Derleme
BibTex RIS Kaynak Göster

Kök Hücre Nakli Sürecinde Aile Merkezli Onkolojik Sosyal Hizmet Uygulaması

Yıl 2019, Cilt: 30 Sayı: 2, 690 - 715, 30.05.2019
https://doi.org/10.33417/tsh.572231

Öz

Lösemi ve
lenfoma gibi hematolojik kanser türlerinde uygulanan kök hücre nakli tedavisi
yetişkin hasta birey ve ailesini fiziksel sorunlarla birlikte psiko-sosyal sorunlarla
da oldukça örselemektedir. Türkçe literatürde kök hücre nakli sürecinde sosyal
hizmet uzmanı rollerini inceleyen çalışmaların azlığı ve onkoloji
hastanelerinde psiko-sosyal hizmetlere duyulan ihtiyaç bu çalışmanın sorununu
oluşturmaktadır. Hasta bireyin aileden izole olmasını, aile içindeki rollerin
değişimini ve yaşamsal rutinin belirsiz bir süre boyunca bozulmasını öngören bu
hastalık ve tedavi süresince sosyal hizmet birimlerinin hasta ya da birey odaklı
değil aile merkezli çalışması gerektiği tartışılmıştır. Buna göre kök hücre
nakli öncesinde teşhis aşamasında devreye girmesi gereken onkolojik sosyal
hizmet birimlerinin, tedavi sırasında, tedavi sonrasında farklı müdahaleler ve
rollerde bulunması gerekmektedir. Bu çalışmada onkoloji hastaneleri başta olmak
üzere hastanelerde onkolojik sosyal hizmet birimlerinin kurulması, kanser
hastalarına ve ailelerine aile merkezli ve aile sisteminin dengesini gözeten hizmet
verilmesi, ailelere çocukların ve hastanın bakımı, finansal sorunlar gibi
konularda danışmanlık verilmesi, onkolojik sosyal hizmet birimlerinin
çocukların dışsallaştırılmamasına önem göstermesi ve çocukları ebeveynlerinin
sağlık durumu hakkında bilgilendirmesi gerektiği belirtilmiştir. 

