Enhancing Quality of Life for Children with Intellectual and Developmental Disabilities

Yıl 2020, , 33 - 41, 20.06.2020

Erin Snapp , Leah Ketcheson Jeffrey Martin Erin Centeio

https://doi.org/10.33438/ijdshs.713634

Öz

Background: Quality of life (QOL) is a subjective appraisal of life conditions. Disabilities often decrease QOL for individuals, due to potential physical, cognitive, and social limitations. Children with intellectual and developmental disabilities (IDD) have delayed fundamental motor skills (FMS) and less physical activity compared to neurotypical peers resulting in lower QOL.
Objectives/Hypothesis: In the current study we evaluated the impact of three FMS interventions over 18 months on QOL for 10 children with IDD.
Methods: Using the Pediatric Quality of Life Scale 4.0 we measured physical, social, emotional, and school functioning QOL. Visual analysis was used to evaluate the group means of each subscale across six time points, revealing a trend toward improved QOL for all 4 QOL subscales.
Results: Emotional and social function had the largest improvements. This study addresses the need for longitudinal research on how FMS interventions can enhance QOL for children with IDD.
Conclusions: Community based programs focused on FMS can help improved QOL for children with IDD.

Anahtar Kelimeler

fundamental motor skills, visual analysis, longitudinal research

Destekleyen Kurum

Wayne State University

Kaynakça

• American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.
• Başgül, Ş. S., Üneri, Ö. Ş., & Çakın-Memik, N. (2011). Parents' perception of the quality of life of children with intellectual disabilities. Turkish Journal of Pediatrics, 53, 541-546
• Bishop, J. C., & Pangelinan, M. (2018). Motor skills intervention research of children with disabilities. Research in Developmental Disabilities, 74, 14-30.
• Bossink, L. W., van der Putten, A. A., & Vlaskamp, C. (2017). Understanding low levels of physical activity in people with intellectual disabilities: A systematic review to identify barriers and facilitators. Research in Developmental Disabilities, 68, 95-110.
• Boyle, C. A., Boulet, S., Schieve, L. A., Cohen, R. A., Blumberg, S. J., Yeargin-Allsopp, M., ... & Kogan, M. D. (2011). Trends in the prevalence of developmental disabilities in US children, 1997–2008. Pediatrics, 127, 1034-1042.
• Esposito, P. E., MacDonald, M., Hornyak, J. E., & Ulrich, D. A. (2012). Physical activity patterns of youth with Down syndrome. Intellectual and Developmental Disabilities, 50, 109-119.
• Feeney, R., Desha, L., Ziviani, J., & Nicholson, J. M. (2012). Health-related quality-of-life of children with speech and language difficulties: A review of the literature. International Journal of Speech-Language Pathology, 14, 59-72.
• Felce, D., & Perry, J. (1995). Quality of life: Its definition and measurement. Research in Developmental Disabilities, 16, 51-74.
• Gregor, S., Bruni, N., Grkinic, P., Schwartz, L., McDonald, A., Thille, P., ... & Jachyra, P. (2018). Parents’ perspectives of physical activity participation among Canadian adolescents with Autism Spectrum Disorder. Research in Autism Spectrum Disorders, 48, 53-62.
• Guyatt, G. H., Feeny, D. H., & Patrick, D. L. (1993). Measuring health-related quality of life. Annals of Internal Medicine, 118, 622-629.
• Johnson, C. C. (2009). The benefits of physical activity for youth with developmental disabilities: a systematic review. American Journal of Health Promotion, 23, 157-167.
• Ketcheson, L., Hauck, J., & Ulrich, D. (2017). The effects of an early motor skill intervention on motor skills, levels of physical activity, and socialization in young children with autism spectrum disorder: A pilot study. Autism, 21, 481-492.
• Kose, S., Erermis, S., Ozturk, O., Ozbaran, B., Demiral, N., Bildik, T., & Aydin, C. (2013). Health Related Quality of Life in children with Autism Spectrum Disorders: The clinical and demographic related factors in Turkey. Research in Autism Spectrum Disorders, 7, 213-220.
• Lau, K. M., Chow, S. M., & Lo, S. K. (2006). Parents’ perception of the quality of life of preschool children at risk or having developmental disabilities. Quality of Life Research, 15, 1133-1141.
