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PARENTS' VIEWS OF THE EFFECT OF COVID-19 ON INDIVIDUALS WİTH SPECIAL NEEDS: THE CASE OF TURKEY

Yıl 2023, , 97 - 120, 02.06.2023
https://doi.org/10.26468/trakyasobed.1169642

Öz

This study investigates the impacts of the COVID-19 pandemic on the lives of individuals with special needs. In the research carried out with phenomenological research design, data were obtained online from 121 parents with children with special needs and live in 14 different cities in Turkey by means of an interview form consisting of open-ended questions developed by researchers. From the content analysis of the data, 8 themes have been reached, namely, education, health, social life, behavioral-emotional adaptation, physical condition, family communication, indoor activities and social supports and needs. According to the findings, parents stated most that during the pandemic process, social lives of children with special needs were restricted and their daily routines were disturbed, they could not benefit efficiently from distance learning, their behavioral problems such as tantrums and harming themselves and others increased, negative physical situations emerged like weight gain / loss and sleep disorders and stress increased in family communication. Parents indicated that they could do indoor activities with their children and that they do not have difficulties in accessing health services for their children. The majority of the parents stated that they needed psychological counseling, distance education services, financial support and also that they received the greatest support from their family members and teachers.

Kaynakça

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COVİD-19'UN ÖZEL GEREKSİNİMLİ BİREYLER ÜZERİNDEKİ ETKİSİNE İLİŞKİN EBEVEYN GÖRÜŞLERİ: TÜRKİYE ÖRNEĞİ

Yıl 2023, , 97 - 120, 02.06.2023
https://doi.org/10.26468/trakyasobed.1169642

Öz

Bu araştırma, COVİD-19 pandemisinin özel gereksinimli bireylerin yaşamlarına etkisi araştırmıştır. Fenomonolojik desen ile yürütülen araştırmada veriler, araştırmacılar tarafından geliştirilen açık uçlu sorulardan oluşan bir çevrimiçi görüşme formuyla Türkiye’nin 14 farklı ilinden özel gereksinimli çocuğu olan 121 ebeveynden toplanmıştır. Verilerin içerik analizi sonucunda eğitim, sağlık, sosyal yaşam, davranışsal-duygusal uyum, fiziksel durum, aile içi iletişim, ev içi aktiviteler, sağlanan sosyal destekler ve ihtiyaçlar olmak üzere 8 temaya ulaşılmıştır. Bulgulara göre ebeveynler, özel gereksinimli çocukların pandemi sürecinde en fazla (a) sosyal yaşamlarının kısıtlandığını, (b) günlük rutinlerinin bozulduğunu, (c) uzaktan eğitimden yeterince verim alamadıklarını, (d) öfke krizleri ile kendine ve başkasına (örn., ebeveynler) zarar verme gibi davranış sorunlarının arttığını, (e) kilo alma/verme ve uyku düzeni bozulması gibi olumsuz fiziksel durumların ortaya çıktığını ve aile içi iletişimde stresin arttığını belirtmişlerdir. Ayrıca, ebeveynler çocukları ile ev içi aktiviteler yapabildiklerini ve çocukları ile ilgili sağlık hizmetlerine erişimde zorluklar yaşamadıklarını ifade etmişlerdir. Ebeveynlerin büyük çoğunluğu psikolojik danışma, uzaktan eğitim hizmetleri ve maddi desteğe ihtiyaç duyduklarını belirtmişlerdir. Son olarak, ebeveynler, en büyük desteği aile üyelerinden ve öğretmenlerden gördüklerini ifade etmişlerdir.