Kaynakça

  • Adelstein, K. E., Anderson, J. G., & Taylor, A. G. (2014). Importance of meaningmaking for patients undergoing hematopoietic stem cell transplantation. Oncology Nursing Forum, 41(2), e172-e184.
  • Armoogum, J., Richardson, A., Armes, J. (2013). A survey of the supportive care needs of informal caregivers of adult bone marrow transplant patients, Support Care Cancer, 21(4), 977-986.
  • Baker, F., Denniston, M., Zabora, J.R. et al. (2003). Cancer problems in living and quality of life after bone marrow transplantation, Journal of Clinical Psychology in Medical Settings, 10, 27.
  • Beattie, S. ve Lebel, S. (2011). The experience of caregivers of hematological cancer patients undergoing a hematopoietic stem cell transplant: a comprehensive literature review. Psycho-Oncology, 20, 1137–1150.
  • BetheMatch. (2018). Caregiver resources. Erişim tarihi (02.11.2018). https://bethematch.org/patients-and-families/caregivers-and-transplant/caregiver-resources/.
  • Bevans, M.F., Sternberg, E.M. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. Journal of American Medical Association. 307(4),398–403.
  • Bona, K., London, W. B., Guo, D., Abel, G., Lehmann, L., & Wolfe, J. (2015). Prevalence and impact of financial hardship among New England pediatric stem cell transplantation families. Biology of Blood and Marrow Transplantation, 21(2), 312-318.
  • Boyle, D., Blodgett, L., Gnesdiloff, S., White, J., Bamford, A., et al., (2000). Caregiver quality of life after autologous bone marrow transplantation. Cancer Nursing, 23(3), 193-203.
  • Chow, K., & Coyle, N. (2011). Providing palliative care to family caregivers throughout the bone marrow transplantation trajectory. Journal of Hospice and Palliative Care Nursing, 13(1), 7–13.
  • Christ, G., et al, (2015). Handbook of oncology social work: psychosocial care for people with cancer. London: Oxford University Press.
  • Clipp, E. C., & George, L. K. (1992). Patients with cancer and their spouse caregivers. Perceptions of the illness experience. Cancer, 69(4), 1074-1079.
  • Cooke, L., Gemmill, R., Kravits, K., & Grant, M. (2009, May). Psychological issues of stem cell transplant. In Seminars in oncology nursing (Vol. 25, No. 2, pp. 139-150). WB Saunders.
  • Curbow, B., Somerfield, R., Baker, F., Wingard, J. R., & Legro, M. W. (1993). Personal changes, dispositional optimism, and psychological adjustment to bone marrow transplantation. Journal of Behavioral Medicine, 16, 423–443.
  • Engel, G. L. (1977). The need for a new medical model: a challenge for biomedicine. Science, 196,129–136.
  • Epley, P., Summers, J. A. ve Turnbull. A. (2010). Characteristics and trends in family-centered conceptualizations, Journal of Family Social Work, 13(3), 269-285.
  • Erdoğan, Z. ve Yavuz, D. E. (2014). Kanserli hastaların bakım vericilerinde yaşam kalitesi. Arşiv Kaynak Tarama Dergisi, 23(4),726-736.
  • Ezra, E. ve Chi, M. (2015). When the other shoe drops: unique fears and challenges of recurrent disease, G., Messner, C. ve Behar, L. (Ed.) Handbook of oncology social work psychosocial care for people with cancer (s.107-112) içinde.New York, NY: Oxford University Press.
  • Green, S. ve Irish, T. (2015). Integrating spirituality in oncology care. Chris, G., Messner, C. ve Behar, L. (Ed.) Handbook of oncology social work psychosocial care for people with cancer (s.9-19) içinde.New York, NY: Oxford University Press.
  • Harper, F. W., Peterson, A. M., Albrecht, T. L., Taub, J. W., Phipps, S., & Penner, L. A. (2016). Satisfaction with support versus size of network: Differential effects of social support on psychological distress in parents of pediatric cancer patients. Psycho‐Oncology, 25(5), 551-558.
  • Hedlund, S. (2015). Oncology social work: Past, present and future. Chris, G., Messner, C. ve Behar, L. (Ed.) Handbook of oncology social work psychosocial care for people with cancer (s.9-19) içinde.New York, NY: Oxford University Press.
  • Huizinga, G,A, Visser. A, Zelders-Steyn. Y.E, Teule. J.A, Reijneveld. S.A, Roodbol. P.F. (2011). Psychological impact of having a parent with cancer. European Journal of Cancer 47, 3, 239–246.
  • Huizinga, G. A., Visser, A., Van der Graaf, W. T. A., Hoekstra, H. J., & Hoekstra-Weebers, J. E. H. M. (2005). The quality of communication between parents and adolescent children in the case of parental cancer. Annals of Oncology, 16(12), 1956-1961.
