T. (2009). Common medical comorbidities associated with cerebral palsy. Physical Medicine and Rehabilitation Clinics, 20(3), 453-467.
• Reid, S. M., Carlin, J. B. and Reddihough, D. S., 2011. Rates of cerebral palsy in Victoria, Australia, 1970 to 2004: Has there been a change? Developmental Medicine and Child Neurology, 53, 907–912.
• Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., & Bax, M. (2007). A report: the definition and classification of cerebral palsy. Dev Med Child Neurol, 109, 8-14.
• Schenk‐Rootlieb, A. J. F., Van Nieuwenhuizen, O., Van der Graaf, Y., Wittebol‐Post, D., & Willemse, J. (1992). The prevalence of cerebral visual disturbance in children with cerebral palsy. Developmental Medicine & Child Neurology, 34(6), 473-480.
• Serdaroǧlu, A., Cansu, A., Özkan, S. ve Tezcan, S. (2006). Prevalence of cerebral palsy in Turkish children between the ages of 2 and 16 years. Developmental Medicine and Child Neurology, 48(6), 413-416.
• Stallings VA, Charney EB, Davies JC, Cronk CE. Nutritionrelated growth failure of children with quadriplegic cerebral palsy. Dev Med Child Neurol 1993; 35: 126–38.
• Weir, F. W., Hatch, J. L., McRackan, T. R., Wallace, S. A., & Meyer, T. A. (2018). Hearing loss in pediatric patients with cerebral palsy. Otology & Neurotology, 39(1), 59-64.
• Workinger, M. (2005). Cerebral palsy resource guide for speech-language pathologists. Clifton Park: N.Y.
• Yeargin-Allsopp, M., Braun, K. V. N., Doernberg, N. S., Benedict, R. E., Kirby, R. S., and Durkin, M. S. (2008). Prevalence of cerebral palsy in 8-year-old children in three areas of the United States in 2002: a multisite collaboration. Pediatrics, 121(3), 547-554.