Yıl 2022,
, 99 - 108, 30.08.2022
Gökhan Türker
,
S. Kutalmış Büyük
,
Arzu Uçar Uslu
Kaynakça
- 1. Massenburg BB, Jenny HE, Saluja S, Meara JG, Shrime MG, Alonso N. Barriers to cleft lip and palate repair around the world. Journal of Craniofacial Surgery. 2016;27(7):1741-5.
- 2. Dixon MJ, Marazita ML, Beaty TH, Murray JC. Cleft lip and palate: understanding genetic and environmental influences. Nature Reviews Genetics. 2011;12(3):167-78.
- 3. Derijcke A, Eerens A, Carels C. The incidence of oral clefts: a review. British Journal of Oral and Maxillofacial Surgery. 1996;34(6):488-94.
- 4. Neiswanger K, Mukhopadhyay N, Rajagopalan S, Leslie EJ, Sanchez CA, Hecht JT, et al. Individuals with nonsyndromic orofacial clefts have increased asymmetry of fingerprint patterns. Plos One. 2020;15(3):e0230534.
- 5. Salari N, Darvishi N, Heydari M, Bokaee S, Darvishi F, Mohammadi M. Global prevalence of cleft palate, cleft lip and cleft palate and lip: A comprehensive systematic review and meta-analysis. Journal of Stomatology, Oral and Maxillofacial Surgery. 2021. Online ahead of print.
- 6. Imani MM, Golchin N, Safaei M, Rezaei F, Abbasi H, Sadeghi M, et al. Methylenetetrahydrofolate reductase C677T polymorphism is not associated with the risk of nonsyndromic cleft lip/palate: An updated meta-analysis. Scientific Reports. 2020;10(1):1-13.
- 7. Altuğ AT. Presurgical nasoalveolar molding of bilateral cleft lip and palate infants: an orthodontist’s point of view. Turkish Journal of Orthodontics. 2017;30(4):118.
- 8. Mariano NCR, Sano MN, Curvêllo VP, de Almeida ALPF, Neppelenbroek KH, Oliveira TM, et al. Impact of orofacial dysfunction on the quality of life of adult patients with cleft lip and palate. The Cleft Palate-Craniofacial Journal. 2018;55(8):1138-44.
- 9. Wang M, Meng R, Wang Z, Liu D, Huang H, Kang C, et al. Prevalence of oral clefts among live births in Gansu Province, China. International Journal of Environmental Research And Public Health. 2018;15(2):380.
- 10. Stock NM, Zucchelli F, Hudson N, Kiff JD, Hammond V. Promoting psychosocial adjustment in individuals born with cleft lip and/or palate and their families: current clinical practice in the United Kingdom. The Cleft Palate-Craniofacial Journal. 2020;57(2):186-97.
- 11. Alawi KA, Shaqsi SA, Ghaithi MA. Awareness of Orofacial Clefts in the Sultanate of Oman. The Cleft Palate-Craniofacial Journal. 2021:10556656211024477.
- 12. Turner S, Thomas P, Dowell T, Rumsey N, Sandy J. Psychological outcomes amongst cleft patients and their families. British Journal of Plastic Surgery. 1997;50(1):1-9.
- 13.Wehby G, Cassell CH. The impact of orofacial clefts on quality of life and healthcare use and costs. Oral Diseases. 2010;16(1):3-10.
- 14.Hutchinson K, Wellman MA, Noe DA, Kahn A. The psychosocial effects of cleft lip and palate in non-Anglo populations: a cross-cultural meta-analysis. The Cleft Palate-Craniofacial Journal. 2011;48(5):497-508.
- 15.Shirol S. Sociocultural beliefs and perceptions about cleft lip-palate and their implications in the management,
outcome, and rehabilitation. Journal of Cleft Lip Palate and Craniofacial Anomalies. 2018;5(1):4.
- 16.Shetty V, Thakral A, Sreekumar C. Comparison of early onset nasoalveolar molding with patients who presented for molding up to 1 year of age. Journal of Oral and Maxillofacial Surgery. 2016;74(4):811-27.