  • Kapucu, S. ve Karaca, Y. (2008). Kök hücre naklinde hasta değerlendirmesi ve bakım. C.Ü. Hemşirelik Dergisi, 12(3), 52-59.
  • Keefe, F.J., Ahles T.A., Porter L.S., Sutton L.M., McBride C.M., Pope M.S., McKinstry E.T., Furstenberg C.P., Dalton J., Baucom D.H. (2003). The self-efficacy of family caregivers for helping cancer patients manage pain at end-of-life. Pain, 1-2, 157–162.
  • Kennedy, V. N. (1993). The role of social work in bone marrow transplantation, Journal of Psychosocial Oncology, 11(1), 103-117.
  • Kennedy, V.L. ve Lloyd-Williams, M. (2009). How children cope when a parent has advanced cancer. Psycho-Oncology, 18(8), 886–892.
  • Koenigsmann, M., Koehler, K., Regner, A., Franke, A., & Frommer, J. (2006). Facing mortality: a qualitative in-depth interview study on illness perception, lay theories and coping strategies of adult patients with acute leukemia 1 week after diagnosis. Leukemia Research, 30(9),1127-1134.
  • Langer, S.L., Brown, J.D., Syrjala, K.L. (2009). Intrapersonal and interpersonal consequences of protective buffering among cancer patients and caregivers. Cancer. 115(18),4311–4325.
  • Laudenslager, M.L., Simoneau, T.L., Kilbourn K., Natvig C., Philips, S., Spradley, J., Benitez, P, McSweeney, P., Mikulich-Gilbertson, S.K. (2015). A randomized control trial of a psychosocial intervention for caregivers of allogeneic hematopoietic stem cell transplant patients: effects on distress. Bone Marrow Transplant, 50(8), 1110-1118.
  • Lee, S. J., Loberiza, F. R., Antin, J. H., Kirkpatrick, T., Prokop, L., Alyea, E. P., ... & Fisher, D. C. (2005). Routine screening for psychosocial distress following hematopoietic stem cell transplantation. Bone marrow transplantation, 35(1), 77.
  • Leeson, L.A., Nelson, A.M., Rathouz, P.J., et al. (2015). Spirituality and the recovery of quality of life following hematopoietic stem cell transplantation. Health Psychology, 34, 920–928.
  • Leukemia Foundation. (2018). Accommodation services. Erişim Tarihi: 5.12.2018. https://www.leukaemia.org.au/our-services/accommodation-services/.
  • Mangurian, C., Packman, W., Riano, N. S., & Kearney, J. (2018). The need to support caregivers during pediatric bone marrow transplantation (BMT): a case report. Palliative & supportive care, 16(3), 367-370.
  • Mikulincer, M., Rydall, A., & WaBraun, M. A. (2007). Hidden morbidity in cancer: spouse caregivers. Journal of Clinical Oncology, 25(30), 4829-4834.
  • Molassiotis, A., & Morris, P.J. (1998). The meaning of quality of life and the effects of unrelated donor bone marrow transplants for chronic myeloid leukemia in adult long-term survivors. Cancer Nursing, 21, 205-211.
  • Molassiotis, A., Akker, O., Boughton, B. J. (1997). Perceived social support, family environment and psychosocial recovery in bone marrow transplant long-term survivors. Social Science & Medicine, 44(3), 317-25.
  • Mosher, C. E., Redd, W. H., Rini, C. M., Burkhalter, J. E., & DuHamel, K. N. (2009). Physical, psychological, and social sequelae following hematopoietic stem cell transplantation: a review of the literature. Psycho‐Oncology: Journal of the Psychological, Social and Behavioral Dimensions of Cancer, 18(2), 113-127.
  • Möller, B., Barkmann, C., Krattenmacher, T., ve diğ., (2014). Children of cancer patients: prevalence and predictors of emotional and behavioural problems. Cancer; 120(12), 2361–2370.
  • Oral, M. ve Tuncay, T. (2012). Ruh sağlığı alanında sosyal hizmet uzmanlarının rol ve sorumlulukları. Toplum ve Sosyal Hizmet, 23(2), 93-114.
  • Özbesler, C. ve Çoban. A. İ. (2010). Hastane ortamında sosyal hizmet uygulamaları: Ankara örneği. Toplum ve Sosyal Hizmet, 21(2), 31-46.
  • Özbesler, C. (2017). Tıbbi sosyal hizmete giriş ve tıbbi sosyal hizmet uzmanının rolleri. Attepe Özden, S. ve Özcan, E. (Ed.) Tıbbi sosyal hizmet (s. 3-13). Ankara: Nobel Yayıncılık.
  • Packman, W., Weber, S., Wallace, J., & Bugescu, N. (2010). Psychological effects of hematopoietic SCT on pediatric patients, siblings and parents: a review. Bone marrow transplantation, 45(7), 1134.
  • Pentz, R. D., Alderfer, M. A., Pelletier, W., Stegenga, K., Haight, A. E., Hendershot, K. A., ... & Hinds, P. (2014). Unmet needs of siblings of pediatric stem cell transplant recipients. Pediatrics, 133(5), e1156.
  • Peteet, J., Maytal, G., Rokni., H. (2010). Unimaginable loss: contingent suicidal ideation in family members of oncology patients. Psychosomatics 51(2), 166–70.