Kaynakça

  • Açıkgöz, Ö., & Günay, A. (2020). The early impact of the Covid-19 pandemic on the global and Turkish economy. Turkish Journal of Medical Sciences, 50(SI-1), 520-526. https://doi.org/10.3906/sag-2004-6
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  • Akdal, D., Baltacı, Ö., & Akbulut, Ö.F. (2021). The examination of the opinions of parents with children who have special needs regarding the distance education process. International Online Journal of Education and Teaching (IOJET), 8(3), 1817-1832.
  • Amaral, D. G., & de Vries, P. J. (2020). COVID-19 and Autism Research: Perspectives from Around the Globe. Autism research : Official Journal of the International Society for Autism Research, 13(6), 844–869. https://doi.org/10.1002/aur.2329
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  • Özgür, H., Polat, G., & Akbulut, S. (2012). Engelli Ayrımcılığı Araştırması ve Engelli Ayrımcılığına Karşı Çözüm Önerileri Raporu. https://www.sabancivakfi.org/i/content/4854_2_Engelli_Ayrimciligi_Arastirmasi_ve_Engelli_Ayrimciligina_Karsi_Cozum_Onerileri_Raporu.pdf
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  • Park, J. H., Kim, Y.S., Koh, Y.J., Song, J., & Leventhal, B. L. (2014). A contrast of comorbid condition and adaptive function between children with Autism Spectrum Disorder from clinical and non-clinical populations. Research in Autism Spectrum Disorders, 8(11), 1471–1481. https://doi.org/10.1016/j.rasd.2014.07.014
  • Parmet, W. E., & Rothstein, M. A. (2018). The 1918 Influenza Pandemic: lessons learned and not—introduction to the special section. American Journal of Public Health, 108(11), 1435–1436. https://doi.org/10.2105/AJPH.2018.304695
  • Patel K. (2020). Mental health implications of COVID-19 on children with disabilities. Asian Journal of Psychiatry, 54, 102273. https://doi.org/10.1016/j.ajp.2020.102273
  • Pavlopoulou G., Wood R., & Papadopoulos C. (2020). Impact of Covid-19 on the experiences of parents and family carers of autistic children and young people in the UK. UCL Research Briefing. https://discovery.ucl.ac.uk/id/eprint/10101297/3/Pavlopoulou_COVID19%20AUTISM%20FINAL%20GP.pdf
  • Petri J. C. M. Embregts , Kim J. H. M. van den Bogaard , Noud Frielink , Moniek A. C. Voermans, Thalen, M. & Jahoda, A. (2020): A thematic analysis into the experiences of people with a mild intellectual disability during the COVID-19 lockdown period. International Journal of Developmental Disabilities, 1-5. https://doi.org/10.1080/20473869.2020.1827214
  • Rezendes, D. L., & Scarpa, A. (2011). Associations between Parental Anxiety/Depression and Child Behavior Problems Related to Autism Spectrum Disorders: The Roles of Parenting Stress and Parenting Self-Efficacy. Autism research and treatment, 2011, 395190. https://doi.org/10.1155/2011/395190
  • Rose, J., Willner, P., Cooper, V., Langdon, P. E., Murphy, G. H., & Stenfert Kroese, B. (2020). The effect on and experience of families with a member who has Intellectual and Developmental Disabilities of the COVID-19 pandemic in the UK: developing an investigation. International Journal of Developmental Disabilities, 1–3. https://doi.org/10.1080/20473869.2020.1764257
  • Sart, Z. H., Barış, S., Sarıışık, Y., & Düşkün, Y. (2016). Engelli çocukların Türkiye’de eğitime erişimi: Durum analizi ve öneriler. http://www.egitimreformugirisimi.org/wp-content/uploads/2017/03/ERG_Engeli-Olan-%C3%87ocuklar%C4%B1n-T%C3%BCrkiyede-E%C4%9Fitime-Eri%C5%9Fimi.pdf.
  • Sani-Bozkurt, S., Bozkus-Genc, G., & Yildiz, G. (2021). Reflections of covid-19 pandemic on autism spectrum disorder: A descriptive case study. Journal of Qualitative Research in Education, 25, 28-50. doi: 10.14689/enad.25.2