- 17.Abid M, Al-Groosh D, Dziedzic A, Abed H. Mothers’ knowledge and experience concerning presurgical orthopedic management for infants with cleft lip and palate. Journal of Orthodontic Science. 2021;10:8.
- 18.Maliha SG, Kantar RS, Gonchar MN, Eisemann BS, Staffenberg DA, Shetye PR, et al. The effects of nasoalveolar molding on nasal proportions at the time of nasal maturity. The Cleft Palate-Craniofacial Journal. 2021;58(3):284-9.
- 19.Grayson BH, Santiago PE, Brecht LE, Cutting CB. Presurgical nasoalveolar molding in infants with cleft lip and palate. The Cleft Palate-Craniofacial Journal. 1999;36(6):486-98.
- 20. Schwarz R, Bhai Khadka S. Reasons for late presentation of cleft deformity in Nepal. The Cleft Palate-Craniofacial Journal. 2004;41(2):199-201.
- 21. Pelchat D, Bisson J, Ricard N, Perreault M, Bouchard J-M. Longitudinal effects of an early family intervention programme on the adaptation of parents of children with a disability. International Journal of Nursing Studies. 1999;36(6):465-77.
- 22. Chan R, McPherson B, Whitehill T. Chinese attitudes toward cleft lip and palate: effects of personal contact. The Cleft Palate-Craniofacial Journal. 2006;43(6):731-9.
Knowledge and Awareness of Individuals in Türkiye about Cleft Lip and Palate
Yıl 2022,
, 99 - 108, 30.08.2022
Gökhan Türker
,
S. Kutalmış Büyük
,
Arzu Uçar Uslu
Öz
Aim: Cleft lip/palate (CL/P) is one of the most common craniofacial congenital anomalies. The aim of this was to evaluate the level of knowledge and perception of individuals in a large sample group in Türkiye about CL/P.
Materials and Methods: A cross-sectional 11-items questionnaire study was performed and was sent to individuals living in Turkey using Google Forms.
Results: A total of 886 participants responded the questionnaire. The rate of Nasoalveolar Molding (NAM)/Feeding Plate knowledge was significantly higher in female (P<0.001). More than half of the participants who had knowledge about NAM/nutritional plate stated that they get information about CL/P from health employers (P<0.001). The results revealed that gender, age, job, knowledge of diagnosis of CL/P before birth, and sources of information about CL/P, were statistically significant independent determinants of NAM/Feeding Plate knowledge (P<0.05).
Conclusions: The knowledge and awareness about CL/P is moderate among participants. Informative seminars should be organized to increase the awareness of the general population about CL/P, and reliable information should be uploaded to the Internet by the professional associations.
Kaynakça
- 1. Massenburg BB, Jenny HE, Saluja S, Meara JG, Shrime MG, Alonso N. Barriers to cleft lip and palate repair around the world. Journal of Craniofacial Surgery. 2016;27(7):1741-5.
- 2. Dixon MJ, Marazita ML, Beaty TH, Murray JC. Cleft lip and palate: understanding genetic and environmental influences. Nature Reviews Genetics. 2011;12(3):167-78.
- 3. Derijcke A, Eerens A, Carels C. The incidence of oral clefts: a review. British Journal of Oral and Maxillofacial Surgery. 1996;34(6):488-94.
- 4. Neiswanger K, Mukhopadhyay N, Rajagopalan S, Leslie EJ, Sanchez CA, Hecht JT, et al. Individuals with nonsyndromic orofacial clefts have increased asymmetry of fingerprint patterns. Plos One. 2020;15(3):e0230534.
- 5. Salari N, Darvishi N, Heydari M, Bokaee S, Darvishi F, Mohammadi M. Global prevalence of cleft palate, cleft lip and cleft palate and lip: A comprehensive systematic review and meta-analysis. Journal of Stomatology, Oral and Maxillofacial Surgery. 2021. Online ahead of print.