  • Persson, L. ve Hallberg, I.R. (2004). Lived experience of survivors of leukemia or malignant lymphoma. Cancer Nursing, 27, 303-31.
  • Peter Mac. (2018). Patient Accommodation. Peter MacCallum Cancer Centre Victoria Australia, Erişim tarihi (05.12.2018). https://www.petermac.org/location/melbourne/accommodation-around-peter-mac/patient-accommodation.
  • Rodrigue, J.R., MacNaughton, K., Hoffman, R.G., Graham-Pole, J., Andres, J.M., Novak, D.A. ve diğ., (2010). Transplantation in children: a longitudinal assessment of mothers’ stress, coping and perceptions of family functioning. Psychosomatics, 38, 478–486.
  • Semple, C.J. ve McCaughan, E. (2013). Family life when a parent is diagnosed with cancer: Impact of a psychosocial intervention for young children. European Journal of Cancer Care, 22, 219–231.
  • Semple, C. J., & McCance, T. (2010). Parents' experience of cancer who have young children: a literature review. Cancer nursing, 33(2), 110-118.
  • Siston, A. K., List, M. A., Daugherty, C. K., Banik, D. M., Menke, C., Cornetta, K., & Larson, R. A. (2001). Psychosocial adjustment of patients and caregivers prior to allogeneic bone marrow transplantation. Bone Marrow Transplantation, 27, 1181–1188.
  • Spath, M.L, Fife, B.L, Monahan, P.O, Decker, C.L, Austin, J.K, Abonour, R. ve diğ., (2013). Children's emotional adaptation to parental BMT. Bone Marrow Transplant; 48, 135–140.
  • Stenberg, U., Ruland, C. M., Miaskowski, C. (2010). Review of the literature on the effects of caring for a patient with cancer. Psychooncology, 19(10).
  • Şentürk, V., Yaylı. M, Civelek. A. (2004). Bir hastanın güncesi kemik iliği yapılan hastalarda psiko-sosyal yaklaşım. Kriz Dergisi, 12(1), 55-65.
  • Tan, J.Y.S., Lim, H.A., Kuek, N.M.Y. et al. (2015). Caring for the caregiver while caring for the patient: exploring the dyadic relationship between patient spirituality and caregiver quality of life. Support Care Cancer, 23, 3403-3406.
  • Thastum, M., Johansen, M. B., Gubba, L., Olesen, L. B., & Romer, G. (2008). Coping, social relations, and communication: a qualitative exploratory study of children of parents with cancer. Clinical child psychology and psychiatry, 13(1), 123-138.
  • THD, (2019). 10. Ulusal Kemik İliği Transplantasyonu ve Hücresel Tedaviler Kongresi Basın Bülteni, erişim tarihi: 19.04.2019. http://www.thd.org.tr/4/basinda-thd/839/10-ulusal-kemik-iligi-transplantasyonu-ve-hucresel-tedaviler-kongresi-basin-bul.
  • The System Capacity Initiative. (2014). BMT clinical social worker role description. Social Work Workforce Working Group of the System Capacity Initiative.
  • TKHK, (2011). Tıbbi sosyal hizmet uygulama yönergesi. http://www.tkhk.gov.tr/Dosyalar/bc20014fff8047eaa8bbf68bdd4762f6.pdf.
  • Türk Hematoloji Derneği (THD), (2017). Kök hücre nakli ve hakkında genel bilgiler kök hücre bağışı. Erişim tarihi (03.01.2017). http://www.thd.org.tr/THD_Halk/?sayfa=Kok_Hucre_Nakli.
  • UİDP (Ulusal İlik Donör Programı). (Tarihsiz). Nakil Süreci, http://www.kanhastaliklari.org.tr/files/pdf/transplant_process.pdf.
  • University of Michigan, (2013). A Patient and family guide to blood & marrow transplant, University of Michigan Comprehensive Cancer Center.
  • Welch, A. S., Wadsworth, M. E., & Compas, B. E. (1996). Adjustment of children and adolescents to parental cancer: parents' and children's perspectives. Cancer: Interdisciplinary International Journal of the American Cancer Society, 77(7), 1409-1418.
  • Wiener, L., Kazak, A. E., Noll, R. B., Patenaude, A. F., & Kupst, M. J. (2015). Standards for the psychosocial care of children with cancer and their families: an introduction to the special issue. Pediatric blood & cancer, 62(S5), S419-S424.
  • Xuereb, M. C., ve Dunlop, R. (2003). The experience of leukaemia and bone marrow transplant: searching for meaning and agency. Psycho-Oncology, 12, 397–409.
  • Yıldırım, B., Acar, M. ve Tuncay, T. (2013). Onkoloji alanında sosyal hizmet uzmanlarının görevleri ve kanıta dayalı değerlendirme, Toplum ve Sosyal Hizmet, 24(1), 169-189.
  • Young, L. (2003). A family impact analysis of programs for bone marrow transplantation of adults. (Family Impact Analysis Series). Madison, WI: Policy Institute for Family Impact Seminars.
  • Zabora, J.R., Smith, E.D., Baker F., ve diğ., (1992). The family: the other side of bone marrow transplantation. Journal of Psychosocial Oncology. 10, 35-46.

