Periton Diyalizi Uygulayan Hastaların Deneyimleri: Tanımlayıcı Kalitatif Çalışma

Yıl 2024, Cilt: 17 Sayı: 2, 161 - 175, 30.04.2024

Gizem Göktuna , Gülşah Arslan , Güler Nasuhbeyoğlu

https://doi.org/10.46483/jnef.1468485

Cited By: 1

Öz

Giriş: Periton diyalizi bireylerin tedavi süreçlerini kendilerinin yönettiği bir renal replasman tedavisidir. Bu tedavi sırasında periton diyalizi uygulayan hastalar pek çok deneyim yaşamaktadırlar.

Amaç: Bu çalışma, periton diyalizi alan hastaların deneyimlerini tanımlamayı amaçlamaktadır.

Yöntem: Bu araştırma tanımlayıcı kalitatif bir çalışmadır. Katılımcılarla (n=16) yarı yapılandırılmış görüşmeler ile yüz yüze derinlemesine görüşmeler yapılarak veriler toplanmıştır. Toplanan veriler içerik analizi yöntemi ile incelenmiştir.

Bulgular: Yapılan içerik analizi sonucunda “uyumu etkileyen deneyimler”, “günlük yaşam aktiviteleri” ve “duygusal deneyimler” olmak üzere üç ana tema ortaya çıkmıştır.

Sonuç: Öğrenilen deneyimler sayesinde hemşireler daha bireyselleştirilmiş hasta bakımı verebilirler. Günlük yaşam aktivitelerinde zorlanılan alanlarda düzenlemeler yapılabilir. Hasta bakımında bu deneyimler dikkate alındığında hastanın uyumu kolaylaştırılabilir ve olumsuz duygularla baş etmesine yardımcı olunabilir.

Anahtar Kelimeler

Periton Diyalizi, Hasta Deneyimleri, Hemşirelik, Nitel Araştırma

Experiences of Patients Living with Peritoneal Dialysis: A Descriptive Qualitative Study

Öz

Background: Peritoneal dialysis is a renal replacement therapy in which individuals themselves manage their treatment processes. During this treatment, patients who receive peritoneal dialysis go through a lot of experiences.

Objectives: The study aims to describe the experiences of patients receiving peritoneal dialysis.

Methods: This study used a qualitative descriptive design. In-depth face-to-face interviews with the participants (n = 16) were conducted using semi-structured interviews. Data were analyzed using the content analysis method.

Results: Three main themes emerged as a result of the content analyses: “experiences affecting adaptation”, “daily life activities”, and “emotional experiences”.

Conclusion: Thanks to these learned experiences, nurses can give more individualized patient care. Arrangements can be made in areas that are difficult in daily life activities. Considering these experiences in patient care, they can facilitate the adaptation of the patient and help to cope with negative emotions.