- 6. Imani MM, Golchin N, Safaei M, Rezaei F, Abbasi H, Sadeghi M, et al. Methylenetetrahydrofolate reductase C677T polymorphism is not associated with the risk of nonsyndromic cleft lip/palate: An updated meta-analysis. Scientific Reports. 2020;10(1):1-13.
- 7. Altuğ AT. Presurgical nasoalveolar molding of bilateral cleft lip and palate infants: an orthodontist’s point of view. Turkish Journal of Orthodontics. 2017;30(4):118.
- 8. Mariano NCR, Sano MN, Curvêllo VP, de Almeida ALPF, Neppelenbroek KH, Oliveira TM, et al. Impact of orofacial dysfunction on the quality of life of adult patients with cleft lip and palate. The Cleft Palate-Craniofacial Journal. 2018;55(8):1138-44.
- 9. Wang M, Meng R, Wang Z, Liu D, Huang H, Kang C, et al. Prevalence of oral clefts among live births in Gansu Province, China. International Journal of Environmental Research And Public Health. 2018;15(2):380.
- 10. Stock NM, Zucchelli F, Hudson N, Kiff JD, Hammond V. Promoting psychosocial adjustment in individuals born with cleft lip and/or palate and their families: current clinical practice in the United Kingdom. The Cleft Palate-Craniofacial Journal. 2020;57(2):186-97.
- 11. Alawi KA, Shaqsi SA, Ghaithi MA. Awareness of Orofacial Clefts in the Sultanate of Oman. The Cleft Palate-Craniofacial Journal. 2021:10556656211024477.
- 12. Turner S, Thomas P, Dowell T, Rumsey N, Sandy J. Psychological outcomes amongst cleft patients and their families. British Journal of Plastic Surgery. 1997;50(1):1-9.
- 13.Wehby G, Cassell CH. The impact of orofacial clefts on quality of life and healthcare use and costs. Oral Diseases. 2010;16(1):3-10.
- 14.Hutchinson K, Wellman MA, Noe DA, Kahn A. The psychosocial effects of cleft lip and palate in non-Anglo populations: a cross-cultural meta-analysis. The Cleft Palate-Craniofacial Journal. 2011;48(5):497-508.
- 15.Shirol S. Sociocultural beliefs and perceptions about cleft lip-palate and their implications in the management,
outcome, and rehabilitation. Journal of Cleft Lip Palate and Craniofacial Anomalies. 2018;5(1):4.
- 16.Shetty V, Thakral A, Sreekumar C. Comparison of early onset nasoalveolar molding with patients who presented for molding up to 1 year of age. Journal of Oral and Maxillofacial Surgery. 2016;74(4):811-27.
- 17.Abid M, Al-Groosh D, Dziedzic A, Abed H. Mothers’ knowledge and experience concerning presurgical orthopedic management for infants with cleft lip and palate. Journal of Orthodontic Science. 2021;10:8.
- 18.Maliha SG, Kantar RS, Gonchar MN, Eisemann BS, Staffenberg DA, Shetye PR, et al. The effects of nasoalveolar molding on nasal proportions at the time of nasal maturity. The Cleft Palate-Craniofacial Journal. 2021;58(3):284-9.
- 19.Grayson BH, Santiago PE, Brecht LE, Cutting CB. Presurgical nasoalveolar molding in infants with cleft lip and palate. The Cleft Palate-Craniofacial Journal. 1999;36(6):486-98.
- 20. Schwarz R, Bhai Khadka S. Reasons for late presentation of cleft deformity in Nepal. The Cleft Palate-Craniofacial Journal. 2004;41(2):199-201.
- 21. Pelchat D, Bisson J, Ricard N, Perreault M, Bouchard J-M. Longitudinal effects of an early family intervention programme on the adaptation of parents of children with a disability. International Journal of Nursing Studies. 1999;36(6):465-77.
- 22. Chan R, McPherson B, Whitehill T. Chinese attitudes toward cleft lip and palate: effects of personal contact. The Cleft Palate-Craniofacial Journal. 2006;43(6):731-9.