Family-Centered Oncology Social Work Practice in Stem Cell Transplantation Process

Yıl 2019, Cilt: 30 Sayı: 2, 690 - 715, 30.05.2019
https://doi.org/10.33417/tsh.572231

Öz

The treatment of stem cell transplantation
in hematological cancers such as leukemia and lymphoma is detrimental to the
adult patient and his family, along with the physical and psychosocial
problems. The inefficient number of studies investigating the role of social
workers in stem cell transplantation in Turkish literature and the need for
psychosocial services in oncology services constitute the problem of this
study. It was discussed that the social work services should provide family
centered support before, after and during the treatment. Accordingly, oncology
social work units should be involved in the diagnosis phase before the stem
cell transplantation process and continue their services after the discharge.
In this study, it was discussed that oncology hospitals should establish oncology
social work units that specializes in family-centered work, counselling should
be provided for family members on financial issues, caring for the children and
for the patient. Oncology social work units should also pay attention not to
externalize the children and inform them about their parents' health status. 

Kaynakça

  • Adelstein, K. E., Anderson, J. G., & Taylor, A. G. (2014). Importance of meaningmaking for patients undergoing hematopoietic stem cell transplantation. Oncology Nursing Forum, 41(2), e172-e184.
  • Armoogum, J., Richardson, A., Armes, J. (2013). A survey of the supportive care needs of informal caregivers of adult bone marrow transplant patients, Support Care Cancer, 21(4), 977-986.
  • Baker, F., Denniston, M., Zabora, J.R. et al. (2003). Cancer problems in living and quality of life after bone marrow transplantation, Journal of Clinical Psychology in Medical Settings, 10, 27.
  • Beattie, S. ve Lebel, S. (2011). The experience of caregivers of hematological cancer patients undergoing a hematopoietic stem cell transplant: a comprehensive literature review. Psycho-Oncology, 20, 1137–1150.
  • BetheMatch. (2018). Caregiver resources. Erişim tarihi (02.11.2018). https://bethematch.org/patients-and-families/caregivers-and-transplant/caregiver-resources/.
  • Bevans, M.F., Sternberg, E.M. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. Journal of American Medical Association. 307(4),398–403.
  • Bona, K., London, W. B., Guo, D., Abel, G., Lehmann, L., & Wolfe, J. (2015). Prevalence and impact of financial hardship among New England pediatric stem cell transplantation families. Biology of Blood and Marrow Transplantation, 21(2), 312-318.
  • Boyle, D., Blodgett, L., Gnesdiloff, S., White, J., Bamford, A., et al., (2000). Caregiver quality of life after autologous bone marrow transplantation. Cancer Nursing, 23(3), 193-203.
  • Chow, K., & Coyle, N. (2011). Providing palliative care to family caregivers throughout the bone marrow transplantation trajectory. Journal of Hospice and Palliative Care Nursing, 13(1), 7–13.
  • Christ, G., et al, (2015). Handbook of oncology social work: psychosocial care for people with cancer. London: Oxford University Press.
  • Clipp, E. C., & George, L. K. (1992). Patients with cancer and their spouse caregivers. Perceptions of the illness experience. Cancer, 69(4), 1074-1079.
  • Cooke, L., Gemmill, R., Kravits, K., & Grant, M. (2009, May). Psychological issues of stem cell transplant. In Seminars in oncology nursing (Vol. 25, No. 2, pp. 139-150). WB Saunders.
  • Curbow, B., Somerfield, R., Baker, F., Wingard, J. R., & Legro, M. W. (1993). Personal changes, dispositional optimism, and psychological adjustment to bone marrow transplantation. Journal of Behavioral Medicine, 16, 423–443.