Anahtar Kelimeler

Peritoneal Dialysis, Patients Experiences, Nursing, Qualitative Research

Kaynakça

• Ahmadi, S. M., Jalali, A., & Jalali, R. (2018). Factors associated with the choice of peritoneal dialysis in Iran: Qualitative study. Open Access Macedonian Journal of Medical Sciences, 6(7), 1253-1259.https://doi.org/10.3889/oamjms.2018.255
• Baillie, J., & Lankshear, A. (2015). Patient and family perspectives on peritoneal dialysis at home: Findings from an ethnographic study. Journal of Clinical Nursing, 24(1-2), 222-234. https://doi.org/10.1111/jocn.12663
• Bieber, S. D., Burkart, J., Golper, T. A., Teitelbaum, I., & Mehrotra, R. (2014). Comparative outcomes between continuous ambulatory and automated peritoneal dialysis: A narrative review. American Journal of Kidney Diseases, 63(6), 1027-1037. https://doi.org/10.1053/j.ajkd.2013.11.025
• Bridger, S. (2017). Peritoneal dialysis access management: More than skin deep. Nephrology Nursing Journal, 44(5), 401-409.
• Burla, L., Knierim, B., Barth, J., Liewald, K., Duetz, M., & Abel, T. (2008). From text to codings: intercoder reliability assessment in qualitative content analysis. Nursing Research, 57(2), 113-117.https://doi.org/10.1097/01.NNR.0000313482.33917.7d
• Chen, S. T., Yao, Y., Tseng, Y. S., & Sun, F. K. (2022). Developing a theory to help guide end‐stage renal disease patients to adapt to peritoneal dialysis: A grounded theory study. Journal of Clinical Nursing, 31(1-2), 134-144. https://doi.org/10.1111/jocn.15890
• Covic, A., Bammens, B., Lobbedez, T., Segall, L., Heimbürger, O., Van Biesen, W., Fouque, D., & Vanholder, R. (2010). Educating end-stage renal disease patients on dialysis modality selection: Clinical advice from the European Renal Best Practice (ERBP) Advisory Board. Nephrology Dialysis Transplantation, 25, 1757-1759. https://doi.org/10.1093/ndt/gfq206
• Dahlerus, C., Quinn, M., Messersmith, E., Lachance, L., Subramanian, L., Perry, E., Cole, J., Zhao, J., Lee, C., McCall, M., Paulson, L., & Tentori, F. (2016). Patient perspectives on the choice of dialysis modality: Results from the Empowering Patients on Choices for Renal Replacement Therapy (EPOCH-RRT) Study. American Journal of Kidney Diseases, 68(6), 901–910. https://doi.org/10.1053/j. ajkd.2016.05.010
• Derrett, S., Darmody, M., Williams, S., Rutherford, M., Schollum, J., & Walker, R. (2010). Older peoples’ satisfaction with home‐based dialysis. Nephrology, 15(4), 464-470. https://doi.org/10.1111/j.1440-1797.2010.01286.x
• Duncanson, E., Chur-Hansen, A., & Jesudason, S. (2022). Patient perspectives of coping with automated peritoneal dialysis. Peritoneal Dialysis International, 42(4), 344-352. https://doi.org/10.1177/08968608211043411
• Erlang, A. S., Nielsen, I. H., Hansen, H. O., & Finderup, J. (2015). Patients experiences of involvement in choice of dialysis mode. Journal of Renal Care, 41(4), 260-267. https://doi.org/10.1111/jorc.12141
• Fresenius Medical Care. (2022). Annual report 2022. https://www.freseniusmedicalcare.com/fileadmin/data/com/pdf/Media_Center/Publications/Annual_Reports/FME_Annual_Report_2022_EN.pdf
• Gilbertson, E. L., Krishnasamy, R., Foote, C., Kennard, A. L., Jardine, M. J., & Gray, N. A. (2019). Burden of care and quality of life among caregivers for adults receiving maintenance dialysis: a systematic review. American Journal of Kidney Diseases, 73(3), 332-343. https://doi.org/10.1053/j.ajkd.2018.09.006
• Leung, S. S., & Shiu, A. T. (2007). Experience of Hong Kong patients awaiting kidney transplantation in mainland China. Journal of Clinical Nursing, 16(11c), 341-349. https://doi.org/10.1111/j.1365-2702.2007.02070.x
• Losso, R. L., Minhoto, G. R., & Riella, M. C. (2015). Sleep disorders in patients with end-stage renal disease undergoing dialysis: Comparison between hemodialysis, continuous ambulatory peritoneal dialysis and automated peritoneal dialysis. International Urology and Nephrology, 47(2), 369-375. https://doi.org/10.1007/s11255-014-0860-5
• Manera, K. E., Craig, J. C., Johnson, D. W., &Tong, A. (2018). The power of the patient voice: conducting and using qualitative research to improve care and outcomes in peritoneal dialysis. Peritoneal Dialysis International,38(4), 242-245.https://doi.org/10.3747/pdi.2017.00280
• Mizuno, M., Suzuki, Y., Sakata, F., & Ito, Y. (2016). Which clinical conditions are most suitable for induction of automated peritoneal dialysis? Renal Replacement Therapy, 2(1), 46. https://doi.org/10.1186/ s41100-016-0057-8
