Determining The Views and Needs Of Mothers Having A Baby With A Developmental Disability Over The Process They Experience After Diagnosis

Yıl 2015, Cilt: 7 Sayı: 1, 97 - 128, 15.07.2015

Özlem Gözün Kahraman , Asya Çetin

https://doi.org/10.20489/intjecse.34518

Öz

Earliness principle is essential in special education. Particularly the first three years is of critical importance in the developmental process. Called as the babyhood and early childhood, this period is regarded as a period which has the biggest openness to learning and where all developmental fields have their bases. Early intervention services to be given to babies having a developmental disability in this significant developmental period will provide the baby with realizing the potential the baby has at the highest level and offer very importance services to support their development. The services to be given in this period are planned by paying attention to both the baby and the family. It is necessary for the parents to determine their interaction with the children, family structure, their emotional status, sources and needs in order to provide the participation children of parents being affected by incapability into education and increase it. In order to determine the needs of parents, it is required that the problems experienced by them should be determined from the time when the family learn they have a child being affected by incapability onwards. The researches carried out to determine the needs of parents show that parents have information needs, supportive needs, being able to explain the status of the child, social services, economic needs, needs with regard to the running of the family and the needs regarding the education of the child (Varol, 2006).

The purpose of the study was to determine the views of mothers of the babies with a developmental disability over the process they experience and their needs. The working group was comprised of 8 mothers of children with a developmental disability in 0-2 age group. The data of the study was gathered through semi-structured interview technique, one of the data collection methods. The mothers were asked 9 open-ended questions and the sub-questions of them and the responses were recorded with a recording device. The interviews took 30-45 minutes. The analysis of data gathered through interviews were made through descriptive analysis technique. The findings were analyzed paying attention to the literature and other researches. 

Anahtar Kelimeler

Developmental disability; babies; needs

Kaynakça

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