  • Engel, G. L. (1977). The need for a new medical model: a challenge for biomedicine. Science, 196,129–136.
  • Epley, P., Summers, J. A. ve Turnbull. A. (2010). Characteristics and trends in family-centered conceptualizations, Journal of Family Social Work, 13(3), 269-285.
  • Erdoğan, Z. ve Yavuz, D. E. (2014). Kanserli hastaların bakım vericilerinde yaşam kalitesi. Arşiv Kaynak Tarama Dergisi, 23(4),726-736.
  • Ezra, E. ve Chi, M. (2015). When the other shoe drops: unique fears and challenges of recurrent disease, G., Messner, C. ve Behar, L. (Ed.) Handbook of oncology social work psychosocial care for people with cancer (s.107-112) içinde.New York, NY: Oxford University Press.
  • Green, S. ve Irish, T. (2015). Integrating spirituality in oncology care. Chris, G., Messner, C. ve Behar, L. (Ed.) Handbook of oncology social work psychosocial care for people with cancer (s.9-19) içinde.New York, NY: Oxford University Press.
  • Harper, F. W., Peterson, A. M., Albrecht, T. L., Taub, J. W., Phipps, S., & Penner, L. A. (2016). Satisfaction with support versus size of network: Differential effects of social support on psychological distress in parents of pediatric cancer patients. Psycho‐Oncology, 25(5), 551-558.
  • Hedlund, S. (2015). Oncology social work: Past, present and future. Chris, G., Messner, C. ve Behar, L. (Ed.) Handbook of oncology social work psychosocial care for people with cancer (s.9-19) içinde.New York, NY: Oxford University Press.
  • Huizinga, G,A, Visser. A, Zelders-Steyn. Y.E, Teule. J.A, Reijneveld. S.A, Roodbol. P.F. (2011). Psychological impact of having a parent with cancer. European Journal of Cancer 47, 3, 239–246.
  • Huizinga, G. A., Visser, A., Van der Graaf, W. T. A., Hoekstra, H. J., & Hoekstra-Weebers, J. E. H. M. (2005). The quality of communication between parents and adolescent children in the case of parental cancer. Annals of Oncology, 16(12), 1956-1961.
  • Kapucu, S. ve Karaca, Y. (2008). Kök hücre naklinde hasta değerlendirmesi ve bakım. C.Ü. Hemşirelik Dergisi, 12(3), 52-59.
  • Keefe, F.J., Ahles T.A., Porter L.S., Sutton L.M., McBride C.M., Pope M.S., McKinstry E.T., Furstenberg C.P., Dalton J., Baucom D.H. (2003). The self-efficacy of family caregivers for helping cancer patients manage pain at end-of-life. Pain, 1-2, 157–162.
  • Kennedy, V. N. (1993). The role of social work in bone marrow transplantation, Journal of Psychosocial Oncology, 11(1), 103-117.
  • Kennedy, V.L. ve Lloyd-Williams, M. (2009). How children cope when a parent has advanced cancer. Psycho-Oncology, 18(8), 886–892.
  • Koenigsmann, M., Koehler, K., Regner, A., Franke, A., & Frommer, J. (2006). Facing mortality: a qualitative in-depth interview study on illness perception, lay theories and coping strategies of adult patients with acute leukemia 1 week after diagnosis. Leukemia Research, 30(9),1127-1134.
  • Langer, S.L., Brown, J.D., Syrjala, K.L. (2009). Intrapersonal and interpersonal consequences of protective buffering among cancer patients and caregivers. Cancer. 115(18),4311–4325.
  • Laudenslager, M.L., Simoneau, T.L., Kilbourn K., Natvig C., Philips, S., Spradley, J., Benitez, P, McSweeney, P., Mikulich-Gilbertson, S.K. (2015). A randomized control trial of a psychosocial intervention for caregivers of allogeneic hematopoietic stem cell transplant patients: effects on distress. Bone Marrow Transplant, 50(8), 1110-1118.
  • Lee, S. J., Loberiza, F. R., Antin, J. H., Kirkpatrick, T., Prokop, L., Alyea, E. P., ... & Fisher, D. C. (2005). Routine screening for psychosocial distress following hematopoietic stem cell transplantation. Bone marrow transplantation, 35(1), 77.
