Çölyak Tanılı Yetişkinlerde Yaşam Kalitesi ve Sağlık Okuryazarlığı Arasındaki İlişki: Kesitsel Bir Çalışma

Yıl 2024, Cilt: 33 Sayı: 2, 108 - 122, 13.09.2024

Mine Yımaz , Yasemin Gümüş Şekerci

https://doi.org/10.17942/sted.1396494

Öz

Amaç: Bu çalışma çölyak hastalarının yaşam kalitesi ve sağlık okuryazarlık düzeyini belirlemeyi ve bu iki kavram arasındaki ilişkiyi incelemeyi amaçlamıştır.
Yöntem: Bu kesitsel çalışma 2023 yılında Türkiye’de Çölyak Derneği’ne kayıtlı 119 yetişkin bireyle yürütüldü. Verilerin toplanmasında tanıtıcı bilgi formu, Çölyak Hastalarında Yaşam Kalitesi Anketi ve Türkiye Sağlık Okuryazarlığı Ölçeği 32 kullanıldı.
Bulgular: Çölyak hastaları için yaşam kalitesi puan ortalaması 75,41±15,29, sağlık okuryazarlık puan ortalaması 25,16±11,23 idi. Katılımcıların sağlık okuryazarlıkları ve yaşam kaliteleri arasında orta düzeyde pozitif yönlü anlamlı bir kolerasyon belirlendi. Sağlık okuryazarlığı yaşam kalitesindeki değişimin %13,0’ını açıkladı. Gluteinsiz beslenmenin; çölyak hastalarının duygusal durumları, endişeleri, sosyal yaşamları ve gastrointestinal belirtilerine yönelik yaşam kalitelerini etkileyebilecek önemli bir faktör olduğu tespit edildi. Çalışma sağlık okuryazarlığını etkileyen sekiz risk faktörünü tanımladı.
Sonuç: Bu çalışma çölyak hastalarının ortalama düzeyin altında yaşam kalitesinin ve sınırlı sağlık okuryazarlığının olduğunu ortaya çıkardı. Çalışmada sağlık okuryazarlığı ile yaşam kalitesi arasında pozitif yönde bir ilişkinin olduğu belirlendi. Hastaların sağlık okuryazarlık düzeyleri arttıkça yaşam kalitelerinin de artabileceği sonucuna ulaşıldı.

Anahtar Kelimeler

Çölyak hastalığı, Hemşirelik, Sağlık okuryazarlığı, Yaşam kalitesi

Etik Beyan

The study was conducted following the principles of the Declaration of Helsinki. This study was approved by the Selcuk University Faculty of Nursing Non-Interventional Clinical Research Ethics Committee (meeting number: 2023/03, decision number: 2023/16). Permission was obtained from the institution where the study was conducted. In addition, the participants were informed about the purpose and procedures of the study and their verbal and written informed consent was obtained before the start of the study.

Proje Numarası

1919B012219116

The Relationship Between Quality of Life and Health Literacy in Adults with Celiac Disease: A Cross-Sectional Study

Öz

Objective: The aim of this study was to determine the quality of life and health literacy of patients with celiac disease and to examine the relationship between these two concepts.
Method: This cross-sectional study was conducted on 119 adults registered with the Celiac Disease Association of Turkey in 2023. Descriptive information form, Celiac Quality of Life Questionnaire and Turkey Health Literacy Scale 32 were used for data collection.
Results: The mean quality of life score for celiac patients was 75.41±15.29 and the mean health literacy score was 25.16±11.23. There was a significant moderate positive correlation between health literacy and quality of life. Health literacy explained 13.0% of the change in quality of life. The gluten-free diet was found to be an important factor that could affect the quality of life of celiac patients in terms of their emotional state, anxiety, social life, and gastrointestinal symptoms. The study identified eight risk factors for health literacy.
Conclusion: This study found that patients with celiac disease have a lower than average quality of life and limited health literacy. The study found that there was a positive relationship between health literacy and quality of life. It was concluded that as patients' health literacy increases, their quality of life may also increase.

Anahtar Kelimeler

celiac disease, health literacy, nursing, quality of life

Etik Beyan

The study was conducted following the principles of the Declaration of Helsinki. This study was approved by the Selcuk University Faculty of Nursing Non-Interventional Clinical Research Ethics Committee (meeting number: 2023/03, decision number: 2023/16). Permission was obtained from the institution where the study was conducted. In addition, the participants were informed about the purpose and procedures of the study and their verbal and written informed consent was obtained before the start of the study.

Destekleyen Kurum

This project was supported by TUBITAK 2209a University Students Research Projects Support Program as project number 1919B012219116.

Proje Numarası

1919B012219116

Teşekkür

The authors would like to thank the Scientific and Technological Research Council of Turkey for providing support. We also thank the participants for their time and effort to participate in this study.

Kaynakça

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