• Morton, R. L., Devitt, J., Howard, K., Anderson, K., Snelling, P., & Cass, A. (2010). Patient views about treatment of stage 5 CKD: A qualitative analysis of semistructured interviews. American Journal of Kidney Diseases, 55(3), 431-440. https://doi.org/10.1053/j.ajkd.2009.11.011
• Muringai, T., Noble, H., McGowan, A., & Chamney, M. (2008). Dialysis access and the impact on body image: Role of the nephrology nurse. British Journal of Nursing, 17(6), 362-366. https://doi.org/10.12968/bjon.2008.17.6.28900
• Murray, M. A., Bissonnette, J., Kryworuchko, J., Gifford, W., & Calverley, S. (2013). Whose choice is it? Shared decision making in nephology care. Seminars in Dialysis, 26(2), 169–174. https://doi.org/10.1111/sdi.12056
• Nakamura-Taira, N., Muranaka, Y., Miwa, M., Kin, S., & Hirai, K. (2013). Views of Japanese patients on the advantages and disadvantages of hemodialysis and peritoneal dialysis. International Urology and Nephrology, 45(4), 1145-1158. https://doi.org/10.1007/s11255-012-0322-x
• National Institute for Health and Care Excellence. (2018). Renal replacement therapy and conservative management. https://www.nice.org.uk/guidance/ng107/resources/renal-replacement-therapy-and-conservative-management-pdf-66141542991301
• Öyekçin, D. G., Gülpek, D., Sahin, E. M., & Mete, L. (2012). Depression, anxiety, body image, sexual functioning, and dyadic adjustment associated with dialysis type in chronic renal failure. The International Journal of Psychiatry in Medicine, 43(3), 227-241. https://doi.org/10.2190/PM.43.3.c
• Petersson, I., & Lennerling, A. (2017). Experiences of living with assisted peritoneal dialysis–A qualitative study. Peritoneal Dialysis International, 37(6), 605-612. https://doi.org/10.3747/pdi.2017.00045
• Pugh‐Clarke, K., Read, S. C., & Sim, J. (2017). Symptom experience in non‐dialysis‐dependent chronic kidney disease: A qualitative descriptive study. Journal of Renal Care, 43(4), 197-208. https://doi.org/10.1111/jorc.12208
• Sadala, M. L. A., Miranda, M. G., Lorençon, M., & de Campos Pereira, E. P. (2010). Nurse–patient communication while performing home dialysis: The patients’perceptions. Journal of Renal Care, 36(1), 34-40. https://doi.org/10.1111/j.1755-6686.2010.00135.x
• Salas-Gama, K., Díaz-Gómez, J. M., & Ribas, I. B. (2022). Appropriateness of the dialysis modality selection process: A cross-sectional study. Medicine, 101(42), e31041. http://dx.doi.org/10.1097/MD.0000000000031041
• Sinnakirouchenan, R., & Holley, J. L. (2011). Peritoneal dialysis versus hemodialysis: Risks, benefits, and access issues. Advances in Chronic Kidney Disease, 18(6), 428-432. https://doi.org/10.1053/j.ackd.2011.09.001
• Sitjar-Suñer, M., Suñer-Soler, R., Masià-Plana, A., Chirveches-Pérez, E., Bertran-Noguer, C., & Fuentes-Pumarola, C. (2020). Quality of life and social support of people on peritoneal dialysis: Mixed methods research. International Journal of Environmental Research and Public Health, 17(12), 4240. https://doi.org/10.3390/ijerph17124240
• Süleymanlar, G., Ateş, K., & Seyahi, N. (2020). Registry of the Nephrology, Dialysis and Transplantation in Turkey, Ministry of Health and Turkish Socıety of Nephrology Joint Report. Retrieved from http://www. nefroloji.org.tr/uploads/folders/file/registry_2019.pdf
• Tong, A., Lesmana, B., Johnson, D. W., Wong, G., Campbell, D., & Craig, J. C. (2013). The perspectives of adults living with peritoneal dialysis: Thematic synthesis of qualitative studies. American Journal of Kidney Diseases, 61(6), 873-888. https://doi.org/10.1053/j.ajkd.2012.08.045
• Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349-357. https://doi.org/10.1093/intqhc/mzm042
• Yapa, H. E., Purtell, L., Chambers, S., & Bonner, A. (2020). The relationship between chronic kidney disease, symptoms and health‐related quality of life: A systematic review. Journal of Renal Care, 1-11. https://doi.org/10.1111/jorc.12303
• Yıldırım, A., & Şimşek, H. (2016). Sosyal Bilimlerde Nitel Araştırma Yöntemleri (11th ed.). Seçkin Publishing.
• Yılmaz, M., & Özaltın, G. (2011). The sexual behaviors of patients receiving peritoneal dialysis treatment. Sexuality and Disability, 29, 21-32. https://doi.org/10.1007/s11195-011-9199-3
• Yılmaz, M. (2010). Opinions of unmarried patients receiving peritoneal dialysis treatment about sexuality. Sexuality and Disability, 28, 213-221. https://doi.org/10.1007/s11195-010-9174-4