  • Leeson, L.A., Nelson, A.M., Rathouz, P.J., et al. (2015). Spirituality and the recovery of quality of life following hematopoietic stem cell transplantation. Health Psychology, 34, 920–928.
  • Leukemia Foundation. (2018). Accommodation services. Erişim Tarihi: 5.12.2018. https://www.leukaemia.org.au/our-services/accommodation-services/.
  • Mangurian, C., Packman, W., Riano, N. S., & Kearney, J. (2018). The need to support caregivers during pediatric bone marrow transplantation (BMT): a case report. Palliative & supportive care, 16(3), 367-370.
  • Mikulincer, M., Rydall, A., & WaBraun, M. A. (2007). Hidden morbidity in cancer: spouse caregivers. Journal of Clinical Oncology, 25(30), 4829-4834.
  • Molassiotis, A., & Morris, P.J. (1998). The meaning of quality of life and the effects of unrelated donor bone marrow transplants for chronic myeloid leukemia in adult long-term survivors. Cancer Nursing, 21, 205-211.
  • Molassiotis, A., Akker, O., Boughton, B. J. (1997). Perceived social support, family environment and psychosocial recovery in bone marrow transplant long-term survivors. Social Science & Medicine, 44(3), 317-25.
  • Mosher, C. E., Redd, W. H., Rini, C. M., Burkhalter, J. E., & DuHamel, K. N. (2009). Physical, psychological, and social sequelae following hematopoietic stem cell transplantation: a review of the literature. Psycho‐Oncology: Journal of the Psychological, Social and Behavioral Dimensions of Cancer, 18(2), 113-127.
  • Möller, B., Barkmann, C., Krattenmacher, T., ve diğ., (2014). Children of cancer patients: prevalence and predictors of emotional and behavioural problems. Cancer; 120(12), 2361–2370.
  • Oral, M. ve Tuncay, T. (2012). Ruh sağlığı alanında sosyal hizmet uzmanlarının rol ve sorumlulukları. Toplum ve Sosyal Hizmet, 23(2), 93-114.
  • Özbesler, C. ve Çoban. A. İ. (2010). Hastane ortamında sosyal hizmet uygulamaları: Ankara örneği. Toplum ve Sosyal Hizmet, 21(2), 31-46.
  • Özbesler, C. (2017). Tıbbi sosyal hizmete giriş ve tıbbi sosyal hizmet uzmanının rolleri. Attepe Özden, S. ve Özcan, E. (Ed.) Tıbbi sosyal hizmet (s. 3-13). Ankara: Nobel Yayıncılık.
  • Packman, W., Weber, S., Wallace, J., & Bugescu, N. (2010). Psychological effects of hematopoietic SCT on pediatric patients, siblings and parents: a review. Bone marrow transplantation, 45(7), 1134.
  • Pentz, R. D., Alderfer, M. A., Pelletier, W., Stegenga, K., Haight, A. E., Hendershot, K. A., ... & Hinds, P. (2014). Unmet needs of siblings of pediatric stem cell transplant recipients. Pediatrics, 133(5), e1156.
  • Peteet, J., Maytal, G., Rokni., H. (2010). Unimaginable loss: contingent suicidal ideation in family members of oncology patients. Psychosomatics 51(2), 166–70.
  • Persson, L. ve Hallberg, I.R. (2004). Lived experience of survivors of leukemia or malignant lymphoma. Cancer Nursing, 27, 303-31.
  • Peter Mac. (2018). Patient Accommodation. Peter MacCallum Cancer Centre Victoria Australia, Erişim tarihi (05.12.2018). https://www.petermac.org/location/melbourne/accommodation-around-peter-mac/patient-accommodation.
  • Rodrigue, J.R., MacNaughton, K., Hoffman, R.G., Graham-Pole, J., Andres, J.M., Novak, D.A. ve diğ., (2010). Transplantation in children: a longitudinal assessment of mothers’ stress, coping and perceptions of family functioning. Psychosomatics, 38, 478–486.
  • Semple, C.J. ve McCaughan, E. (2013). Family life when a parent is diagnosed with cancer: Impact of a psychosocial intervention for young children. European Journal of Cancer Care, 22, 219–231.
  • Semple, C. J., & McCance, T. (2010). Parents' experience of cancer who have young children: a literature review. Cancer nursing, 33(2), 110-118.
  • Siston, A. K., List, M. A., Daugherty, C. K., Banik, D. M., Menke, C., Cornetta, K., & Larson, R. A. (2001). Psychosocial adjustment of patients and caregivers prior to allogeneic bone marrow transplantation. Bone Marrow Transplantation, 27, 1181–1188.