  • Smith, K. R., & Matson, J. L. (2010). Behavior problems: differences among intellectually disabled adults with co-morbid autism spectrum disorders and epilepsy. Research in developmental disabilities, 31(5), 1062–1069. https://doi.org/10.1016/j.ridd.2010.04.003
  • Smith, J. A., & Osborn, M. (2004). Interpretative phenomenological analysis. In G. M. Breakwell (Ed.), Doing social psychology research (p. 229–254). British Psychological Society; Blackwell Publishing.
  • Stankovic M., Jelena, S., Stankovic, M., Shih, A., Stojanovic, A., & Stankovic, S. (2020). The Serbian experience of challenges of parenting children with autism spectrum disorders during the COVID-19 pandemic and the state of emergency with the police lockdown. The Lancet Child & Adolescent Health, 1-14. http://dx.doi.org/10.2139/ssrn.3582788
  • Summers, J., Shahrami, A., Cali, S., D’Mello, C., Kako, M., Palikucin-Reljin, A.,& Lunsky, Y. (2017). Self-Injury in Autism Spectrum Disorder and Intellectual Disability: Exploring the Role of Reactivity to Pain and Sensory Input. Brain Sciences, 7(1), 140. https://doi.org/10.3390/brainsci7110140
  • Şen, E., B., & Öksüz, Ç. (2016). Ankara’daki engelsiz parkların engelli çocukların kullanımına uygunluğunun değerlendirilmesi [Evaluation of Barriers To Use The Unimpeded Playing Parks Among Disabled Children in Ankara]. Journal of Occupational Therapy and Rehabilitation, 4(1), 15-26.
  • Tiyek, R., Eryiğit, B. H. & Baş, E. (2016). Engellilerin erişilebilirlik sorunu ve TSE standartları çerçevesinde bir araştırma [Accessibility problem with disabilities and a research within the framework of the TSE standards]. Kastamonu University Journal of Faculty of Economics and Administrative Sciences, 12(2), 225-261. https://dergipark.org.tr/tr/pub/iibfdkastamonu/issue/29623/3180884
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  • Toseeb, U., Asbury, K., Code, A., Fox, L., & Deniz, E. (2020). Supporting families with children with special educational needs and disabilities during COVID-19. PsyArXiv Preprints. https://doi.org/10.31234/osf.io/tm69k
  • Turkish Medical Association, (2020). Türk Tabipleri Birliği Covid-19 pandemisi iki aylık değerlendirme raporu. Ankara: TMA. https://www.ttb.org.tr/userfiles/files/covid19-rapor.pdf.
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  • van Steensel, F. J., Bögels, S. M., & Perrin, S. (2011). Anxiety disorders in children and adolescents with autistic spectrum disorders: a meta-analysis. Clinical child and family psychology review, 14(3), 302–317. https://doi.org/10.1007/s10567-011-0097-0
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  • Yaşlı, G., Turhan, E., Tözün, M., Ah, A., Doğanay, S., & Ülken, Y. (2014). İzmir ili Karşıyaka ilçesi’nde ilköğretim 3. sınıf öğrencilerinde obezite sıklığı ve etkileyen etmenler. STED/Sürekli Tıp Eğitimi Dergisi. 23(5), 168-173.
  • Yarımkaya, E., & Esentürk, O. K., (2020): Promoting physical activity for children with autism spectrum disorders during Coronavirus outbreak: benefits, strategies, and examples, International Journal of Developmental Disabilities. 1-6. https://doi.org/10.1080/20473869.2020.1756115
  • Yıldırım, A., & Şimşek, H. (2011). Sosyal bilimlerde nitel araştırma yöntemleri. Ankara.
  • Yucesoy-Ozkan, S., Kaya, F., Gulboy, E., Altun, D. E., & Oncul, N. (2020). General and special education practices during the COVID-19 viral outbreak in Turkey. In I. Sahin & M. Shelley (Eds.), Educational practices during the COVID-19 viral outbreak: International perspectives (pp. 19–62). ISTES Organization.
Toplam 75 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Bölüm Araştırma Makalesi
Yazarlar

