Experiences of Families of children with Cancer Regarding support sources and coping strategies

Yıl 2021, Cilt: 22 Sayı: 2, 1779 - 1805, 31.08.2021

Feyruz Usluoglu , Meral Atıcı

https://doi.org/10.17679/inuefd.913012

Öz

The purpose of this study is to investigate views of parents and siblings of children with cancer whose treatment is continuing about family support sources and individual coping strategies. In line with this purpose, face to face interviews were conducted with 24 parents and 12 siblings from 12 families. Data were analyzed through inductive content analysis approach. Themes and sub-themes that formed support sources and coping strategies were identified according to the analyses results. Accordingly, support sources were composed of the themes such as internal family strengths, extended family support, health team, social support, workplace support, and support from the institutions and organizations. Coping strategies included themes such as appraisal-focused, problem-focused, and emotion-focused themes. In conclusion, the present study revealed important clues about planning protective and supportive interventions for the families in a way to include medical health care providers.

Anahtar Kelimeler

Childhood cancer, resilience, coping, family

Destekleyen Kurum

Cukurova University of Scientific Research Projects Coordination Unit

Proje Numarası

SDK-2016-5608

Teşekkür

Authors would like to thank all of the participants in this study and the thesis monitoring committee's members.

Kanser Hastası Çocuğu Olan Ailelerin Destek Kaynakları ve Başa Çıkma Stratejileri

Öz

Bu araştırmanın amacı tedavisi devam eden kanser hastası çocukların anne, baba ve kardeşlerinin aile destek kaynakları ve bireysel başa çıkma stratejileri konusundaki görüşlerini incelemektir. Bu amaç için ölçüt örneklemeyle belirlenen, 12 aileden 24 ebeveyn ve 12 kardeş ile yüz yüze görüşmeler gerçekleştirilmiştir. Veriler tümevarım yoluyla ve içerik analizi yaklaşımıyla analiz edilmiştir. Analiz sonuçlarına göre destek kaynakları ve başa çıkma stratejilerini oluşturan tema ve alt temalar belirlenmiştir. Buna göre destek kaynakları; aile içi güçler, geniş aile desteği, sağlık ekibi, toplumsal destek, iş yeri desteği ve kurum-kuruluşların desteği temalarından oluşmuştur. Başa çıkma stratejileri ise değerlendirme-odaklı, problem-odaklı ve duygu-odaklı başa çıkma temalarını içermektedir. Sonuç olarak bu çalışma, ailelere yönelik koruyucu ve destekleyici müdahalelerin tıbbi sağlık hizmet veren profesyonelleri de kapsayacak şekilde planlanması konusunda önemli ipuçları ortaya koymuştur.