  • Spath, M.L, Fife, B.L, Monahan, P.O, Decker, C.L, Austin, J.K, Abonour, R. ve diğ., (2013). Children's emotional adaptation to parental BMT. Bone Marrow Transplant; 48, 135–140.
  • Stenberg, U., Ruland, C. M., Miaskowski, C. (2010). Review of the literature on the effects of caring for a patient with cancer. Psychooncology, 19(10).
  • Şentürk, V., Yaylı. M, Civelek. A. (2004). Bir hastanın güncesi kemik iliği yapılan hastalarda psiko-sosyal yaklaşım. Kriz Dergisi, 12(1), 55-65.
  • Tan, J.Y.S., Lim, H.A., Kuek, N.M.Y. et al. (2015). Caring for the caregiver while caring for the patient: exploring the dyadic relationship between patient spirituality and caregiver quality of life. Support Care Cancer, 23, 3403-3406.
  • Thastum, M., Johansen, M. B., Gubba, L., Olesen, L. B., & Romer, G. (2008). Coping, social relations, and communication: a qualitative exploratory study of children of parents with cancer. Clinical child psychology and psychiatry, 13(1), 123-138.
  • THD, (2019). 10. Ulusal Kemik İliği Transplantasyonu ve Hücresel Tedaviler Kongresi Basın Bülteni, erişim tarihi: 19.04.2019. http://www.thd.org.tr/4/basinda-thd/839/10-ulusal-kemik-iligi-transplantasyonu-ve-hucresel-tedaviler-kongresi-basin-bul.
  • The System Capacity Initiative. (2014). BMT clinical social worker role description. Social Work Workforce Working Group of the System Capacity Initiative.
  • TKHK, (2011). Tıbbi sosyal hizmet uygulama yönergesi. http://www.tkhk.gov.tr/Dosyalar/bc20014fff8047eaa8bbf68bdd4762f6.pdf.
  • Türk Hematoloji Derneği (THD), (2017). Kök hücre nakli ve hakkında genel bilgiler kök hücre bağışı. Erişim tarihi (03.01.2017). http://www.thd.org.tr/THD_Halk/?sayfa=Kok_Hucre_Nakli.
  • UİDP (Ulusal İlik Donör Programı). (Tarihsiz). Nakil Süreci, http://www.kanhastaliklari.org.tr/files/pdf/transplant_process.pdf.
  • University of Michigan, (2013). A Patient and family guide to blood & marrow transplant, University of Michigan Comprehensive Cancer Center.
  • Welch, A. S., Wadsworth, M. E., & Compas, B. E. (1996). Adjustment of children and adolescents to parental cancer: parents' and children's perspectives. Cancer: Interdisciplinary International Journal of the American Cancer Society, 77(7), 1409-1418.
  • Wiener, L., Kazak, A. E., Noll, R. B., Patenaude, A. F., & Kupst, M. J. (2015). Standards for the psychosocial care of children with cancer and their families: an introduction to the special issue. Pediatric blood & cancer, 62(S5), S419-S424.
  • Xuereb, M. C., ve Dunlop, R. (2003). The experience of leukaemia and bone marrow transplant: searching for meaning and agency. Psycho-Oncology, 12, 397–409.
  • Yıldırım, B., Acar, M. ve Tuncay, T. (2013). Onkoloji alanında sosyal hizmet uzmanlarının görevleri ve kanıta dayalı değerlendirme, Toplum ve Sosyal Hizmet, 24(1), 169-189.
  • Young, L. (2003). A family impact analysis of programs for bone marrow transplantation of adults. (Family Impact Analysis Series). Madison, WI: Policy Institute for Family Impact Seminars.
  • Zabora, J.R., Smith, E.D., Baker F., ve diğ., (1992). The family: the other side of bone marrow transplantation. Journal of Psychosocial Oncology. 10, 35-46.
Toplam 67 adet kaynakça vardır.

Ayrıntılar

Birincil Dil Türkçe
Konular Sosyoloji (Diğer)
Bölüm Makaleler
Yazarlar

Melih Sever 0000-0001-5818-5114

Sunay İl Bu kişi benim 0000-0002-6034-5794

Yayımlanma Tarihi 30 Mayıs 2019
Gönderilme Tarihi 14 Şubat 2019
Yayımlandığı Sayı Yıl 2019 Cilt: 30 Sayı: 2

Kaynak Göster

APA Sever, M., & İl, S. (2019). Kök Hücre Nakli Sürecinde Aile Merkezli Onkolojik Sosyal Hizmet Uygulaması. Toplum Ve Sosyal Hizmet, 30(2), 690-715. https://doi.org/10.33417/tsh.572231