Hatice Şengül Erdem 0000-0003-2933-8198

Halil Selimoğlu 0000-0002-1144-1923

Yeşim Fazlıoğlu 0000-0002-3970-7084

Sevgi Melis Akyürek 0000-0002-2072-8344

Erken Görünüm Tarihi 2 Haziran 2023
Yayımlanma Tarihi 2 Haziran 2023
Yayımlandığı Sayı Yıl 2023

Kaynak Göster

APA Şengül Erdem, H., Selimoğlu, H., Fazlıoğlu, Y., Akyürek, S. M. (2023). PARENTS’ VIEWS OF THE EFFECT OF COVID-19 ON INDIVIDUALS WİTH SPECIAL NEEDS: THE CASE OF TURKEY. Trakya Üniversitesi Sosyal Bilimler Dergisi, 25(1), 97-120. https://doi.org/10.26468/trakyasobed.1169642
AMA Şengül Erdem H, Selimoğlu H, Fazlıoğlu Y, Akyürek SM. PARENTS’ VIEWS OF THE EFFECT OF COVID-19 ON INDIVIDUALS WİTH SPECIAL NEEDS: THE CASE OF TURKEY. Trakya University Journal of Social Science. Haziran 2023;25(1):97-120. doi:10.26468/trakyasobed.1169642
Chicago Şengül Erdem, Hatice, Halil Selimoğlu, Yeşim Fazlıoğlu, ve Sevgi Melis Akyürek. “PARENTS’ VIEWS OF THE EFFECT OF COVID-19 ON INDIVIDUALS WİTH SPECIAL NEEDS: THE CASE OF TURKEY”. Trakya Üniversitesi Sosyal Bilimler Dergisi 25, sy. 1 (Haziran 2023): 97-120. https://doi.org/10.26468/trakyasobed.1169642.
EndNote Şengül Erdem H, Selimoğlu H, Fazlıoğlu Y, Akyürek SM (01 Haziran 2023) PARENTS’ VIEWS OF THE EFFECT OF COVID-19 ON INDIVIDUALS WİTH SPECIAL NEEDS: THE CASE OF TURKEY. Trakya Üniversitesi Sosyal Bilimler Dergisi 25 1 97–120.
IEEE H. Şengül Erdem, H. Selimoğlu, Y. Fazlıoğlu, ve S. M. Akyürek, “PARENTS’ VIEWS OF THE EFFECT OF COVID-19 ON INDIVIDUALS WİTH SPECIAL NEEDS: THE CASE OF TURKEY”, Trakya University Journal of Social Science, c. 25, sy. 1, ss. 97–120, 2023, doi: 10.26468/trakyasobed.1169642.
ISNAD Şengül Erdem, Hatice vd. “PARENTS’ VIEWS OF THE EFFECT OF COVID-19 ON INDIVIDUALS WİTH SPECIAL NEEDS: THE CASE OF TURKEY”. Trakya Üniversitesi Sosyal Bilimler Dergisi 25/1 (Haziran 2023), 97-120. https://doi.org/10.26468/trakyasobed.1169642.
JAMA Şengül Erdem H, Selimoğlu H, Fazlıoğlu Y, Akyürek SM. PARENTS’ VIEWS OF THE EFFECT OF COVID-19 ON INDIVIDUALS WİTH SPECIAL NEEDS: THE CASE OF TURKEY. Trakya University Journal of Social Science. 2023;25:97–120.
MLA Şengül Erdem, Hatice vd. “PARENTS’ VIEWS OF THE EFFECT OF COVID-19 ON INDIVIDUALS WİTH SPECIAL NEEDS: THE CASE OF TURKEY”. Trakya Üniversitesi Sosyal Bilimler Dergisi, c. 25, sy. 1, 2023, ss. 97-120, doi:10.26468/trakyasobed.1169642.
Vancouver Şengül Erdem H, Selimoğlu H, Fazlıoğlu Y, Akyürek SM. PARENTS’ VIEWS OF THE EFFECT OF COVID-19 ON INDIVIDUALS WİTH SPECIAL NEEDS: THE CASE OF TURKEY. Trakya University Journal of Social Science. 2023;25(1):97-120.
Resim

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