• Memari, A. H., Panahi, N., Ranjbar, E., Moshayedi, P., Shafiei, M., Kordi, R., & Ziaee, V. (2015). Children with autism spectrum disorder and patterns of participation in daily physical and play activities. Neurology Research International, 2015, 1-7.
• Muldoon, M. F., Barger, S. D., Flory, J. D., & Manuck, S. B. (1998). What are quality of life measurements measuring?. BMJ, 316, 542-545.
• Murray, C. B., Holmbeck, G. N., Ros, A. M., Flores, D. M., Mir, S. A., & Varni, J. W. (2014). A longitudinal examination of health-related quality of life in children and adolescents with spina bifida. Journal of Pediatric Psychology, 40, 419-430.
• Penedo, F. J., & Dahn, J. R. (2005). Exercise and well-being: a review of mental and physical health benefits associated with physical activity. Current Opinion in Psychiatry, 18, 189-193.
• Pickard, A. S., & Knight, S. J. (2005). Proxy evaluation of health-related quality of life: a conceptual framework for understanding multiple proxy perspectives. Medical Care, 43, 493-499.
• Potvin, M. C., Snider, L., Prelock, P. A., Wood-Dauphinee, S., & Kehayia, E. (2015). Health-related quality of life in children with high-functioning autism. Autism, 19, 14-19.
• Robinson, L. E., Stodden, D. F., Barnett, L. M., Lopes, V. P., Logan, S. W., Rodrigues, L. P., & D’Hondt, E. (2015). Motor competence and its effect on positive developmental trajectories of health. Sports Medicine, 45, 1273-1284.
• Robinson, L. E., Stodden, D. F., Barnett, L. M., Lopes, V. P., Logan, S. W., Rodrigues, L. P., & D’Hondt, E. (2015). Motor competence and its effect on positive developmental trajectories of health. Sports Medicine, 45, 1273-1284.
• Stahmer, A., Suhrheinrich, J., Reed, S., Bolduc, C., & Schreibman, L. (2011). Classroom pivotal response teaching: A guide to effective implementation. Guliford Press: New York, NY.
• Strong, W. B., Malina, R. M., Blimkie, C. J., Daniels, S. R., Dishman, R. K., Gutin, B., ... & Rowland, T. (2005). Evidence based physical activity for school-age youth. The Journal of Pediatrics, 146, 732-737.
• Tavakol, M., & Dennick, R. (2011). Making sense of Cronbach's alpha. International Journal of Medical Education, 2, 53-55. T yler, K., MacDonald, M., & Menear, K. (2014). Physical activity and physical fitness of school-aged children and youth with autism spectrum disorders. Autism Research and Treatment, 2014. 1-6.
• Upton, P., Lawford, J., & Eiser, C. (2008). Parent–child agreement across child health-related quality of life instruments: a review of the literature. Quality of Life Research, 17, 895-913.
• US Department of Health and Human Services. (2018). Physical Activity Guidelines for Americans, 2nd edition. Washington, DC: US Department of Health and Human Services.
• Uzark, K., Jones, K., Burwinkle, T. M., & Varni, J. W. (2003). The Pediatric Quality of Life Inventory™ in children with heart disease. Progress in Pediatric Cardiology, 18, 141-149.
• Varni, J. W., Seid, M., & Kurtin, P. S. (1998). Pediatric quality of life inventory version 4.0. Mapi Research Institute: Lyon, France.
• Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Medical Care, 39, 800-812.
• Viecili, M. A., & Weiss, J. A. (2015). Reliability and validity of the Pediatric Quality of Life Inventory with individuals with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 120, 289-301.
• Wallander, J. L., Schmitt, M., & Koot, H. M. (2001). Quality of life measurement in children and adolescents: issues, instruments, and applications. Journal of Clinical Psychology, 57, 571-585.
• Warburton, D. E., Nicol, C. W., & Bredin, S. S. (2006). Health benefits of physical activity: the evidence. Cmaj, 174(6), 801-809.Wood-Dauphinee, S. (1999). Assessing quality of life in clinical research: from where have we come and where are we going?. Journal of Clinical Epidemiology, 52, 355-363.
• World Health Organization. (1948). Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 19-22 June, 1946; signed on 22 July 1946 by the representatives of 61 States (Official Records of the World Health Organization, no. 2, p. 100) and entered into force on 7 April 1948. http://www. who. int/governance/eb/who_constitution_en. pdf.