Anahtar Kelimeler

Çocukluk çağı kanseri, psikolojik dayanıklılık, başa çıkma, aile

Proje Numarası

SDK-2016-5608

Kaynakça

• Beltrao, M.R. L, Vasconcelos, M.G., Pontens, C.M.,& Albuquerque, M.C.(2007). Childhood cancer: maternal perceptions and strategies for coping with diagnosis. J Pediatr (Rio J), 83(6): 552-566. http://dx.doi.org/10.1590/S0021-75572007000800014
• Birol, L., & Akdemir, N. (2005). İç hastalıkları ve hemşirelik bakımı. Sistem Ofset Baskı.
• Brody, A. C., & Simmons, L. A. (2007). Family resilience during childhood cancer: the father’s perspective. J Pediatr Oncol Nurs, 24(3): 152-165. https://doi.org/10.1177/1043454206298844
• D’Urso, A., Mastroyannopoulou, K.,& Kirby, A.(2017). Experiences of posttraumatic growth in siblings of children with cancer. Clin Child Psychol Psychiatry, 22(2): 301–317. https://doi.org/10.1177/1359104516660749
• Dörnyei, Z.(2007). Research methods in applied linguistics. Oxford. Folkman, S.(2008). The case for positive emotions in the stress process. Anxiety Stress Coping, 21(1): 3-14. https://doi.org/10.1080/10615800701740457
• Giammona, A. J., & Malek, D.M.(2002). The psychological effect of childhood cancer on families. Pediatr Clin North Am., 49(5): 1063−1081. https://doi.org/10.1016/s0031-3955(02)00036-6
• Grootenhuis, M. A.,& Last, B. F.(1997). Adjustment and coping by parents of children with cancer: a review of the literature. Support Care Cancer, 5(6): 466-484. https://doi.org/10.1007/s005200050116
• Guba, E. G.,& Lincoln, Y. S.(1982). Epistemological and methodological bases of naturalistic inquiry. Educational Communication and Technology, 30( 4): 233-252. ISSN 0148-5806
• Hamama, R., Ronen, T.,& Feigin, R.(2000). Self-control, anxiety, and loneliness in siblings of children with cancer. Soc Work Health Care. 31(1): 63-83. https://doi.org/10.1300/J010v31n01_05
• Hamre, M. R, Williams, J., Chuba, P., Bhambhani, K., Ravindranath, Y., & Severson, R. K.(2003). Early deaths in childhood cancer. Pediatr Blood Cancer, 34(5): 343–347. https://doi.org/10.1002/(SICI)1096-911X(200005)34:5<343::AID-MPO5>3.0.CO;2-B
• Jones, B., Volker, D., Vinajeras, Y., Butros, L., Fitchpatrick, C., & Rosetto, K. (2010). The meaning of surviving cancer for Latino adolescents and emerging young adults. Cancer Nurs, 33(1): 74–81. doi: 10.1097/NCC.0b013e3181b4ab8f
• Lakkis, N. A., Khoury, J. M., Mahmassani, D. M., Ramia, M. S., & Hamadeh, G. N. (2016). Psychological distress and coping strategies in parents of children with cancer in Lebanon. Psychooncology, 25 ( 4): 361-480. https://doi.org/10.1002/pon.3934
• Lazarus, R. S.,& Folkman, S. (1984). Stress, appraisal and coping. Springer. McCubbin, M., Balling, K., Possin, P., Frierdich, S., & Bryne, B. (2002). Family resiliency in childhood cancer. Fam Relat, 51(2): 103−111. https://doi.org/10.1177/1043454206298844
• Moustakas, C. (1994). Phenomenological research methods. Thousand Oaks: Sage.
• Murphy, B. L. M., Flowers, S., McNamara, K. A., & Young-Saleme, T. (2008). Fathers of children with cancer: involvement, coping, and adjustment. J Pediatr Health Car, 22(3): 182-9. https://doi.org/10.1016/j.pedhc.2007.06.003
• O’Leary, M., Krailo, M., Anderson, J. R., & Reaman, G. H. (2008). Progress in childhood cancer: 50 years of research collaboration, a report from the children’s oncology group. Semin Oncol, 35(5): 484–93. https://doi.org/10.1053/j.seminoncol.2008.07.008
• Patterson, J. M.,& Garwick, A.W. (1994). The impact of chronic illness on families: a family systems perspecttive. Ann Behav Med, 16(2): 131-142. https://doi.org/10.1093/abm/16.2.131
• Patterson, J. M., Holm, K. E., & Gurney, J. G.(2004). The impact of childhood cancer on the family: a qualitative analysis of strains, resources, and coping behaviors. Psychooncology, 13(6): 390–407. https://doi.org/10.1002/pon.761
• Patterson, J. M.(1988). Families experiencing stress: I. The Family Adjustment and Adaptation Response Model: II. Applying the FAAR Model to health-related issues for intervention and research. Fam Syst Med, 6(2): 202-237. https://doi.org/10.1037/h0089739
• Patterson, J. M. (2002). Integrating family resilience and family stress theory. J Marriage Fam, 64(2): 349–360. https://doi.org/10.1111/j.1741-3737.2002.00349.x
• Prchal, A., & Landolt, M. A.(2012). How siblings of pediatric cancer patients experience the first time after diagnosis: A qualitative study. Cancer Nurs, 35(2): 133-140. doi: 10.1097/NCC.0b013e31821e0c59
• Truffino, J. C.(2010). Resilience: an approach to the concept. Rev Psiquiatr Salud, 3(4): 145−151. doi: 10.1016/j.rpsm.2010.09.003
• Wong, M. Y-F.,& Chan, S. W-C.(2006). The qualitative experience of Chinese parents with children diagnosed of cancer. J Clin Nurs, 15(6): 710-717. https://doi.org/10.1111/j.1365-2702.2006.01297.x
• Wright, L. M.,& Leahey, M.(2000). Nurses and families: A guide to family assessment and intervention (3th ed.). Davis.
• Yeh, C-H., Lee, T-T., Chen, M-L., & Li, W. (2000). Adaptational process of parent of pediatric oncology patients. Pediatr Hematol Oncol, 17(2): 119-131. https://doi.org/10.1080/088800100276479
• Yıldırım, A., & Şimşek, H.(2011). Sosyal bilimlerde nitel araştırma yöntemleri (8. Baskı). Seçkin Yayınları.
• Zengin, O., Selçuk, S., Duysak, Y., Soytürk, G., Orbays, E., & Tekin, O. (2012). Kanserli çocuğa sahip ailelerin aşama yaklaşımına göre gösterdikleri tepkiler. J DU Health Sci Inst., 2(1): 1-4. ISSN: 2146-443X2146-443X